Well, it's been a bizarre 2 months. All through October I 'struggled' with very painful ankles. Then in the 3rd week my right knee came out in sympathy. All this came in the wake of an annual appointment with my rheumy the previous month when I told him that things were pretty good. A bit stiff in the mornings, the occasional bout of pain. But, in general, not bad.
At the end of October I was having great problems walking with swollen ankles, feet and my right knee was twice its normal size. So, on the 30th (Fri) I phoned my Rheumy Nurse and she got me an appointment for the following Thursday.
As usual things had calmed down a bit, but they still decided to give me a Steroid injection to my knee. They also wanted to get some fluid out of my knee but didn't succeed. The following day I was walking well and by the Sunday I ready for the Grand National.
Two weeks later and I had another massive flare up which affected every main joint except my right knee and my right arm. I was so bad that I wore the same socks for 3 days because I couldn’t reach to get them off. I couldn't reach my my mouth whilst holding a fork in my left hand, I had to use a shopping trolley as a walking aid! And boy was I feeling down... I phoned the Rheumy Nurse up and she said “we can't have you like that, can you get here tomorrow at 2.00?”. I got there allright and she gave me another Steroid injection, this time in the bum. 2 days later I was right as rain.
Just over month on and I had a follow up appointment yesterday with a different (to my usual) rheumy. I told her that I am very stiff in the mornings and had a few aches, pains & clicks. But, “I can live with this”.
She looked at my blood test results, looked at me quite concerned and said “Oh my, was you really poorly at the end of October, your inflammation was sky high”.
She said that as the steroids had worked, she would like to get me onto some other medication in addition to the Sulfasalazine to try and stop these flair up's. But, didn't know what to give me as she wasn't sure what they were dealing with. Inflammatory Rheumatism or Gout.
She then, after consulting with the other Haematologist (the one who had in fact diagnosed me) in the next room , told me that at the next flair up I must phone them and they will get me in ASAP as they want to see my joints when they are swollen. Seems sensible to me!
I do feel that I am getting some great & speedy treatment at the moment. But, what concerns me is that after being diagnosed by one Rheumy 2 ½ years ago with 'Sero Negative Inflammatory Rheumatism'. I am now being told by another that they don't know what it is definitely. I'm not sure whether this is a good or bad thing.
I would love to hear anybody else’s opinions.
64yo Male - Gout (at the mo!)