Hi, Welcome!

The community is a safe space for people living with and connected to arthritis to ask questions and share experiences. Get started by registering here and posting your first comment or question!

Sign In with a Versus Arthritis account

However your life is impacted by arthritis we want to understand more about you so that we can make sure we continue to develop our information, support and services such as the online community.

If you've not already, please take 5 -10 minutes to fill in our survey. All information you provide will remain anonymous and be treated in the strictest confidence. TAKE OUR SURVEY

Still trying to be patient ...

FrumpyshoesFrumpyshoes Posts: 12
edited 27. Mar 2016, 10:35 in Living with Arthritis archive
Wow just checked and it's been 16 months since I last posted....

When I joined I had just been diagnosed with psa and started mtx. Unfortunately mtx hasn't really helped me much (at all?) after running through the usual less than delightful options (leflunomide, plaquenil) I eventually got to try enbrel. For some reason this caused an allergic asthma reaction in me so finally have started on humira. 2 injections down and no difference with pain although seem to have more energy - just in too much pain to do anything with all the extra energy.

Keep reading about those who have been helped quickly (obviously knew that wouldn't be me!) and really trying to stay patient and keep going with it! I know - what other choice do I have? I just find it so frustrating to try one thing after the other with no change at all. I know I've posted about flares before but I get a regular flare every 3 weeks (different part of the body most times just to keep me guessing). They literally floor me for 3-4 days then just as suddenly depart. Others have talked about flares as being long lasting so am I the only one who has these? Hospital say they definitely are psa flares as inflamed hot - all the usual lovely things .... Oh and once they're gone the affected joint is always left feeling a bit less good if you know what I mean?

Anyway nice to be back - only sorry I don't have anything happier to report...


  • stickywicketstickywicket Posts: 25,870
    edited 30. Nov -1, 00:00
    If you read merri's thread below you'll see that she's very meds - resistant too but has tried seberal more. I hope you can both find the one with your nqme on ot. Good luck!
    “There is always a well-known solution to every human problem - neat, plausible, and wrong.” H.L. Mencken
  • frogmortonfrogmorton Posts: 25,125 ✭✭
    edited 30. Nov -1, 00:00
    Welcome back Frumpyshoes :)

    I am sorry you aren't too great, but am pleased to see you.

    I too hope 'they' find something to help you sooner rather than later.


    Toni xxx

    Toni xxx
  • moderatormoderator Posts: 4,095 mod
    edited 30. Nov -1, 00:00
    Hi Frumpyshoes,
    as stickywicket mentioned you might like to look at merri's post. Here is the link for you http://arthritiscareforum.org.uk/viewtopic.php?f=8&t=46304
    Best Wishes
    Moderator Sharon
  • Sapp50Sapp50 Posts: 22
    edited 30. Nov -1, 00:00
    Hi Frumpyshoes

    Welcome back, sorry to hear you are still going through the experimental stages with meds.

    Hang in there!!

    God bless
Sign In or Register to comment.