Hello, I will try make this as short as possible.. I have been diagnosed with fibromyalgia by the rhuemy. I also have high inflammatory markers in my bloods, I am waiting on a bone scan on my knees but my feet apparently have wear and tear. My hands ache if I do repetitive things.
These symptoms began in 2013;
* Extreme fatigue
* Pain in back, hip, legs, knees, shoulders, neck
* Stiffness for 3-4hrs on a morning until pain killers have kicked in
* Cognitive problems, confusion, memory loss
* Muscle weakness,
* IBS, cramps in abdomen
* Weight gain due to inability to exercise due to sickness afterwards and extreme pain during
* Tramadol (pain releif)
* Naproxen (pain releif)
* Propranalol (anxiety/palpitations)
* Cyclizine (anti-sickness/vertigo)
* Oxybutynin (excess sweating/hyperhidrosis)
I've been referred to therapy and physio, I have not worked since January due to being a complete embarrassment. I was always late because I have a really bad do on a morning with my bowels (IBS) no matter how early I got up, it happened as I was about to leave the house which made me late, typical. I kept forgetting things, making mistakes, things that I had never done pre-2013. I was not unable to sit at my desk all day due to pain in my back, hip, neck, shoulders which meant popping more tramadol at dinner time, which I didn't want to have to do as it didn't always work, and by dinner time I was ready for bed, extreme fatigue kicked in. I was yawning at my desk, the whole thing was just so embarrassing. I also suffer from hyperhidrosis (excess sweating), I can't take anti-depressants due to this so I do talking therapy for my depression, I can't have botox for it as it is all over my body so I take medication which stops all water exiting the body, makes me bloated, messes with my bowels but at least I don't sweat all over. Everywhere I have worked LOVE the heating blasting and it suffocates me, my hair sweats my face swells and sweats all over it's just so embarrassing, it makes me feel sick and dizzy and I can't concentrate and be a good worker. I've gone from the most confident slim fit person, to a slump, overweight, tired, pained, broken mess.
I visited citizens advice recently, they basically told me to claim PIP so I have got the forms at home, I need to reply by 3 weeks time. I have a letter from my rhuemy explaining what we discussed at consultation (although some of it is wrong). Is it worth going through the hassle?
I am very nervous nowadays, I've just split with my BF also, I suffer with anxiety but I just drug myself up before I leave the house as I have hardly any friends and no family within 30 mile radius. I am very alone. I am also petrified of telling anyone I am going to be claiming PIP as I feel they will make fun of me. There is a huge stigma against the disabled unfortunately, as if they are lazy I have heard some awful things said from people, they have no idea. I am suffering serious financial loss not being able to work, I have worked all my life from 16 (I'm coming up 28 soon).. I have a 2 year old who is very energetic and I am afraid that because I am managing (because I currently have to) that this may go against me in my assessment. I haven't even filled the forms in yet, I also don't know what to ask my Dr to write for me in his letter. Do I focus on the pains and symptoms or my mental health, or all of it, I want to be honest and get my point across.
PIP seems to be about how you manage around the house cooking washing etc, I cook occasionally on a good day after tablets but I generally eat take outs as I am just too tired to cook and by tea time my legs ache like hell. I drove to visit my Nan earlier 60 miles round trip and I am laid on sofa as even with pain killers, I have shooting pains from the gear changing. I wash myself because I have nobody else but my poor 2 year old Daughter puts my socks on for me, she is very very helpful bless her.
I have literally read every thread on here regarding PIP since I have heard of it, but I don't feel like I deserve as there seems to be so many people worse off than me, it I don't have much self worth currently. I recently was admitted into hospital as I was suffering with a mystery virus, it was like flu/tonsillitis and pneumonia all in one, since then I have suffered vertigo daily, I can't bend down as I will pass out and get extreme pain in my ears and dizziness and hearing loss. I feel like a failure and I am only 27, my whole life has been turned upside down, I just waddle round the house.
I currently get income support due to my daughter being under 5, if I claim PIP will I have to change over to ESA? I'm scared of all this change!!