Hello to anyone reading this. I've had RA since 1997 and it's been more or less under control for a long time. Then 4 yrs ago i had both hips replaced. I had to stop Infliximab, which had been great, was affecting my LFTs. Am now on Humira. I was unable to continue working 6 mths ago, and now i feel really alone. My pain has got worse, I'm having constant flare ups. My husband has been good but he works long shifts. I know i have to go back to the Rheumatologist again.
Thank you for listening, i tried to keep it brief. It's just good to know there are people who will understand, i cry with frustration sometimes. I have to keep moving, i know. I walk our dog everyday...somehow lol. X
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You're going through a tough patch. We all have them and there's no need to be apologetic about it all. It's the pain, the frustration, the uncertainty and the fear plus, sometimes, as with you, the disappointment that a working med has had to be abandoned.
I have RA too and a full set of replaced hips and knees. Sometimes the meds we take before an op just don't work afterwards. I'm lucky with my methotrexate. I seem able to stop and start it at will.
You say you 'have to go back to the rheumatologist' and, of course, you're right but I suspect your reluctance lies in a fear of maybe being taken off humira and entering another period of extreme flux. It might not be like that though. They might just add something to it. I take both meth and hydroxy and many others on here are on triple therapy.
Personally, I find when things are rough I become extremely indecisive. I just don't seem able to take a course of action that might help. I think the pain befuddles the brain. Don't be like me. Ring your rheumatology helpline for advice. And why not ring Arthritis Care's helpline for a chat too? And do keep talking to us. Support from those in the know really does make a difference.
I will ring your helpline , i know i need that too. It's usually me who is counselling others ,( a friend is bi polar), and trying to be positive.
Thanks for being here, i wished I'd done this ages ago. X
Finding AC was a boon because none of my peers had similar troubles and (apart from one who is gamely trying to catch up with s slightly gammy knee) they still don't which is most irksome.
Well done, Anny. I'm sure these weren't easy decisions.
Sometimes we're the counsellor and sometimes we're the counselled. That's life. The trick is knowing when to switch.
I hope the appointment helps. Please let's know how you get on but, in the meantime, join in anywhere on here. We're a friendly bunch and newbies are always welcome.
Barbara