Good evening all
Just woke up again ! Very painful hands, wrists, fingers, ankles and feet which woke me at 2 am. I was ok when I went to bed. Since my visit to consultant that I wrote about in other thread he has put me back on Hyroxy starting with 1 a day and from today 2 a day....hope night nausea does not return...although nothing proved it was that. Seems it's all trial and error ! FA increased to 5 mg a week. I am taking the anti sickness tbs as well. But the pain today has not been touched by cocodomol. Go took me off Naproxen as they thought this was the nausea culprit but ar least I knew if I took one the pain can be managed. Coco or para as you say only masks he pain. I am going to phone GPs Monday to see if there is another pain tab if not I may ask to take Naproxen. What do you all take for pain when a flare comes ? Trouble is I have been off hydroxy for 6 weeks and it now needs to get back in sy system. Really sorry for spoiling anyone's lovely day suppose I am feeling sorry for myself laying on bed suppounded by newspapers and mags X thanks for reading and any ideas or suggestions would be gratefully received and put to the test .
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My view is that, when a flare comes, it takes some time to go. For me, it always means that the current DMARDS aren't working properly and, once they're sorted, the flare goes. That will be why you are being put on etanercept / enbrel. The rest is just pain relief and will only do so much. I hope your GP can help with some different pain relief but, in your shoes, I certainly wouldn't want more NSAIDS.
Any form of pain relief dulls temporarily rather than removes, sad but true. What strength cocos are you taking? Mine are the 30/500, they do enough to enable me to get on with things but no more than that. I take them daily to make life tolerable, I regard them as a necessary part of my drug regimen. This is undoubtedly a miserable time for you (I remember my times like this well) and I hope that things soon settle down. ((( ))) DD
I never found any of my NSAIDs any good at reducing pain levels but others find they can help: again taking them regularly is the sensible thing with our conditions. My husband has the occasional bout of gout and between three to five days of naproxen sorts that for him. DD
NSAIDS are anti-inflammatories – ibuprofen, naproxen, diclofenac etc. They deal with inflammation and reduce pain that way but, if they're going to make you nauseous.....
There are a lot of 'painkillers' that are not anti-inflammatories, your cocodamol being one of them.
I hope your appointment helps.
It's tricky for us (and our GPs) when we react so differently to the same medications. I know from reading on here that one man's poison is another's Holy Grail and we will never know what's what until we try. I remember when I began humira my consultant promising that I would be able to stop using my crutches and taking cocos. That may well have been her experience with other patients, I'm so pleased I bucked that trend!
It's good that you are doing better and I hope it lasts. I suspect we all feel tired on a constant basis (I reckon it's part-and-parcel of an auto-immune arthritis) but on some days I feel less tired than others which is always a positive. Yeah, right!