Well I had another good appointment today. My inflammatory markers have started to go down so it's clear there is something else going on (which fits in with my feeling that the pain in my elbows was different to that elsewhere in my arms etc).
I am still on Pred but starting to taper down from 15mg to 7 1/2mg in fortnightly steps. If I run out before I next see her then I ask my GP and stay on 7 1/2.
If my shoulders and neck improve over the next two weeks then it's polymylegia rheumatica. Alternatively if they don't then I may have developed a form of tendonitus in my elbows which has also affected my inflammatory markers and I also have Chronic pain syndrome affecting my neck/shoulders/arms.
Go back to see her again in about 6-8 weeks and redo blood tests a few days before.
He did not say you will not be storm tossed, you will not be sore distressed, you will not be work weary. He said you will not be overcome.
Julian of Norwich