So a few of you may remember I paid to go private to see a rheumatologist consultant. I was diagnosed with Palindromic Rheumatism as well as Fibromyalgia and Hypermobity Syndrome. So I am currently going through a medical retirement with work and as part of the process I have been to see a selected medical practitioner who has the job of commenting on my illness and wether it is permanent. He did say I have a permanent disability with regards to pension regulations etc but says I am fit to do basic office work. He assumes the medication I am to start in January hydroxychloriquine will help the rheumatism and therefore help the fibromyalgia. He appeared quite dismissive of the fibromyalgia and admitted Palindromic Rheumatism is rare and he didn't know much about it....its my future in his hands! Grrr I only wish they would just ask my consultant and he could tell them in more detail about the illness and potential treatment success rate. He said 10% of people go on to be cured? Probably googled that somewhere!