Hi, I have psoriatic arthritis- anyone else got this?
Olivecon
Member Posts: 2
Hi, I have heen diagnosed with psotiatic arthritis 11 years ago , im 39 now.
I have 3children and work part time as a carer. Which is very hard to maintain at times 😩
Im on the waiting list for a wrist reconstruction and an ankle fusion and tendon reconstruction, has anyone got experience of these operations?
Also I live in North Wales, anyone else local?
Xxx
I have 3children and work part time as a carer. Which is very hard to maintain at times 😩
Im on the waiting list for a wrist reconstruction and an ankle fusion and tendon reconstruction, has anyone got experience of these operations?
Also I live in North Wales, anyone else local?
Xxx
0
Comments
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Hello, I have PsA plus OA and fibromyalgia but there the similarity ends; I am 60, deliberately childless, retired and live in Suffolk. I began when I was 37, for various reasons did not start the meds until I was 42 and have had only synovectomy operations on my knees.
There are quite a few on here with PsA, I hope they see your post and reply. DDHave you got the despatches? No, I always walk like this. Eddie Braben0 -
Hi Olivecon,
Lovely to meet you, welcome to the forum. It must be very hard being a mum to 3 children and a carer, you should be proud of yourself.
It seems like wrist reconstruction is to do with ligaments, I haven’t got a handy leaflet for you but this one deals generally with wrist surgery and may be of help
https://www.versusarthritis.org/about-arthritis/treatments/surgery/hand-and-wrist-surgery/
This leaflet deals with ankle operations
https://www.versusarthritis.org/about-arthritis/treatments/surgery/foot-and-ankle-surgery/
Do let us know how you get on, we have a handy thread on going into hospital which i can point you to if you like
Take care
Yvonne x0 -
Hi olivecon and welcome from me too. I have RA not PsA and my wrists and ankles have fused themselves.
It must be hard working with children given your condition. Very painful too.
I don't think a hand reconstruction is a very common operation. I certainly don't remember reading of it on here before. I found this, though. www.nhs.uk/conditions/hand-tendon-repair/
If you re-post on the Living With Arthritis forum you might find some people who have had ankle fusion. I think that's a bit more mainstream. My impression is that it's a successful op.
With both operations, though, you'll need to factor in a lot of recovery time. In the case of foot surgery it has to be non-weight bearing at first. This must be hard but very worthwhile.If at first you don't succeed, then skydiving definitely isn't for you.
Steven Wright0 -
Hey - I'm a fellow sufferer! I'm also based in Chester so not far from you. And also in my 30s. I don't have children though so I can't imagine how difficult that must be.
What drug treatments have you been through in your 11 years?0
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