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Its lovely to meet you, I’m looking forward to seeing your future posts around our community. Fibromyalgia is a difficult condition because you don’t necessarily seem ill to look at. It’s also tricky in the way it affects one part of you one day and the next that bit is fine and something else is painful.
Our community recognises that, many people with arthritis also have fibromyalgia so there are many of us who know what it is like, please feel able to share your thoughts or feelings here.
Here is our leaflet regarding fibromyalgia
and Chloe has written about her life with fibromyalgia here
Let us know what sorts of things you struggle with then we can tailor help for you.
Hello, I have psoriatic and osteo arthritis plus fibro so know how these things can pull one down. I began my first arthritis when I was 37, was using crutches by 42 and got my first rollator when I was 47. What a boon that was, it meant (and still means) I could go further and do more. I am now 61.
I can tell when my fibro is active as my skin feels tender to the touch and I am unable to concentrate on even very simple things. I can also feel extra tired too but in a different way to when my PsA is flaring. I plunged into depression when my OA was diagnosed in 2011 and to this day take a small daily dose of an anti-depressant. By nature I m not an anxious person so that is somethng I do not understand as I lack experience.
I am lucky that I am now retired. I started my own business just a few months before the arthritis began amd managed for seventeen years before deciding enough was enough: a double carpal tunnel op was the final straw for this camel. I take four 30/500 cocodamol for pain relief and use distraction as my main strategy to deal with the pain. DD
Over the course of an unhealthy life I have learned to feel more relaxed about things. I used to get very upset as a child when my peers were playing out in the sunshine whilst I was struggling to breathe indoors (asthma in the pre-inhaler days). I was inside for weeks at a time, the curtains drawn and windows shut to keep out pollen. You soon learn to adapt. My Ma nearly killed me with a vase of irises, she didn't mean to but nobody knew about allergies back then. Being inside now is a walk in the park compared to then. Telly, internet, digital radio all help to entertain me whilst I get on with the cleaning (my cleaner isn't coming for obvious reasons) and other chores. They have to be done and my husband has the usual male blind spots in that area. I can see why others unused to being indoors for any period of time are failing to deal with it in a positive manner. Are you usually more active then? From what you have said I got the feeling this is nothing unusual for you.
It is very easy in these challenging times to allow oneself to become despondent and fighting against it isn't easy. When I feel I can't do something I challenge myself: is it that I can't or that I won't? It is usually the latter. Doing something gives me a sense of achievement, a feeling of pride, so what if it takes me all day to change the bed? The thing is I did it, go me! DD