25, fused joints and muscle wastage
Hey, I'm new to this and don't really know how to start this discussion but at the age of 15 I was diagnosed with polyarticular JIA, at the age of 20 I had a metal plate screwed to hold my left wrist together. I have a partially fused right wrist, and a fully fused right elbow that is stuck at a 45 degree angle. I cannot stand up for too long, nor can I wear flat shoes if i do I'm basically a write off for 2 days. I'm now 25, I have to have 4 lots of surgery by the age of 30, 2 wrist replacements, and elbow replacement and jaw replacement surgery. Im allergic to most drugs for arthritis and twice a year have to have a drug that if not monitored closely sends me into anaphylaxis. I'm at the end of my tether. I try to pretend I don't have it. But I'm in constant pain. I work 42.5 hour weeks on a computer all day. My consultant has advised I go part time but I cannot afford to, he suggested applying for DLA. But they refused my application and basically said I'm not disable enough. She pretty much said that I 'looked well'. I'm tired. I'm honestly so so tired. It's an invisible illness I get that but I need support. Has anyone else got fused joints at a young age. It's shallow but I feel like a freak, the simplest of things is so hard.