I don’t know if this is the right forum but I just wondered if anyone can give us some advice. My husband was diagnosed with adult onset stills disease, a type of arthritis. A year since, several bouts of cyclophosphamide and Rituxymab and he’s not much better. Still suffers daily pain and low energy. The doctors are awesome but obviously they’ve been a little busy lately and so we don’t feel like we have their full attention! I just wondered if anyone had practical advise on how to sleep while on steroids, or have come across realistic anti inflammatory recipe books or plans.
We know we need to do something cause it’s really getting him down. I’d just appreciate any advice on how to cope with it in a day to day basis until the doctors work out how to sort him out.
Thanks so much