Week Ending 11th September
I made a shopping list.
Not a major achievement, but I did do it using my mobile phone using a simple note-taking app that comes installed by default. What was also different was that I could speak to it: say the word "milk" and there it would appear on the list.
The big bonus was that having saved the list, I could share it with my partner and we could both change and update it live. The last bit to master is to have the phone on and be able to read the thing whilst going round the shops...
Judging by looking around, most people seem to have no trouble reading their phone and shopping at the same time 😶
As a diversion to struggling, here's an piece on how to write longer articles just by talking to a computer from someone who has arthritis. Written in 2017, I bet I could do a lot of this now using a mobile phone.
1. Instagram Live
Versus Arthritis had their first interactive live interview using Instagram with Max Poplawski.
Max joined us to answer questions about life with ankylosing spondylitis. He opened up about how he copes with his condition, his passion for sport and offered tips for other young people who may be newly diagnosed.
Its well worth a watch: skip to 7:00 minutes into the video as there are a couple of technical issues (as usual with a first go at something technical). You can watch/listen back to the recording. If you have Instagram, you can also log in to read/comment via the link.
2. Everyday tips for living with arthritis
Everyone’s arthritis is different, and symptoms can vary from day to day. There are many ways to maintain a good quality of life when living with arthritis. Here’s our top tips and hacks to help make daily tasks a little easier, from an article published a couple of weeks ago:
We also have our own Community list of Ideas to make life easier, held in archive and something that we hope to turn into a useful resource for our members.
3. The Flip Side
Being a partner of someone living with arthritis is not a subject that often comes up frequently with the Online Community. @deoknight has helped out by starting a conversation by relating his story and to "reach out to you all as a form of catharsis but also to say to other spouses of sufferers you are not alone."
Do join in the discussion and encourage your partner to add their comments - it's an important subject.
Readers may also like to visit a previous article on the web site : How can I support my partner with their arthritis?
4. Featured Story: Going Back to University
"My first year at university felt like the worst time to be living with arthritis"
Kalifa was diagnosed with rheumatoid arthritis at 17. Now 20, she is a graduate and advocate for equality, diversity and inclusion. She shares her experiences of living with arthritis as a young person.
5. Where to even begin
I really love the support, empathy and help we can all give each other in the Online Community. When you get off the phone from a consultation and get that feeling of disbelief... "I hung up and wondered what the hell just happened" is all too frequent and a nasty surprise for a new diagnosis. Indeed, Where to even begin.
Every new person who is helped by the support and empathy of your replies is another person with arthritis who is no longer alone. Thanks to all of you.
Stay safe, stay well.