First post. Truth be told, I am just looking for someone who can relate to me and my difficulties and can make me feel a bit less isolated.
I've had Rheumatoid for 23 years (now 53). Now also osteoarthritis and osteoporosis. Both knees replaced and right hip completely gone. My hip replacement surgery was due on 19 March last year but was cancelled with 17 hrs notice due to covid and the first lockdown.
I've been on two crutches permanently since October 2019, am essentially housebound as I can't walk any distance even on crutches and can't bear my weight through my hands. My Rheumatoid is always flared up, have huge lumps on my wrists from the crutches and rheumatoid. My right leg has returned to the valgus I had before my knees were replaced and is currently over an inch longer than my left leg. My ankles and back are agony too. An x ray last week revealed my hip was worse than they expected.
I can't have any steroids in case they schedule my op so am on my biologics, anti inflammatories and pain killers. Having stomach problems because of the meds.
Just totally exhausted from pain and lack of sleep. Mental health in fast decline. No sign of a date for the op being rescheduled. I am just grateful for a loving family who care for me. I am shielding, but continuing to work remotely from home.
I really do just want this to be me, but I know there will be lots of other people out there like me, or worse. I'd love to hear how you are managing to cope and what your health authority are doing to communicate with you and support you.
How are you all doing?