Looking to connect with other cauda equine sufferers

Mammatonks Member Posts: 4
edited 28. Nov 2023, 14:06 in Living with arthritis

Two years ago I had an operation for cauda equina. It wasn’t picked up on for 6 months so unfortunately by the time it was diagnosed the damage was permanent. I’m looking to talk to people particularly women who have similar issues to mine, for example self-catheterising, gained weight, lack of feeling in important areas etc. I’m looking for inspirational stories but also looking to support other people too. I do have other issues. Recently had my knee injected, I have a hip that keeps popping out and a huge hernia which is really stopping me from going swimming which I think could help me to lose weight and exercise and make me feel good about myself (catch 22) so if anyone would like to get in touch I would really like to hear from you