Hi! New here! Still's brought me here
Hi! I'm Argentinian. I have been recently diagnosed with Still's disease. I've also been advised to get in touch with other people with this rare disease. So here I am, ready to give it a try. 🙂
Rendirse Nunca
Comments
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Welcome @MZARG to the online community,
You have recently been diagnosed with Still's disease and are hoping to meet other people with this rare disease. I know that there are some members who have this condition and I hope that they will feel able to share their experience with you. Meanwhile I am sending a link which I hope you will find helpful.
https://www.versusarthritis.org/about-arthritis/conditions/adult-onset-still-s-disease/
The members of the community give to and receive a lot of support from each other and I hope when you join in and look round the discussions you will feel able to share a little more of your own experience of your life with arthritis. So do stay in touch and we look forward to hearing from you soon.
Take care
Poppyjane
If it would be helpful to talk to someone ring the Helpline 0800 5200 520
Monday - Friday 9.00a.m. - 6.00p.m.
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Hi @MZARG
remembered this 'old' thread stills is so rare I hadn't found it and managed to locate it for you hope it helps.
and this person @EOSDhusband is the husband of someone with AOSD:
Hopefully some of these people are still around and might reply to you.
Take care
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Hi! I'm a 21 year old and was diagnosed with AOSD in March last year. It is very rare so I've not found many others like me!
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Hi @ellie19000885 firstly let me welcome you to the forum I hope you find the information and support you are after from our wonderful community.
I can see from your post that you have quite recently been diagnoses with Adult Onset Still's Disease. I hope you are able to find others with similar experiences.
The site is full of information and conversations like the one you have commented too. I wanted to signpost you to a couple of links, firstly general information on AOSD and then a positive story of overcoming AOSD.
Please feel free to search the forum for others with similar experiences and I am sure that some of our community will be able to help offer some useful suggestions.
Take care and I hope you feel better soon.
Thanks
Joe
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