Peripheral neuropathy
Hi everyone.
I have arthritis in my spine ,pelvis ,hip and in hands and feet but the last two not so painful .
I was recently (2018) diagnosed with peripheral neuropathy ( burning sensation from knees down) .
Does anyone else have this condition?
I’ve been on medication since to try and allow me to sleep at night but have not been offered any other solution or cure.
scans have not shown any nerve compression but I am not convinced as this came on suddenly after travelling on a long haul flight in a very uncomfortable position .And has not disappeared since.
Any ideas welcome.
Comments
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Hi @Blodyn firstly let me welcome you to the forum I hope you find the information and support you are after from our wonderful community.
I can see from your post that you have peripheral neuropathy and you are looking for others with similar experiences, suggestions and treatment options. So far you are only on sleep medication.
The site is full of information and conversations, unfortunately I have not found any information we have on the condition but have included the NHS link to the condition as a starter.
I have also found another conversation in the forum on this subject which may help you get some contacts with similar experiences.
Please feel free to search the forum for others with similar experiences and I am sure that some of our community will be able to help offer some useful suggestions.
Take care and I hope you feel better soon.
Thanks
Joe
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Thank you for your quick response.
I visited the nhs choices back when I had first diagnosis and there wasn’t a lot about it really .No mention of surgery by my surgery GP s I had physiotherapy and tablets .Gabapentin which I came off as didn’t like the side effects and now on Amytriptiline for the second time in 4 years .Consultation with specialist who could not offer me anything else ( try whatever to get through the day)!!!
At least now I can sleep and can face the day .I’m retired so I can use all sorts of distractions ….I would be lost without my phone and iPad .
I know there are so many people with worse conditions and circumstances so I feel very thankful .But would love to know any recent research someone may have read.
I do not have diabetes.Many with PN do have it.
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Hello @Blodyn,
Welcome to the site the lovely people here have a wealth of knowledge I myself have osteoarthritis of the spine I also have oseophytes which i have been told press on nerves sometimes I’m unable to lift my arms and get the tingling, it was explained as that the spine shrinks it pushes on these nerves which is why I get the tingling and loss of strength I’ve also lost height and am considerably shorter and my head seems to look down a lot it makes sense in a lot of ways but medically I’m not sure it’s claimed, the body is a mystery some people have little pain some have much with complications but explanations are seldom I’ve found in the medical world I sometimes wonder if they look at the second page like fibromyalgia is noted on the first page so easy to dismiss a lot
Sorry if I’ve gone on a bit but like you I’m still trying to find out whats wrong the only thing I’ve accepted is that as the oseophytes are pushing on nerves then it’s about right I’ll get tingling
stay strong and keep your chin up
Jona 😊
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