Hi help me lost

Kezawinkle

I'm recently diagnosed with RA after saying to docs and surgeons for the last 3 yrs I don't feel right, I wasn't healing from a recent surgery either. Instead of being listened to I was told I'm being dramatic, or I'm not as young as I used to be, so that must be the reason. I've also been in a bad flare for about 8 months where its left me bed ridden. I'm already an above knee amputee so have the odd obstacles but it's nothing I can't deal with. The flare up however meant my daughter had to stay with her dad for a few months as I was unable to take care of her. I've needed help to shower, wash and brush my hair and teeth as my hands were effected the most. The fatigue though is on another level completely. I can sleep 20 hrs a day and still wake up exhausted. I just don't understand what is happening to me. Every morning I wake up it takes over an hour to even get out of bed because my whole body feels broken, like I've been beaten with a baseball bat in the night. I'm basically on this page looking for helpful tips and tricks to lead a normal life again. Sorry about the essay this is the 1st time I've been able to speak freely and feel like someone understands

chrisb

Hi @Kezawinkle  

Welcome to the versus arthritis forum.

You’re recently diagnosed with RA and find yourself bed ridden following a flare up. You are feeling very fatigued and exhausted. You’d like to hear from any forum members who can offer you advice as to how to manage your condition.

Please don’t worry about feeling you’ve written an ‘essay’ it’s absolutely fine. The more detail you provide the easier it is for forum members to offer their advice. You’ve definitely come to the right place to ask for input and I’m sure you’ll receive some useful feedback.

In the interim, this link to our website might provide some useful information:

https://www.versusarthritis.org/about-arthritis/conditions/rheumatoid-arthritis/

Also, here’s a recent discussion that you may wish to join in with:

https://community.versusarthritis.org/discussion/59268/newly-diagnosed-with-ra

I hope you receive some useful and are able to ease your symptoms.

Best Wishes

ChrisB (Moderator)

Baloo

Tell us about it @Kezawinkle probably the first thing you need is the right treatment as this can work wonders, and the sooner the better. Having a flare for 8 months without treatment. My goodness.

Ellen

Good morning @Kezawinkle

I wonder whether you have seen this?

https://www.versusarthritis.org/news/2022/april/5-ways-to-help-with-fatigue/

There might be something in there you haven't tried.

Best wishes

Ellen.