Questions for those of you on Hydroxychloroquine
Day two of taking Hydroxychloroquine for Seronegative Inflammatory Arthritis and I have a few questions for those of you that take it regularly.
1 - How do you deal with the horrible taste? I've tried having water ready & drinking straight away - the tablet was only in my mouth for a few seconds, but I managed to have a horrible taste in my mouth until I went to bed over 14 hours later (eating and drinking did nothing to take the taste away). Have the same issue today, where I tried starting with water in my mouth, dropping the pill in and swallowing straight away.
2 - Symptoms so far have been feeling light-headed, a bit dizzy, and nauseous (I could almost describe it as feeling drunk or very badly hungover). I had to take yesterday off work, as I could not concentrate properly. Do these symptoms get better over time? / I know there is a risk of side effects that can start after a while on these (I've had that with other meds, OK to start with, horrendous side effects over time). I have an optician appointment booked for Friday for a baseline assessment of my eyes
3 - The best time of day to take Hydroxychloroquine. I was told to take it in the morning with food, I asked the hospital pharmacy if I could take it in the evening before bed (or closer to bedtime with dinner, as I don't eat right before bed) and I was told no, best to take in the morning. My thought process is if I take it at around 6 pm with dinner, most of the symptoms will be whilst I'm in bed (I won't say asleep, as I've been going through a period of insomnia). I'm really busy at work and could do without the time off (I also don't have many sick days in a year, so I'd rather keep those for when I'm really bad, such as during my last two flares where any movement was agony).
Any suggestions, hints or tips would be most appreciated. I'm going to ring the Rheumatology nurse's helpline when they open later to see if I can switch to taking it in the evening.
Currently, the plan is to see if just Hydroxychloroquine eases my symptoms (I have a history of adverse reactions to medication, so the Rheumatologist thought it would be best to start with the less potent option).
- All Categories
- 2.3K Welcome
- 17 How to use your online community
- 30 Help, Guidelines and Get in Touch
- 40.4K Our Community
- 674 Chat to our Helpline Team
- 8.7K Living with arthritis
- 2 Want to Get Involved?
- 53 Hints and Tips
- 222 Work and financial support
- 390 Young people's community
- 7 Parents of Children with Arthritis
- 40 My Triumphs
- 132 Let's Move
- 24 Sports and Hobbies
- 13 Food and Diet
- 257 Coronavirus (COVID-19)
- 16 Community Feedback and ideas
- 333 Chat and News
- 29 Val's Cafe
- 269 Chit chat
- 11 News
- 4 Tails From The Cafe