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Should I take hydroxychloroquine for palindromic arthritis?
Hi all, I was recently diagnosed with Palindromic arthritis afte 2 years of symptoms. I currently have a really bad flare up in my right hand. I was prescribed hydroxychloroquine but only "if it gets worse". I am not sure what that means - a single flare? or over several years? I was only given 1 month's supply. My GP…
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Zero carbohydrates - does this help?
Could anyone please tell me if they have experienced a reduction in pain levels for osteoarthritis when following the 'carnivore' diet….zero carbohydrates? I'm overweight which I know doesn't help, but I'm in so much pain daily now, predominantly hips, knees, legs in general, shoulder and hand. I know losing weight would…
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Hello Everyone, newbie here
Hello Everyone I've recently been diagnosed with psoriatic arthritis. After two long years of tests and scans, my rheumatologist put me on a course of steroids for 3 weeks and I had 3 weeks of bliss! Between that and my history, he decided that I had PsA. I've just had more blood work and am having a fibro scan next week…
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Hi, struggling. Need some advice - medication!!
Hello I’m new to this group. I am a female, 40 this year with two children 8 & 10. I had lots of problems and terrible pain in my early 20s, and it took a while before I was diagnosed with AS. I was told about biologic drugs at this point, but because I was trying for a family I was told to come back after! Luckily I went…
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RINVOQ
Hi is anyone taking Rinvoq 15mg I'm just about to start and was wondering about side affect
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Pain management for OA in neck?
I recently found out I have OA in my cervical spine which was picked up on an MRI I had for unrelated reasons four years previously (however this was not shared with me by medical professionals until recently when my physio went through the MRI report with me) I am 31 years old, I had a car accident at 14 which I think…
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Arthritis and Thrombocytopenia
Hi, I am fairly new here; I was diagnosed with arthritis back in late October and had been taking hydroxychloroquine, but this week, I had blood tests run to check on a different condition, and my platelets have dropped really low, so I have been taken off it. Has anyone else experienced this as i can't find much…
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Help and advice with diagnosis and medication
Hi, I'm new here and wondered if I could ask for some advice and support. I am 34 years old and was diagnosed with Psoriatic arthritis and Ankylosing Spondylitis around 5 months ago and started on the biologic drug Cimzia 5 weeks ago. Although I have been advised to give it up to 6 months to really have an effect, I…
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Newbie saying ello 👋🏻
Ello everyone. Newbie to this here community but hoping to be able to learn a bit more and speak with folks who understand what it's like living with OA. I was diagnosed just over 3 years ago and I'm really struggling with it all now as it appears to consume my whole body. Looking forward to getting to know yous. Rosie 😊
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Post op rheumatoid flare relief
Help me please! I am 12 days post op of a c1/c2 neck fusion. The neck is healing fine and causing me no problems. But my arthritis flares are reducing me to tears. I've been told to stay off all my drugs, including anti imflamatories and steroids. He said if absolutely necessary I can have one antiimflammatory, but it's…
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Uniqueness, ubiquity and resilience
Does anyone else feel like if anyone else were in as much pain as them there's absolutely no way, now way in hell they'd be able to deal with it? I find myself slowing to a limp or a halt so often and the fact that it's this pain in my leg that is causing this to happen makes me think that there's no way anyone else…
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Anyone got a flare up due to Prednisole/started as new med..?
Mid-October 24, I was prescribed Prednisolone (1st time ever) while 'in waiting' 3 weeks - a transfer from oral to injection Methotrexate. (Methotrexate does not seem to be working for me/anyhow/but that's another story). I am in pain everyday… ps: presently diagnosed seronegative. I am left very curious, as 2 days after…
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Bad knee flare up advice and new medication
Hi Im 26 years old I have rheumatoid arthritis and I’m really struggling at the moment and I need advice, I started a new medication called leflunomide 5 weeks ago I’ve felt sick every day since I’ve taken it and I’m having a terrible time with my knee, I can’t walk on it, I’ve done all the things the hospital have told me…
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Biologics
Hello! I got diagnosed with RA in March 2024 after my symptoms started in December 2023. The last 6 months have been a whirlwind of medication and lifestyle changes which I am slowly adjusting too. I have been on triple therapy now for around 8 weeks with no difference- I feel like I’m in a constant flare up! the good news…
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Tramadol
Anybody taken tramadol for pain. I have just been prescribed some for OA in my left knee Susy123
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Rinvoq - just received 1st delivery
Hi, I ve received my 1st delivery of Rinvoq ( upadacitinib) & I’m really nervous about starting it. Each time I’ve been given info the side effects seem worse, very worrying and very common. I’ve been very lucky so far with the variety of medications that I’ve been on and only really the last one which was a problem with…
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Risks of taking NSAI regularly
I have just had an opa about the OA in my hips, the Xrays show moderate to severe degeneration in both hips and are very painful, as are my hands and back. I take paracetamol and ibuprofen which controls the pain most of the time. However, he said that I should not be taking NSAI regularly because of the heart, stomach,…
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Methotrexate Flares
Hi everyone, At the beginning of July I started on Methotrexate. The side effects were not fun but at first I felt like it was helping. But in the last three weeks I've had three flares (I say flares, I'm in pain all the time so hardly in remission, but I mean it suddenly got worse for a few days). The first two were heat…
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Keeping injections in a fridge
Hi. For a few years now I've had biologic injections that I've had to keep refrigerated (2-8 degrees C) I recently got a temperature sensor that connects to my phone and I've found out the area in my fridge where my medication is stored occasionally goes a degree or so over/under the 2-8 degrees for a brief time (usually 5…
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Pain relief
Good afternoon everyone I hope you are well. I am apart from this unbearable pain in my right knee. I was diagnosed with mild arthritis in my right knee about 10 months ago. I've took all sorts of pain relief, sprays and creams to help ease or relieve the pain. I also got arthritis in my left knee at the beginning of this…
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PsA just started Amgevita
hello I’m new on here. Had PsA for many years (34). I’m 52 now. Just started biologics. Did anyone else feel dizzy & tired day after injecting? I’m just wondering how long I’ll feel like this, if it’s a settling in period. cheers Lou
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Anti-TNF
Hi all I'm about to start anti tnf injection (Hyrimoz) is or anyone using these and what are the side affect if any
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How long does Hydroxychloroquine take to work
Hi Everyone! At the beginning of February I was put on Hydroxychloroquine for inflammatory arthritis. I'd be really interested to know how long it took other people for the drug to kick in and make a difference! Thanks in advance! Maddie
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Child Proof "Pill Bottle Lids"
Did you know you can remove those? (Careful around children though, do it at your own risk) Not sure if these are the same in the UK but in Canada you can do this. I made a video of it
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Hi! New to the forum a little about me
My story begins as a little boy learning to play tennis with his older brother and being taught by our father. My dad was a really good tennis player and did very well on the court throughout his years of playing. My arthritis journey start out in BC with some itchy patches of skin behind my knees and and in front of my…
