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Anyone got a flare up due to Prednisole/started as new med..?
Mid-October 24, I was prescribed Prednisolone (1st time ever) while 'in waiting' 3 weeks - a transfer from oral to injection Methotrexate. (Methotrexate does not seem to be working for me/anyhow/but that's another story). I am in pain everyday… ps: presently diagnosed seronegative. I am left very curious, as 2 days after…
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Bad knee flare up advice and new medication
Hi Im 26 years old I have rheumatoid arthritis and I’m really struggling at the moment and I need advice, I started a new medication called leflunomide 5 weeks ago I’ve felt sick every day since I’ve taken it and I’m having a terrible time with my knee, I can’t walk on it, I’ve done all the things the hospital have told me…
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Biologics
Hello! I got diagnosed with RA in March 2024 after my symptoms started in December 2023. The last 6 months have been a whirlwind of medication and lifestyle changes which I am slowly adjusting too. I have been on triple therapy now for around 8 weeks with no difference- I feel like I’m in a constant flare up! the good news…
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Newbie saying ello 👋🏻
Ello everyone. Newbie to this here community but hoping to be able to learn a bit more and speak with folks who understand what it's like living with OA. I was diagnosed just over 3 years ago and I'm really struggling with it all now as it appears to consume my whole body. Looking forward to getting to know yous. Rosie 😊
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Tramadol
Anybody taken tramadol for pain. I have just been prescribed some for OA in my left knee Susy123
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Rinvoq - just received 1st delivery
Hi, I ve received my 1st delivery of Rinvoq ( upadacitinib) & I’m really nervous about starting it. Each time I’ve been given info the side effects seem worse, very worrying and very common. I’ve been very lucky so far with the variety of medications that I’ve been on and only really the last one which was a problem with…
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Risks of taking NSAI regularly
I have just had an opa about the OA in my hips, the Xrays show moderate to severe degeneration in both hips and are very painful, as are my hands and back. I take paracetamol and ibuprofen which controls the pain most of the time. However, he said that I should not be taking NSAI regularly because of the heart, stomach,…
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Methotrexate Flares
Hi everyone, At the beginning of July I started on Methotrexate. The side effects were not fun but at first I felt like it was helping. But in the last three weeks I've had three flares (I say flares, I'm in pain all the time so hardly in remission, but I mean it suddenly got worse for a few days). The first two were heat…
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Keeping injections in a fridge
Hi. For a few years now I've had biologic injections that I've had to keep refrigerated (2-8 degrees C) I recently got a temperature sensor that connects to my phone and I've found out the area in my fridge where my medication is stored occasionally goes a degree or so over/under the 2-8 degrees for a brief time (usually 5…
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Pain relief
Good afternoon everyone I hope you are well. I am apart from this unbearable pain in my right knee. I was diagnosed with mild arthritis in my right knee about 10 months ago. I've took all sorts of pain relief, sprays and creams to help ease or relieve the pain. I also got arthritis in my left knee at the beginning of this…
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PsA just started Amgevita
hello I’m new on here. Had PsA for many years (34). I’m 52 now. Just started biologics. Did anyone else feel dizzy & tired day after injecting? I’m just wondering how long I’ll feel like this, if it’s a settling in period. cheers Lou
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Anti-TNF
Hi all I'm about to start anti tnf injection (Hyrimoz) is or anyone using these and what are the side affect if any
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How long does Hydroxychloroquine take to work
Hi Everyone! At the beginning of February I was put on Hydroxychloroquine for inflammatory arthritis. I'd be really interested to know how long it took other people for the drug to kick in and make a difference! Thanks in advance! Maddie
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Child Proof "Pill Bottle Lids"
Did you know you can remove those? (Careful around children though, do it at your own risk) Not sure if these are the same in the UK but in Canada you can do this. I made a video of it
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Hi! New to the forum a little about me
My story begins as a little boy learning to play tennis with his older brother and being taught by our father. My dad was a really good tennis player and did very well on the court throughout his years of playing. My arthritis journey start out in BC with some itchy patches of skin behind my knees and and in front of my…
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Patient education session (biologics)
Hello everyone, this in my first post here. I have a patient education session tomorrow because I'm due to start on adalimumab for PsA. I've got a list of questions, but are there any obvious ones I may be missing?
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Osteoarthritis and Apixaban
I have osteoarthritis in both knees. It is quite bad. Since coming to England in 2020, some of my medication changed and I now believe that this change may be affecting/contributing to my general body pain. I have a blood clotting disorder and was on warfarin in South Africa for around 6 years. Once in the UK, I was put…
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Methotrexate
Hi everyone recently started methotrexate 10mg injections weekly I haven’t felt much relief at all yet but trying to be patient! Could anyone tell me how long it took for them to kick in? Thank you!
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Questions for those of you on Hydroxychloroquine
Hi All, Day two of taking Hydroxychloroquine for Seronegative Inflammatory Arthritis and I have a few questions for those of you that take it regularly. 1 - How do you deal with the horrible taste? I've tried having water ready & drinking straight away - the tablet was only in my mouth for a few seconds, but I managed to…
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Newbie here, Leflunomide please help!
Hi all, I’m 33 and was diagnosed with PsA at 16 and it has mainly always been under control apart from for the last 6 months or so where I’ve really struggled with pain and mostly fatigue causing me to have to reduce my hours at work which is not good due to lack of income! Anyway, I have been on 15mg methotrexate for a…
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Should I take hydroxychloroquine for palindromic arthritis?
Hi all, I was recently diagnosed with Palindromic arthritis afte 2 years of symptoms. I currently have a really bad flare up in my right hand. I was prescribed hydroxychloroquine but only "if it gets worse". I am not sure what that means - a single flare? or over several years? I was only given 1 month's supply. My GP…
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6 weeks into methotrexate... when do things get better?
Hi everyone, I'm on my sixth week of taking methotrexate for psoriatic arthritis (newly diagnosed) and I'm yet to see any improvement in levels of pain/stiffness and my inflammation levels in the blood tests are still high.😩 How long did it take for anyone else to see any improvement? Did you take painkillers whilst you…
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Sulfasalazine and Overheating
Has anyone else experienced getting very hot on sulfasalazine? I'm so warm all the time and wondered if this is something anyone else has experienced? I've only been on it a day or two but this has been my biggest side effect.
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I'm new here, Leflunomide - what's the deal? Your experience would be appreciated...
Hi, I'm new here - I've been living with Seronegative / Psoriatic Arthritis for about 8 years now - it was being quite well managed with Methotrexate and NSAIDS but after some recent trauma and a progression of my disease - Methotrexate doesn't work so I'm taking Leflunomide - I know it's Cytotoxic but some of the side…
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Does taking HRT have any impact on osteoarthritis?
Hi, I have severe bone on bone osteoarthritis in my hip. I'm new hear this is my first post. I'm currently post menopause for 12 months now and I read that the drop in estrogen and collagen has an affect on arthritis so I was wondering if anyone had started taking HRT whilst suffering arthritis and if it had any effect on…
