Sjögren’s syndrome

Franbie
Franbie Member Posts: 5
edited 28. Nov 2023, 14:10 in Living with arthritis


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  • Franbie
    Franbie Member Posts: 5


    My story so far.

    Hi I had an appointment with a rheumatologist yesterday and with my dr referral letter, ultrasound scan report it looks very likely that I have sjogrens. I’ve had on and off problems with my glands & ended up in a&e in 2001 where they had to take my submandibular gland out. My latest scan shows growths on my parotid gland which is swollen and very painful. I’ve suffered with dry eyes & mouth for many years. Pains in hands & feet I also have very sore gums & mouth ulcers. My eyes are also getting worse with my vision blurring. Last but not least I have started to suffer with IBS. I suppose what I’d like to know now is what happens next.

  • Franbie
    Franbie Member Posts: 5


  • CarylW
    CarylW Member Posts: 274

    Hello @Franbie

    It can be very difficult to receive a diagnosis without the chance to make a list of the questions you might want to ask the consultant. I am sure that people on this forum may be able to help you with support and give you an idea of what comes next.

    I am going to give you some links to information on our website which I hope may help in the meantime. Please do ask us any questions and let us know how you are getting on.

    https://www.versusarthritis.org/research/our-current-research/our-current-research-projects/sjoegren-s-syndrome-development-of-sjoegrens-syndrome/


    https://www.versusarthritis.org/about-arthritis/conditions/sjoegrens-syndrome/

    We look forward to hearing from you. Take care.

    Best wishes

    Caryl

    Need more help? Call our Helpline on 0800 5200 520 Monday to Friday 9am to 6pm

  • Franbie
    Franbie Member Posts: 5

    Thank you for your reply. It’s much appreciated.

    Franbie

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