Sjögren’s syndrome

Franbie

Franbie

My story so far.

Hi I had an appointment with a rheumatologist yesterday and with my dr referral letter, ultrasound scan report it looks very likely that I have sjogrens. I’ve had on and off problems with my glands & ended up in a&e in 2001 where they had to take my submandibular gland out. My latest scan shows growths on my parotid gland which is swollen and very painful. I’ve suffered with dry eyes & mouth for many years. Pains in hands & feet I also have very sore gums & mouth ulcers. My eyes are also getting worse with my vision blurring. Last but not least I have started to suffer with IBS. I suppose what I’d like to know now is what happens next.

Franbie

CarylW

Hello @Franbie

It can be very difficult to receive a diagnosis without the chance to make a list of the questions you might want to ask the consultant. I am sure that people on this forum may be able to help you with support and give you an idea of what comes next.

I am going to give you some links to information on our website which I hope may help in the meantime. Please do ask us any questions and let us know how you are getting on.

https://www.versusarthritis.org/research/our-current-research/our-current-research-projects/sjoegren-s-syndrome-development-of-sjoegrens-syndrome/

https://www.versusarthritis.org/about-arthritis/conditions/sjoegrens-syndrome/

We look forward to hearing from you. Take care.

Best wishes

Caryl

Franbie

Thank you for your reply. It’s much appreciated.

Franbie