Newly diagnosed and feeling a bit helpless

Hi everyone just saying hello

I amm looking forward to chatting with you all.


  • CarylW
    CarylW Moderator Posts: 116

    Hello @Phoebe1

    I am glad you have found our online community. We are a friendly group of people and we hope to offer you help and support: being newly diagnosed can be quite frightening and I'm not surprised you feel helpless!

    I am posting some information from our website which I hope will be a start for you. If you can give us a bit more information I am sure we can target our help better for you.

    Do keep in touch and let us know how you are getting on.

    Best wishes


  • Phoebe1
    Phoebe1 Member Posts: 3

    Thankyou , I was told my diagnosis and then told to take a load of tablets. Which havnt worked that much I asked would it be ok for me to go for walks my GP said she can't answer that as everyone is different. We have a touring caravan and really love going away in it. I don't have to give everything up surely. A bit of an essay sorry.

  • Moira
    Moira Member Posts: 59

    Hello and welcome.

    I'm convinced that I rattle when I move with tablets!

    It depends on the tablets. Some are designed to work quickly and some build up so it can take a wee bit to feel the benefit. Over the years I have, with help from a good GP and rheumatology dept., been able to sort out a regime that I can live with. I think tablets react in different ways with different people. It may take a wee while to find out which mixture suits you best - it did with me.

    Sadly there are no quick fixes for us. I think you should go for walks. The secret is to keep moving but not overdo it. The exercise videos here on VA are brilliant and I use the ones that suit me with exercises that my physio gave me.

    I would say if you are happy touring in your caravan do it.

    Good luck.

  • Phoebe1
    Phoebe1 Member Posts: 3

    Thankyou Moira, your message has helped alot .