Recently diagnosed with GCA

MaryLiz
MaryLiz Member Posts: 2
edited 6. Jan 2025, 09:48 in Living with arthritis

Hello,

I am hoping for an inspirational story from someone suffering with GCA. Fortunately, it was caught before visual loss as my GP spotted the signs so I know I've been very lucky. I have been on steroids one week and started other meds.

However, although some of the aches and pains have gone, I'm feeling so fatigued - much worse that I did when I first went to the doctor . I am usually so active and this has come as a shock.

I do understand that there'll be good days and bad days, but anything positive would be so appreciated. Thanks in advance.

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Comments

  • stickywicket
    stickywicket Member Posts: 27,764

    Hello and welcome, @MaryLiz . I've no experience of GCÀ and we ďon't get many on here who have it but, if you put 'giant cell arteritis' into the search engine above, several former threads come up. Good luck. .

    If at first you don't succeed, then skydiving definitely isn't for you.
    Steven Wright
  • MaryLiz
    MaryLiz Member Posts: 2

    Thank you @stickywicket.

  • Hi Maryliz, I have just read your message, and am in exactly the spot as you were in April… How are you now? One of my concerns is diet! Have you found anything that helps or hinders symptoms? On a large dose of steroids etc. do you have Polymyalgia too, the two as they seem to go hand in glove