Being Passed from Pillar to Post, thought I'd stop in.

Ryn
Ryn Member Posts: 1
in Living with arthritis

Hey every one, I hope you are all doing as well as you can be and if you are having a struggle day that you at least have a cuppa!

My name is Ryn, I'm here looking for help/advice/answers/community
I'm currently being passed from one team to another with neither team talking to one another so feeling very helpless. I'm confirmed for secondary fibromyalgia though the teams cant decide if it's RA or OA so I'm bouncing between waiting answers. Without trying to sour your day, I'm struggling alot both physically and more so mentally. I'm hoping being here will help me with the GP Fight I seem to be having.

Take care every one, stay say 🌺

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Comments

  • claudsl
    claudsl Moderator Posts: 98

    Hi @Ryn - Welcome to our online community!

    I'm sorry to hear you are having a hard time. I really hope you won't have too much longer to wait for a diagnosis, and then you can get started on the appropriate treatment.

    Here is an article on ways to look after your mental health. I hope this can help you whilst you wait.

    How to look after your mental health when you have arthritis (versusarthritis.org)

    Take care, Claudia

    Need more help? - call our Helpline on 0800 5200 520 Monday to Friday 9am to 6pm

  • stickywicket
    stickywicket Member Posts: 27,764

    Hi @Ryn . You don't say who 'the teams' are. I'm guessing GP and rheumatology. Have you had x-rays and/or physio? À rheumatologist should have a fair idea from x-rays. RA and OA tend to show differently. And physio would help either /. both. I hope you get some satisfaction soon.

    If at first you don't succeed, then skydiving definitely isn't for you.
    Steven Wright
  • Nurina
    Nurina Member Posts: 463

    OA and AR are completely different conditions and they have very different causes and symptoms even sometimes one goes after the other. Like @stickywicket says, a rheumatologist should to know the difference just watching the xrays. Good luck

  • Baloo
    Baloo Member Posts: 528
    edited 24. Jul 2024, 20:11

    @Ryn I think my hospital diagnosis took about four days of tests plus outpatient tests afterwards as they are not all bookable at the same time. One thing impressed me was that one visit to the Rheumatologist where I happened to see their computer screen. It was jammed from top to bottom with rows and rows and columns and columns of patient history and there is this wise looking woman reading it while they are checking how you feel and boiling it down to an answer. Big respect.

    Let them wizards take as long as it takes.

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