Reactive arthritis converting to Inflammatory arthritis

yaksh91

Hi all,

Wanted to plug in into the community, and introduce myself.

I was diagnosed with Reactive arthritis last year which is turned into an inflammatory arthritis and have been trying to cope up with it.

I live in London Uk, and I am 34 years old, and I am struggling to figure out how my life will turn up with this chronic condition. I have been feeling very **** about my life with low energies and poor fitness overall which has affected my life overall.

Happy to hear from everyone their lessons learnt and advices in geberal

Arthuritis

What was the basis of the reactive arthritis diagnosis? Was it a drug?

How has it “turned into inflammatory arthritis”? Please can you give further detail.

Usually with reactive when you stop the trigger substance the problem goes away.

You can PM me if you’d like a rheumy recommendation for a newly diagnosed RA patient.

Which blood tests have you had & results?

RF, ACCP, CRP, ESR & eosinophils?

Medications?

I was on full on inflammatory RA, confirmed with blood tests & imaging and on MTX max dose for 15 months, it was horrible. I then managed to escape… felt like the Great escape, spent 2 years free, no symptoms, no RA drugs hospital did bloods and imaging scans, all amazed … but not interested any further and marked me as “standby/dormant”. Until Jan 2025, when something triggered mine and I am back in the RA club trying to escape again.

Here’s something to listen to from Zoe, where a rheumy talks about the latest progress in rheumatoid arthritis

https://podcasts.apple.com/gb/podcast/zoe-science-nutrition/id1611216298?i=1000696532853

Listen to it and do come back with your thoughts.

Poppyjane

Hi there @yaksh91 welcome to the online community

To be diagnosed at a young age with any form of arthritis is such a shock and takes a lot of rethinking and some changes in behaviour to help to readjust to the new situation. So we are glad you found us and hope that we can offer you information and support to help you on your journey.

Thanks to @Arthuritis you have had a response from one of our members who has had similar experiences and I hope there will be others who can also offer you their tips and ways of coping.

Struggling with low spirits and fatigue is a recurring concern for many of us with inflammatory arthritis and I attach some links which I hope you will find helpful

https://www.versusarthritis.org/about-arthritis/conditions/reactive-arthritis/

https://www.versusarthritis.org/about-arthritis/conditions/rheumatoid-arthritis/

https://www.versusarthritis.org/about-arthritis/managing-symptoms/managing-fatigue/

https://www.versusarthritis.org/news/2021/october/new-stretching-videos-to-help-keep-moving-and-manage-your-arthritis/

The Young Peoples Community has an active online group and in some areas some face to face meetings so you may feel able in the future to make contact .

Do let us know how you are getting on once you have had a chance to read some of the above , sorry I hope I have not overloaded you !

Take Care

Poppyjane