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Life after Methotrexate
After taking methotrexate for 5 years, with constant remission and no flare ups - I have been very fortunate - I have now been told I can take a break from MTX and see how I get on. I was down to 7.5mg for 6 months, down from 15 then 10. I would be interested to hear if anyone on this community has managed to stop taking…
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Pips report
Hi all, I had my PIPs telephone assessment on Friday (8th) bit nerve wracking but not terrible, some weird questions 😅 They confirmed they'd come back with an outcome hopefully in 8 weeks or sooner. My question is, I've read online you can request a copy of the report from the assessment before it goes to DWP for the final…
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Can anyone offer advice?
Hi everyone, I'm brand new here and out of sheer desperation, looking for some advice or guidance. I'll try to be as brief as possible but my journey has been going on for over 12 years, so I'll try to be concise. In February 2012, after a nasty 'flu infection that left me with a lung infection (MRSA), I develped a very…
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Methotrexate Flares
Hi everyone, At the beginning of July I started on Methotrexate. The side effects were not fun but at first I felt like it was helping. But in the last three weeks I've had three flares (I say flares, I'm in pain all the time so hardly in remission, but I mean it suddenly got worse for a few days). The first two were heat…
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Inflamed back/spine preventing walking
Hi all, I have Psoriatic arthritis which I have suffered with for 24 years, please could I have some advice. I am really struggling to walk more than a few steps at the moment. Every time I begin walking my back imflames in the middle of my spine and my hip hurts. Is there anything I can do or use that will help me walk…
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How long does Hydroxychloroquine take to work
Hi Everyone! At the beginning of February I was put on Hydroxychloroquine for inflammatory arthritis. I'd be really interested to know how long it took other people for the drug to kick in and make a difference! Thanks in advance! Maddie
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Feeling lost - needing a diagnosis
Hi everyone, Apologies for the long post. I'm feeling rather dejected and lost. Approximately 8 weeks ago I began experiencing pain in the knuckles of both index fingers and middle fingers. Gradually got worse with redness, swelling (weirdly worse in my left hand), increased pain, and the pain spreading to my wrists. I…
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Please tell me it gets better
I'm 29 and I've been told I either have Rheumatoid Arthritis (seronegative) or chronic inflammatory arthritis (they're still trying to work it out). I've been told the minimum I will have this is for 2-3 years, but probably longer. If it's Rheumatoid it's lifelong. At the moment my arthritis is so extreme that most days…
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Postive Amgevita stories needed
Hello everyone, I start Amegevita today. The nurse is coming this morning to do my first dose. I knew the side effect info on the Versus Arthritis and NHS sites and had made my peace, knowing that it was needed and the benefits outweighed the risks. However, I have just read the info leaflet, and it has scared the life out…
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Work forcing me in the office?
Hi, I'm 27 and I was diagnosed with inflammatory arthritis in my hands. My current company is being taken over and a lot of people have left including my original boss who allowed me to work from home to help my condition. I work in advertising so I'm at a desk a fair amount. I prefer working from home as I can get away…
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what works better than methotrexate
Have an inflammatory arthritis, been on methotrexate for 15weeks (injections), arthritis still active, because of an inflammatory bowel gastric dept asked me to stop taken Meloxicam as this can cause this. It was a disaster , immediately my symptoms returned big time, I seem to go back 3 months, , I did not expect that so…
