Biosimilars

L3sl3y

Hello folks, I’m Lesley and this is my first time on here. I was diagnosed with RA three years ago and had been through a range of treatments without much success. Earlier this year I was started on Tocilizumab and after about ten weeks it really began to work very well. Within a few weeks more I felt as if I was in remission and was so happy; I felt as if I had got my life back. Then in June came a letter from the NHS saying that all Tocilizumab patients were being put into a Biosimilar called Tyenne as it was cheaper. It is the same 162mg dose but weekly instead of fortnightly. After a few weeks I began to notice a bit more pain creeping in and now I have gone way back to where I was almost a year ago. I was just wondering if any of you have been changed to Tyenne and if you have noticed any changes. Sorry for the long post and thanks if you got to the end.😄

Lesley

noddingtonpete

Hello @L3sl3y and welcome to the Online Community. We are a friendly and supportive group and I hope that will be your experience as well.

I had a look online and it seems Tyenne is a derivative of Tocilizumab, but if it isn't working as well for you I would suggest going back to your Consultant/GP and telling them and try and get changed back.

Hopefully others will share their experiences with you as well.

Best wishes

Peter

L3sl3y

Thank you, Peter. I have put in a call request to my rheumatology nurse and will take it from there. It would be interesting to know how others are finding it though.

Lesley