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Living with RA
Hiii I’m Cal, I’ve had RA since 15, first diagnosed with JIA, and mostly seen as RA now, I’ve move many different hospitals since then been told Im faking it and overall been neglected by the NHS, I’m now 20, recently moved to Brighton had my first appointment with my new specialist yesterday which went pretty well, the…
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Newly Diagnosed Rheumatoid Arthritis 39
Hello! I Am feeling a bit overwhelmed, after nearly 2 years of undiagnosed pain, fatigued and mobility issues I was finally diagnosed with RA yesterday. I’m starting medication Friday but I’m feeling a bit overwhelmed and not sure what I should be doing. Any advice for a newbie? The last decade has really beaten me down…
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Headache
I started Amgevita a few months ago and the head pain into neck is almost unbearable does anyone else suffer with this and if so how do you get rid of the pain mostly at night? Thanks guys xx
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Rheumatoid Arthritis
Hi everyone, I am new here and wanted to introduce myself. I was diagnosed with rheumatoid arthritis after my first child in 2016. I am now 38 and suffering from carpal tunnel and flare ups. I have terrible anxiety mainly about life and how this may affect me later in life and would love a community to chat to. Please…
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First appointment with consultant
Well today is a day I’ve been waiting for and now it’s here I’m so anxious. First appointment on the NHS. It’s been a long 6 months of me fighting my corner and trying to get doctors etc to listen to me. I’ve got rheumatoid arthritis plus psoriatic too. I ended up paying to go private 2 months ago and they diagnosed both…
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Hello
I am new here. One of my sisters aged 62 is crippled with RA. She has been on a variety of drugs and nothing is working just wondering how others cope. It is all over her body Thanks in advance Sue
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Rheumatoid arthritis
Hello iam new to here and newly diagnosed to just reaching out and learning
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tocilizumab:
is anyone on this drug? Any info grater received
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How soon did you give up on methotrexate?
I have a history of gastritis and started mtx last week on the lowest dose. Also 5mg daily folic acid for 6 days. I was already on hydroychloroquine and sulphasalazine. I have constant nausea and my stomach is burning, also massive fatigue. They are going to switch me to injections but I don't feel optimistic. Has anyone…
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Home medication delivery
Hi I’m having a medication change for RA which means a change of delivery company to Sciencis. They say they will only deliver to my home address which is very difficult with my work pattern. They won’t deliver to a pharmacy. Can anyone help with a more workable delivery idea? Thanks.
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Left knee replacement
Hi can any one tell me where the shortest waiting list for knee replacement I’ve be told that My local NHS waiting times are 18 Months can you also advise me who are the best consultants ? Cyril Robert’s
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Biosimilars
Hello folks, I’m Lesley and this is my first time on here. I was diagnosed with RA three years ago and had been through a range of treatments without much success. Earlier this year I was started on Tocilizumab and after about ten weeks it really began to work very well. Within a few weeks more I felt as if I was in…
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Methotrexate & severe fatigue
Hi...just been diagnosed with Rheumatoid & started on Methotrexate on Friday..Sat it was like I was hung over with a headache & tiredness (no sickness)..sat night took folic acid..Sun was the same...Monday (yesterday ) the fatigue was so bad by tea time I didn't have the energy to chew..today (Tuesday)tried to log on to…
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Methotrexate and sun exposure
Hi all, I am 53 and have recently been diagnosed with rheumatoid arthritis, which was a massive shock and I take 25mg methotrexate weekly. Previously, I like to sunbathe and tan easily, however I am unsure how my skin will now react to the sun now I take methotrexate. My plan is to wear a high factor sun cream and hope…
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Feel like my life has ended
hi my name is Jan I’m new on here( first post) and tomorrow I will turn 60, I don’t know where to start, for the past 4/5 years iv been suffering with my shoulder joints, iv been to doctors/ sent to physio, had X-rays/ mri and had many blood test this has been ongoing for the last 2 years at least, iv spent my days just…
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Rheumatoid arthritis
Diagnos with RH arthritis two month ago doc says in two 50 to 56% of getting that disease it came and go wipe like never been on mainly affect my left ankle today got pain in tmj bone in skull wanna get rid of it if somebody did give me some advice am in early stage I'll fight with it just need some way how to. Am 27 year…
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Pain relief
Hi new to this Had knee problems for years and I’m told they will both need replacing , but will not consider till I reach 60 , I’m an expert in hobbling around including work , always careful about walking around as if I slip over years both have dislocated , just lately the pain at times is 8 out of ten My job involves…
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newly diagnosed and feeling lost and lonely
Hi all,😔 I have been diagnosed with Rheumatoid Arthritis last week only and feeling so overwhelmed with all the information and the effects it would have on me for my future life. I am feeling very depressed to have lost my freedom i had with my earlier arthritis free body. Just saying hello and trying to discover new ways…
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Struggling with Social worker employment and being immunocompromised
Hi all I am seeking advise as I am in a difficult position with my job. I am a social worker for 16-18 year olds in care and love my job. However my health isn’t so keen, I have had a lot of absences due to illness and being so susceptible to picking up infections, and this is impacting my mental wellbeing, confidence and…
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Possible Bakers cyst
hi . I’m under a rheumatologist ( watch and wait ) but have developed what I think is a bakers cyst . I have swelling at the back of both knees but worse on the left with tenderness. Should I let the team know ? Is this significant to my diagnosis?
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Psoriatic arthritis, rheumatoid arthritis, osteoarthritis
Hi I have psoriatic, rheumatoid and have now been diagnosed with osteoarthritis in my left foot after being in pain for about 6 months. I struggle to walk every day and working full time is horrendous along with the fatigue and pain I'm finding work a struggle. I applied for pip for in early 2023 but was turned down it has…
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Benifits
Been off work 7 months with inflammatory Rheumatoid Arthritis contractual sick pay now ran out never been out of work after 47 years need help on what I can claim ,I’m still employed just appreciate some help if anyone going though the same
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Hello and please can you help?
Hi everyone I hope everyone is doing ok living with their conditions? You're all superstars! I was diagnosed with RA in 2009 and have always worked full time every when my kids were very young. At the start of this year I had a flare which was so bad I was signed off work for 8 weeks. Since I've been back my employer, who…
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Shingles and Methotrexate
Hi Everyone, I've been on Methotrexate for just under a year (8 tablets once a week), plus daily steroids and have just been told I have shingles, which is very painful and unpleasant. They've given me antibiotics for this as it is super painful and I'm feeling very rough. Has anyone got any advice or experienced this…
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Looking to chat with adults who have had RA since childhood.
Hi, I was diagnosed with JIA when I was 2 years old. I am now 42 and have just had my fourth joint replaced. Due to long term steroid use, I have had many complications and struggle to heal now. I dont feel like my doctors are particularly supportive, and definitely do not take in to account that I have grown up with this…
