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Shingles and Methotrexate
Hi Everyone, I've been on Methotrexate for just under a year (8 tablets once a week), plus daily steroids and have just been told I have shingles, which is very painful and unpleasant. They've given me antibiotics for this as it is super painful and I'm feeling very rough. Has anyone got any advice or experienced this…
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Looking to chat with adults who have had RA since childhood.
Hi, I was diagnosed with JIA when I was 2 years old. I am now 42 and have just had my fourth joint replaced. Due to long term steroid use, I have had many complications and struggle to heal now. I dont feel like my doctors are particularly supportive, and definitely do not take in to account that I have grown up with this…
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Writing tools and keyboards
Hi there, I have been living with arthritis in my hands for 5 years now. I was quite well controlled until a few months ago. I have ongoing review in terms of meds and treatment. But I am wondering which pens and keyboards people find easiest to use with rheumatoid arthritis? Struggling to find the best ones to help me…
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newly diagnosed and feeling lost and lonely
Hi all,😔 I have been diagnosed with Rheumatoid Arthritis last week only and feeling so overwhelmed with all the information and the effects it would have on me for my future life. I am feeling very depressed to have lost my freedom i had with my earlier arthritis free body. Just saying hello and trying to discover new ways…
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Just tested positive for all blood tests for rhuemotoid
hi iv just been tested for rhuemotoid arthritis and had CPP plus others all came back positive they put me on predesolone until I see rhuemotology in three weeks I also had very low folic acid and D and calcium which doc has given me tablets Can you tell me is it normal to feel really tired and sometimes dizzy
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New to RA
RA
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Newly diagnosed with RA
I’ve just been diagnosed with RA and a month into the medication regime. I was previously very fit and active so this was a big bow - although I’ve managed to keep up my strength training with Reformer Pilates, I’m missing my aerobics classes. my feet are an issue. I wonder what other forms of cardiac exercise other people…
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Not using pharmaceutical medicine
Greetings, I was diagnosed with R.A back in Dec 2024. IAM 58 and very active but the pain has been unbearable especially in my neck. I am not a conspiracy theorist but do not use pharmaceutical medicine. I have refused the steroids, and other drugs and have been taken homeopathic remedies which are making a vast…
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Weather affecting Rheumatoid Arthritis
Hi all, I've have RA for about 15 years so know my triggers pretty well. This time of year though I always get bad flares and it seems to be either when it's stormy, windy, humid. Does anyone else find this? And if so any advice on how to help?
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Pain relief
Hi there what do people do for pain relief? I'm in agony I don't want to be here some days.
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For those with osteoperosis....
There's a event lined up by the National Rheumatoid Arthritis Society on Wednesday 28th May in conjunction with the Royal Osteoporosis Society to discuss, amongst others things, the links between the two conditions. Will also be available on youtube afterwards. For anyone with osteoperosis, I can thoroughly recommend the…
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New to rheumatoid arthritis
Hi I'm 54 and have recently been diagnosed with rheumatoid arthritis. The future feels really scary to me at the moment. I'm not on any long term meds yet but will soon be taking hydroxychloraquine. I just wonder what type of life can I expect. Will I lead a relatively normal life with this disease. I feel really anxious…
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Feeling scared
Hello, I am about to begin RA treatment in the form of Quinoric, and am feeling very sad and worried after reading some very negative reviews. Has anyone here had a positive experience? I am 36 years old and have two small children, and am also worried about the initial settling stage in terms of likely side effects and…
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Recently diagnosed with RA been struggling for 5 years for answers
ughhh where to begin. I’m not liking these med trials. Methotrexate caused side effects and now I think leflunomide is causing side effects. If it were tolerable it would be fine but it’s not. Has anyone gotten sores on their face or felt extremely emotional and overall feeling sick? My pain feels different but still very…
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Full time work too much
Good afternoon, I wonder what experiences people have had with reducing the working day/days worked? I have had rheumatoid arthritis for 15 years and am mid forties now. Finding it hard to work full time, care for husband, the house, dog, and parents. I am tired all the time so have been thinking about reducing a day.…
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Viral Arthritis
Hi, just wondering if anyone has had:knows about viral arthritis ie symptoms, how long it lasts, treatment etc. Thanks.
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New diagnosis, feeling lost
Hello! I was diagnosed with Rheumatoid Arthritis a few weeks ago and I thought I was coping with it but the last couple of days I'm feeling quite overwhelmed with it all. I've just started on methotrexate and I'm hoping to get some relief from it but I know that could be a while away. I'm 31 and work in the performing arts…
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Not Diagnosed but have symptoms.
Hi, all happened within the last 5 months. • persistent rash on back. •Diagnosed with Reynaulds •Diagnosed with severe vitamin D deficiency. •Started getting sore painful hands, very tender, dry fingertips with little cuts and dead arms when sleeping. • Then sore MTP joints and feet. •Waking up with sore hands and dead…
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ESA Tribunal Appeal Help & Advice.
Hi I'm new here. I've been suffering with my arthritis following a severe flare up in the Autumn of 2023 which sent my inflammation markers into extremely high levels and I was in extreme pain and had limited mobility as a result. A change of medication to a monthly IV infusions of Tocilizumab has sorted out my…
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Claiming pip
Hi i was diagnosed with RA and psoriatic arthritis 3 yrs ago since then it's got worse and working full time is getting much harder so I thought I would try and apply for pip i did and it was denied, I have appealed this and am now waiting for a tribunal date. Since applying though things have gotten worse I now walk in…
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Rheumatoid arthritis
Hi have been taking hydroxychloroquine since November for RA. I had a fall and injured my knee and since then I have felt my legs tight as if I have excess fluid. Could this ge a flare up. Can't understand why my legs feel so heavy.
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Arthritis in joints
Shoulders…fingers hips ankles toes Thts my body
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Flare up after stopping MTX
Hello, After 7 years in virtual remission, no symptoms, I tailored my MTX down to 7.5mg and was told I could safely stop and monitor how things went. I stopped in November, all fine to begin with. By early March I had CRP of 25 and beginnings of pain in my thighs (front /back) and upper arms. I have tried managing pain…
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Recently diagnosed with arthritis
Hi, I don’t really know where to start as I always was a person who don’t ask others for help. I’m 29 male who just recently been diagnosed with rheumatoid arthritis. When I first found out about this condition I had a lot of courage to get through it, although I didn’t know much about it. Unfortunately I’m heading into…
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Hello - newly diagnosed inflammatory arthritis - looking for advice - what you wish you had done?
Hi All, I'm Emma, I am 50 years old and I am having a battle of a lifetime….or so it feels! So I contracted the dreaded Covid in late January this year, which turned into what Drs thought was tendonitis in my wrists and then further complicated it all by getting Shingles and then PHN. It's pretty much been a roller coaster…
