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newly diagnosed with RA and looking for advice
Hi all, my husband was diagnosed in December with RA. He was given methotrexate (6 tablets per week and 1 folic 2 days after) but after the third dose he felt awful, said he just didn't feel right and was getting real bad pains in his back both side under the rib cage which we put down to kidney pain. Spoke to the RA nurse…
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RA, rituximab and everything…
hi gang, I’m new on here but have had sero negative RA diagnosis for ten+ years. Last year I had first two infusions of rituximab. My rheumatologist seemed fairly delighted my inflammation markers had reduced significantly but honestly I’m in agony with especially my hands. You can’t do anything without them!! My gp…
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ESA Tribunal Appeal Help & Advice.
Hi I'm new here. I've been suffering with my arthritis following a severe flare up in the Autumn of 2023 which sent my inflammation markers into extremely high levels and I was in extreme pain and had limited mobility as a result. A change of medication to a monthly IV infusions of Tocilizumab has sorted out my…
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GIVING IT THE ELBOW
Hello everyone, I'm new. (I wish I was). Have been diagnosed with RA since early 2014 but its had more effect in the last 2 - 3 yrs. Thought it was tennis elbow and had to stop playing golf! Bad wear and tear, degradation, loss of cartilage etc. Very painful and disabling, and frustrating for myself and them others. Physio…
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Hello and advice please
Hi, I was recently diagnosed with rheumatoid arthritis and put on methotrexate. I've only taken one dose so far but feel quite nauseous and have vomited once. Is this normal? I'm also a bit worried about work. I sit in a open plan area with about 18 others. Is this OK with the immune suppressants, or should I request a…
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What car should I get?
Hi, I am a 19 year old girl with rheumatoid arthritis in her hips (and predicted in the knees too), I have my driving test in march, and was looking at cars to buy. I just need advice on whether I should be looking at buying a manual or automatic car, and advice on what other people have and how it effects/benefits them,…
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Am I going insane?
Hello all, I'm new to the community but not to the disease. I was diagnosed when I was 15 with RA, which has recently been rediagnosed as JIA (you say tomato, I say JIA...). I had been happily living with remission (apart from horrendous fibromyalgia), for the last 20 years but had a flare last year that left me nearly…
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Claiming pip
Hi i was diagnosed with RA and psoriatic arthritis 3 yrs ago since then it's got worse and working full time is getting much harder so I thought I would try and apply for pip i did and it was denied, I have appealed this and am now waiting for a tribunal date. Since applying though things have gotten worse I now walk in…
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Having RA and palindromic rheumatism at the same time
Hi, I was diagnosed with RA 2.5 years ago and I've been on a few different DMARDs since. Last summer I developed sudden flare ups that would migrate from one area to another causing inflammation, stiffness, pain and often severe reduction of movement. The flare ups would last a few days and then disappear - just to appear…
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New diagnosis, feeling lost
Hello! I was diagnosed with Rheumatoid Arthritis a few weeks ago and I thought I was coping with it but the last couple of days I'm feeling quite overwhelmed with it all. I've just started on methotrexate and I'm hoping to get some relief from it but I know that could be a while away. I'm 31 and work in the performing arts…
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The 3am club - Rheumatoid Arthritis
anyone else having the joy of being woken up in the night with severe pain from flare ups? I only got diagnosed in may-24 and the middle of the night flares are horrific! Hot water bottle and co-codamol are the only things that dull it.
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RINVOQ
Hi is anyone taking Rinvoq 15mg I'm just about to start and was wondering about side affect
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Rheumatology have been amazing!
I am a wheelchair user and already was in a lot of pain with hips and legs, but last year my hands, wrists, and shoulders suddenly became unusable, and the pain was evil. It lasted 6 weeks, and I was ready to give in. I was seen by rheumatology in October and put on a short course of steroids and then after Christmas I…
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30yr old recently diagnosed with RA
Hi all, I’m Katie and was diagnosed with RA about 9 months ago it has recently got quite aggressive and they are going to start me on biologics. as well as going back on steroids. it has been quite draining and at times struggling with my mood, which is normally when I feel like I can’t do much for myself. has anyone…
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Please help , What effect is sulfasalazine supposed to have? Joints seem to be getting worse
Hi everyone, I was recently diagnosed with RA and am currently on two sulfasalazine tablets a day, I have my first appointment with a rheumatology nurse on Tuesday. They mentioned the full does of the tablet will be 6 a day so I am building up to that but what effect does sulfasalazine have on you? I still wake up with…
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Arthritis & Working Full Timd
I've been living with RA for a few years now and whilst things at work have been steady, and my managers understanding, recently I have been referred to occupational health and I'm a little nervous. Has anyone been through the occupational health process with work?
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Increasing nausea......
I have been on Methotrexate for almost 11 months now, by Metoject injections. Apart from feeling a bit "below par" the day after the injection I haven't had any side effects since my Folic Acid was increased from 1 tablet a week to 3. My R.A. symptoms/pain haven't improved so just before Christmas I started on Yuflyma as…
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Partial knee replacement PKR
I have been offered this and wonder if any other member have experiences to share with me?
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Joint fluid turning to gel???
I saw my consultant finally on Friday and after doing an ultrasound on my knee he told me the excess fluid has started to solidify into a thick gel like substance instead of a fluid. Has anyone much experience with this I’ve never heard of it before, I’ve got a steroid injection in March and if that doesn’t work I could…
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Mtx and Humira queasiness
Hello lovely people I have had RA for many years. My last question was regarding anyone's experience taking Mtx and Hydroxychloroquine and I'm grateful for your answers and comments. Unfortuately it didn't work for me so I went on to Humira in place of Hydroxy, started back in October. I realise I am very lucky to have…
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Recent massive flare up
I have had OA for a long while and had a TKR on left. I use a wheelchair, as so many years using crutches has meant using crutches causes pain in hands & shoulders. This year I had a flare up of pain, stiffness, and weakness in my hands, wrists, and shoulders that was brutal. I couldn't even pull a bedsheet up during the 6…
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Thinking of changing career
Good afternoon After receiving a written warning for being in hospital with pneumonia and receiving a diagnosis of RA and now last Friday i have received a grievance against myself. Any links on where to apply for a new career that supports my condition and on reduced hours. thank michele
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Benepali injection & being taken seriously
Hi all I have been diagnosed with Rheumatoid arthritis since 9 months old. My recent diagnosis is psoriatic arthritis. I have been on Humira / Adalimumab for around 7 years but had constant flare ups in my ankles knees and elbows leading to endless amounts of steroid injections. I have now been on Benepali for around 5…
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Recently diagnosed
Hello all, I am 39 and was diagnosed with RA 2 weeks ago. I have been given a steroid injection to offer me a bit of relief whilst I research the drug methotrexate which I will go on long term. Is anyone this? In a similar situation? I am just looking for a bit of support. Thank you
