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Bladder weakness and incontinence with flare ups
Hi, I’m 52 female and have had Rheumatoid Arthritis for 22 years Just before a flare up I have noticed that I start getting bladder weakness and incontinence. This clears up as soon as the flare settles down. Initially I thought it has to be stress incontinence due to giving birth to my children and did pelvic floor…
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Hello all.
I am new to this community and wanted to say hello and introduce myself. My name is Dale and I have been diagnosed with Mixed Connective Tissue Disease (MTCD). This condition consists of Systemic Lupus Erythematosus (SLE), Rheumatoid Arthritis (RA) and Raynaud's Syndrome. I have Covid to thank for this. The doctors told me…
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Having RA and palindromic rheumatism at the same time
Hi, I was diagnosed with RA 2.5 years ago and I've been on a few different DMARDs since. Last summer I developed sudden flare ups that would migrate from one area to another causing inflammation, stiffness, pain and often severe reduction of movement. The flare ups would last a few days and then disappear - just to appear…
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Rheumatoid arthritis
Happy hello I am Ari & was diagnosed RA at age of 20.First few years were so hard on me & cruel to pass, morning stiffness, cold weather & water is enemy to me(won't even dared to touch it)pain everywhere & can't able to do any basic chores, waking up is a worst nightmare for me, inorder to eat,brush everything was so…
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Bad knee flare up advice and new medication
Hi Im 26 years old I have rheumatoid arthritis and I’m really struggling at the moment and I need advice, I started a new medication called leflunomide 5 weeks ago I’ve felt sick every day since I’ve taken it and I’m having a terrible time with my knee, I can’t walk on it, I’ve done all the things the hospital have told me…
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Fatigue. Advice please
Hi everyone. I'm 52 and was only diagnosed in late July so very new to this. Feeling very low as in bed for the 3rd day in a row unable to shake off overwhelming fatigue. Sleeping more than being awake in the day, despite sleeping all night. Any tips on how to hasten a recovery and/or to avoid this happening in the first…
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Hello and advice please
Hi, I was recently diagnosed with rheumatoid arthritis and put on methotrexate. I've only taken one dose so far but feel quite nauseous and have vomited once. Is this normal? I'm also a bit worried about work. I sit in a open plan area with about 18 others. Is this OK with the immune suppressants, or should I request a…
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Biologics
Hello! I got diagnosed with RA in March 2024 after my symptoms started in December 2023. The last 6 months have been a whirlwind of medication and lifestyle changes which I am slowly adjusting too. I have been on triple therapy now for around 8 weeks with no difference- I feel like I’m in a constant flare up! the good news…
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Thoughts on Adalimumab?
Hi all, New here and hoping for some advice from fellow RA’ers! I’m mid 30s and was diagnosed a few years ago, have been on methotrexate tablets (made me ill), went on to Metaject and (not able to tolerate more than 15ml), and take hydrocloxi - still don’t know how to spell or say it! - every other day. My next option is…
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Partial knee replacement PKR
I have been offered this and wonder if any other member have experiences to share with me?
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Recently diagnosed
Hello all, I am 39 and was diagnosed with RA 2 weeks ago. I have been given a steroid injection to offer me a bit of relief whilst I research the drug methotrexate which I will go on long term. Is anyone this? In a similar situation? I am just looking for a bit of support. Thank you
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Getting a Diagnosis in NI or Using Benenden
Hi I’ve just been referred by GP for RA (been having weird stuff going on with hands and have CCP? antibodies). Having read around a bit (and been a bit horrified by what RA actually is!!) and that fact that prompt diagnosis and initiation of treatment best, I thought I’d have a look at wait times. It’s 2-3 YEARS wait here…
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Methotrexate Flares
Hi everyone, At the beginning of July I started on Methotrexate. The side effects were not fun but at first I felt like it was helping. But in the last three weeks I've had three flares (I say flares, I'm in pain all the time so hardly in remission, but I mean it suddenly got worse for a few days). The first two were heat…
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Adalimumab and it’s long term side effects
Hello, I was wondering if anyone on here could share any experiences (positive and negative) and any knowledge regarding Adalimumab. I am due to start this biologic after a year on methotrexate and hydroxychloroquine, both of which haven’t manage to keep my RA under control. I am feeling slightly overwhelmed and anxious…
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Anti-CCP Antibodies - Is true remission possible?
Hello guys, 29 year old new to RA here, struggling a bit. I wanted to know if anyone with anti-CCP antibodies has been/is in remission, and I mean totally pain-free, normal life (except taking meds), normal activities, excercise, etc? I'd like to hear your stories if so. Appreciate any responses x
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How long can methotrexate work?
I’ve recently started methotrexate and I’m happy to say my blood inflammation is improving, though I’m not physically feeling it much yet. I’m trying to find out how long it’s effective for generally. Obviously it varies from person to persons but, If it controls and persons symptoms will it most likely keep it at bay for…
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Advice needed please
Hello, I'm 28 and have been diagnosed with rheumatoid arthritis. I have 2 children and am a single mum. I feel so tired all the time to the point I'm falling asleep in the middle of the day. Was wondering if anyone knows anyway I can get my energy levels up or is it always going to be like this?
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New to rheumatoid arthritis
Hi I'm 54 and have recently been diagnosed with rheumatoid arthritis. The future feels really scary to me at the moment. I'm not on any long term meds yet but will soon be taking hydroxychloraquine. I just wonder what type of life can I expect. Will I lead a relatively normal life with this disease. I feel really anxious…
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27 had arthritis from the age of 12
hello my name is James I am 27 years old and have had arthritis from the age of 12 I had a football accident when on a school trip but they put my foot back in to place and said they can’t send me home as it was 4hours away and had 4 days left on the school trip then sent me on a 3 hour walk in the woods with a group…
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Anti-TNF
Hi all I'm about to start anti tnf injection (Hyrimoz) is or anyone using these and what are the side affect if any
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How long does Hydroxychloroquine take to work
Hi Everyone! At the beginning of February I was put on Hydroxychloroquine for inflammatory arthritis. I'd be really interested to know how long it took other people for the drug to kick in and make a difference! Thanks in advance! Maddie
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Sore foot
I was wondering if anyone can offer some insight. I have inflammatory arthritis. I have got like small blisters and “blemishes” on the underside of my toes and bottom of my feet. Could this be RA related and worth mentioning to my rheumatology team or is it completely unrelated? Thanks.
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Help coping with a knee flare
Hi all I was diagnosed with JIA at 18months old, which transitioned into rheumatoid arthritis I'm now 36 and really struggling with a right knee flare, in alot of discomfort, limited movement in that knee. I have a guided ultrasound cortisone injection boomed for 29th May which I've been waiting months for. My emotions are…
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Advice dealing with RA knee flare
Hi all I was diagnosed with JIA at 18months old, which transitioned into rheumatoid arthritis I'm not 36 and really struggling with a right knee flare, in alot of discomfort, limited movement in that knee. I have a guided ultrasound cortisone injection boomed for 29th May which I've been waiting months for. My emotions are…
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Appointment sooner than expected
I saw my rheumatologist on the 7th May and had my bloods and chest x ray to see if I can start methotrexate. He said I’d have a Phone Call in about 4 weeks for any questions and that before starting it, and then he’d see me again in 3 months. I’ve had a letter this morning to see the consultant again on June 6th. Could…
