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Writing tools and keyboards
Hi there, I have been living with arthritis in my hands for 5 years now. I was quite well controlled until a few months ago. I have ongoing review in terms of meds and treatment. But I am wondering which pens and keyboards people find easiest to use with rheumatoid arthritis? Struggling to find the best ones to help me…
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PMR steroid taper
Hi , Any advice or ideas appreciated. I have had PMR just over 2 years now. Have been on prednisolone since. With numerous alternatives tried with no success.Finally on a biologic Toxcilumab, which has totally changed my CRP markers to now showing no inflammation. I am still on Prednisolone also. My query is if anybody can…
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Suitable gym wear for RA and lower back pain
hello everyone. I (28, female) was recently diagnosed with seronegative RA. My symptoms started with intense lower back pain. I used to go to the gym 3-4 days a week before I started showing symptoms. From a few weeks before my symptoms started, I’ve been struggling to wear gym leggings, which are tight at the waist and…
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Are biologics helpful if you are on apixaban?
Are biologics helpful if you are on apixaban I have R.A?
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Recently diagnosed seronegative arthritis
Hello everyone. I am Yasheka, just thought of introducing myself here. I was recently diagnosed (confirmed diagnosis just yesterday) with seronegative RA. Initially they suspected it to be axial spondyloarthritis since I had a fall about two years ago and hurt my tail bone. I didn’t go to get my lower back checked back…
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Methotrexate
Hi all! I’ve been on 15mg of methotrexate for 10 weeks have not seen any improvement in symptoms still in a lot of pain and have lots of swelling in my knee. I understand it takes a while to work and can be up to 12 weeks before noticing improvements but I just thought I would’ve have felt even a slight be of relief by…
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Rheumatoid arthritis - Weird feeling in thighs.
Hi, I've had RA for 14+ years. In the last year I have been having weird feelings in my top thighs (what we'd call lap). It seems to come on when I'm flaring , have fatigue, on run down. It feels like a kind of weakness, restlessness, sometimes throbs, and sometimes feels tingly. Anyone else ever experience this?
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Sulfasalazine
Hands
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Steroids
Hi Hope you are all ok. I was diagnosed with RA earlier this week after waiting a long time for a rheumatolgy appointment. I was given a 3 week course of steroids before starting methotrexate. Not sure whether to take these but feeling pretty achy today. Have they helped anyone else? Thanks
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Till what level of physical activty should one do?
Hello there, So here is a question I do 30-40 minutes of yoga, and I try to do it 4 days a week. And for the rest of the day, I am not so physically active. So, is being physically inactive adding to my pain levels? How much activity do you guys do? On a weekly or daily basis?
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Itchy skin
hello everyone- I’m suffering with terrible itchy skin (especially on my forearms) feels like little pin pricks too. Has anyone else experienced this? I’m on my 3rd weekly dose of methotrexate and read this ‘could’ be a side effect. Thanks x
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Pain relief
Hi new to this Had knee problems for years and I’m told they will both need replacing , but will not consider till I reach 60 , I’m an expert in hobbling around including work , always careful about walking around as if I slip over years both have dislocated , just lately the pain at times is 8 out of ten My job involves…
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New to rheumatoid arthritis
Hello everyone, I'm 54 and I've recently been diagnosed with RA and it's all come as a bit of a shock - I went from 'fit and fine' in April to 'pains that can crop up all over and diagnosed' in August. I'm still getting used to what my body can and can't do nowadays and what's a concern and what's 'normal' for RA. Also...…
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It’s Not Just the Pain… The Mental Fights Are Even Harder
Hello guys, New member here, but just another one sharing pain. So here is my story, I was diagnosed with RA at an early age, and it’s been a daily struggle ever since. Most days I start out trying to keep up, but by night I feel completely drained and end up being hard on myself for not meeting my own expectations. I know…
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Arthritis
Arthritis in fingers hips toes ankles wrist I got live with it but have Cimza injection every 2nd week
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Barbotage - Anyone else interested?
Hi Just a real quick question - If anyone else is interested in Barbotage - a means of breaking down Calcium deposits in hips, knees and shoulders and especially anyone with a Trust which has helped you get The Ultrasound scan needed to detect any problems!
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Methotrexate
I've had part ceasures with methotrexate and taken off them, I just wondered if anyone else has had them and what to do next
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Trying to help my Dad
Hello, my name is Charlotte and I joined because my dad who is 80 this month has incredibly bad RA. He has had it for 30-40 years, and has had several drugs for it in that time. In February this year he developed uveitis and after a trip to Moorfields Eye Hospital, he was told to come off the drug he was on as it was…
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Need advice for dealing with pain when driving
Hi, I am Molly I am 20 and I have RA in my hips (right is technically worse than left) I am a new driver (passed in may, but only got my motablity car last friday) I am driving an automatic which has definitely helped out a lot with driving, I have driven more than I ever thought I could, however, the pain is still very…
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CTLS clinic trials lab.
Hi all. Has anyone been to the Clinical Trials Laboratories Services in London? They are looking for donors from people who have RA and I just wondered if anyone had heard of them and done anything like this before. I am always happy to help with any trials but I’ve not heard of this company and so asking on here. Many…
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Shower Area Chair?
About 4 years ago we had a nice walk in shower. Now I need something to use to effectively 'sit' in my shower but (not being disrespectful whatsoever) something a bit more like those plastic outdoor chairs... less medical looking, but with better shower ceramic tile floor compatible (so its feet dont slip). Any thoughts?.…
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Am I going insane?
Hello all, I'm new to the community but not to the disease. I was diagnosed when I was 15 with RA, which has recently been rediagnosed as JIA (you say tomato, I say JIA...). I had been happily living with remission (apart from horrendous fibromyalgia), for the last 20 years but had a flare last year that left me nearly…
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Biologics
Hi all, first time poster, I suppose looking for some resources really. I am a paramedic, during covid like everyone I contracted the dreaded lurgey. I wasn’t unwell with covid just tired. 3 weeks later I began to get pain in all my lower legs and joints. Ankles knees hips. To the point where it was excruciating.(2021) I…
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Hello
Hi everyone just introducing myself, I have recently been diagnosed with rheumatoid arthritis in my hands and feet but have been living with osteoarthritis for about 12 years , I am in constant pain and can barely walk I'm 56 years old I have had physio 4 times and they still won't refer me to a surgeon to maybe get a hip…
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Arthritis and fibromyalgia
Hello everyone, my first time posting! I was diagnosed with Rheumatoid arthritis in 2020, I commenced methotrexate in June and recently noticed changes such as all over body pain, pins and needles, feeling bruised, unreal brain fog and confusion, I just put this down to my body adjusting to the methotrexate…..at my most…
