What do you miss?

hels78
hels78 Member Posts: 60
edited 7. May 2009, 15:30 in Living with Arthritis archive
I was thinking the other day what I miss now I have RA, my list to date is: Feeling well, being able to work and not worrying about lack of money, doing things on a spur of the moment, being quick!, being able to pick a pair of shoes I like without worrying whether they will hurt my feet etc, having a size 14 figure (steriods changed that for me!), having nice clothes and looking pretty (see previous!), having confidence, having a clean and tidy home all of the time, taking on new challenges, walking unaided and for as long as I like and not how long my joints will let me, being cheerful and not moaning about something ALL of the time, being independant, being able to play with my Godchildren without getting tired or sore, sleeping well and night and not needing too during the day.................. the list could go on - how about you?
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Comments

  • eckstardeluxe
    eckstardeluxe Member Posts: 1,192
    edited 30. Nov -1, 00:00
    Loads!!

    Running in the garden with my kids, long walks with my dog, walking without pain, wearing high heels, going to sleep without the dread of waking up sore, no alcohol as my meds make me sick if I touch it, going out for a small trip with no worries about parking, mobility issues. I'm sure I can think of loads more but those are the main things.
  • mash65
    mash65 Bots Posts: 834
    edited 30. Nov -1, 00:00
    a decent night sleep for a start,standing for hrs baking & cooking.
    but i still refuse to buy shop cakes like my own better.
    walking around the shops,being able to get in & out of the bath the right way without pain.having a shower cant do that as i cant reach above my head.
    going out & enjoying it instead of it being a chore.
    heels & wearing what i want instead of warm,baggy & comfortable.
    having a cuddle without it hurting :shock: poor o/h.
    its not till you stop & think about it remembering the good days before arthr moved in. well im learning to adapt cause he's not gonna beat me.debsx
  • lindalegs
    lindalegs Member Posts: 5,396
    edited 30. Nov -1, 00:00
    All of the above and .................

    ............. acrobatic sex :oops: :oops: :shock: we've had to take down the trapeze and I can't leap from the wardrobe in sheer naked abandon any longer :lol::lol:

    Luv Legs who's shameless :wink:
    Love, Legs x
    'Make a life out of what you have, not what you're missing'
  • heather1
    heather1 Member Posts: 75
    edited 30. Nov -1, 00:00
    I miss riding horses.
    Would do anything for a decent nights sleep.
    I miss having a long soak in the bath as i always have to use the shower.

    Carn't even remember what a painfree day is so how can i miss it!!!
  • lindah
    lindah Member Posts: 445
    edited 30. Nov -1, 00:00
    lindalegs wrote:
    All of the above and .................

    ............. acrobatic sex :oops: :oops: :shock: we've had to take down the trapeze and I can't leap from the wardrobe in sheer naked abandon any longer :lol::lol:

    Luv Legs who's shameless :wink:
    Do we presume you now dive dressed from the wardrobe. Comfy shell suit or tracky bottoms.? :lol::lol::lol:
    Linda H
  • breane
    breane Member Posts: 392
    edited 30. Nov -1, 00:00
    The thing I miss most is a good nights sleep.Can't remember when I slept for more than 2 hours at a time. I miss my job now I've had to retire due to the pain.Digging in the garden,can now only use a small fork and trowel(no heavy digging).Wearing my wedding ring as it no longer fits my finger,that goes for other rings too.Having a glass of wine as my GP advised against it while I am on my present meds.I also miss the freedom of not having to take meds.The one good thing was finding this web site! Breane. :lol:
  • eckstardeluxe
    eckstardeluxe Member Posts: 1,192
    edited 30. Nov -1, 00:00
    lindalegs wrote:
    All of the above and .................

    ............. acrobatic sex :oops: :oops: :shock: we've had to take down the trapeze and I can't leap from the wardrobe in sheer naked abandon any longer :lol::lol:

    Luv Legs who's shameless :wink:

    Legs I was going to put that, my actual thoughts were to get my legs open enough :oops: but I didn't want to offend. You've got to love Shameless Legs :lol:
  • colinone
    colinone Member Posts: 1,039
    edited 30. Nov -1, 00:00
    Its pretty clear to me that some of you ladies have only one thing on your mind, the same as men. Sex is indeed a worthy topic or should I say Sex and Arthritis, I think it is one of the main things that have an effect on people with Arthrits. To have a healthy relationship and for one partner to become ill must have a profound effect on the other partner. Does the other partner feel unloved uncared for and have worthless feelings. Its good that partners understand but living with it and understanding must cross paths at times. However we have a forum that is open to the public and is a most difficult subject to talk about at the best of times. However on a serious note it is a problem that needs addressing as our lives change with the effects of Arthritis. I know we as the so called arthritic or disabled people suffer missing out on things because of our illness. But how does the other person really feel. I know beyond all doubt that my wife loves me, but I also no beyond all doubt that she would not like to hurt my feelings.
    Colin
  • katekelly
    katekelly Member Posts: 975
    edited 30. Nov -1, 00:00
    Rding my bike and going on bike rides with my girls. Kneeling at the altar rail without pain to take communion. Play-fighting with my hubby. Not being bloody knackered all the time (sorry!). Being care free.
  • woodbon
    woodbon Member Posts: 4,969
    edited 6. May 2009, 04:35
    lindalegs wrote:
    All of the above and .................

    ............. acrobatic sex :oops: :oops: :shock: we've had to take down the trapeze and I can't leap from the wardrobe in sheer naked abandon any longer :lol::lol:

    Luv Legs who's shameless :wink:

    Legs I was going to put that, my actual thoughts were to get my legs open enough :oops: but I didn't want to offend. You've got to love Shameless Legs :lol:
    I'm shocked!!! Although my right leg moves easier than my left........ :oops: Sue :lol:
  • lindalegs
    lindalegs Member Posts: 5,396
    edited 30. Nov -1, 00:00
    D'you know I'm sooooooooooooooo pleased I'm not the only shameless one on this forum :lol::lol:

    Luv Legs :D
    Love, Legs x
    'Make a life out of what you have, not what you're missing'
  • mash65
    mash65 Bots Posts: 834
    edited 30. Nov -1, 00:00
    legs & co thats now what ur called. :lol::lol:
    i thought it was terrible to ask me now ex mother in law if sex was any different after hysterectomy :oops: :oops: i can tell you all now NO not with the right partner :oops: as for arthr,no swinging off the chandliers,but its nice when u can,comforting when u cant,a cuddles enough some nights.an understanding oh is great & ive got no blow up things appearing under the bed,so were both happy.

    well get banned at this rate....i blame legs & co.
    theres a good post on this somewhere,a few months back :wink: debsx
  • ninakang
    ninakang Member Posts: 1,367
    edited 30. Nov -1, 00:00
    Let's do it then :-) I'm shameless too and will take the flak and go to the Headteacher's office if I have to... Watch this space...
  • ritnew
    ritnew Member Posts: 338
    edited 30. Nov -1, 00:00
    I have just read this post and I have to thank you all for putting a smile on my face today, specially Lindalegs.'The day had started quite bad. I applied for a Blue Badge and got it wrong so that's been delayed, DLA are waiting for a report from my consultant, a friend seems to think I'll be running within a few weeks of getting my new hip and everything just seemed to go wrong today and it's only 11 o'clock. Thank you for making me laugh today, I knew if I came in here I'd find something to make me smile, it's the best drug ever.

    Rita X
  • terryd
    terryd Member Posts: 33
    edited 30. Nov -1, 00:00
    Hi all

    I miss not being spontaneous about anything.
    Going for a walk.
    Taking the grandchildren to the park
    Holidays. This is a sore point with the O/H

    And of course bed room actives, some changes there. Nice to hear legs & co comments, practice makes perfect as I keep telling O/H but get no response.

    I can at the moment (ssh touch wood) play my guitar, the first time for about six months.
    Running and golf are long forgotten.
    .
    And why on a good day do I over do it very time.

    Watching this space
    Terry.
  • nearlybionic
    nearlybionic Member Posts: 1,899
    edited 30. Nov -1, 00:00
    Hi
    I agree with you Terry, I miss spontaniety (sp?), in general. Also planning things and not being able to go through with plans.
    I love to dance, I`m not saying I`m any good mind, but do miss it. I like to go out and socialise, which has been pretty much non existant for past year, due to poor mobility, medication limitations, and now worried about being knocked over in a crowd!! :shock:

    NB
  • melbland
    melbland Member Posts: 36
    edited 30. Nov -1, 00:00
    Hiya

    In simple words - I miss life.

    I miss being able to live without pain, to be able to carry out "normal" activities. I should not be like this at 24 years old and that is the hardest thing for me to understand and get my head around. Not being able to enjoy life as I used to sucks.

    I wish I could wake up and be in NO pain - In fact I wish I could wake up at all sometimes :lol:

    I have had enough.

    Mel
  • suzster
    suzster Member Posts: 1,328
    edited 30. Nov -1, 00:00
    i miss relaxing in a hot bath sipping wine! showers and wine don't mix, lol!

    i miss the long walks me, hubby and eldest used to go on, getting into a muddy mess, discovering hidden public footpaths that always seemed to take us through fields with either mad horses or killers cows lol.

    sleeping, yes i miss never getting a good nights sleep anymore.

    playing with my children, when ellie was a baby i was well, no arthur so i could crawl around and play with her, but i've never been able to get down on the floor and play with sarah.

    feeling well and happy, thats gone for good, sadly.

    s.e.x outdoors, sorry, i'm lowering the tone now, but there are places i'd like to of done the deed!!
    actually s.e.x full stop, where did that s.e.x maniac go? i bet my hubby asks that a lot!!
  • terryd
    terryd Member Posts: 33
    edited 30. Nov -1, 00:00
    Hi NB

    Yes there are a lot of plans made and not much carried out.
    I enjoyed dancing also, the ballroom stuff got to gold standard but all that is in the past.

    Well suzster,
    I did do the deed outside a long time ago just got grass everywhere.

    Terry
  • suzster
    suzster Member Posts: 1,328
    edited 30. Nov -1, 00:00
    grass, lol, what a nightmare and it stains!!!
  • lindalegs
    lindalegs Member Posts: 5,396
    edited 30. Nov -1, 00:00
    Grass is fine - wot about sand :shock: :wink:

    Luv Legs :D
    Love, Legs x
    'Make a life out of what you have, not what you're missing'
  • nearlybionic
    nearlybionic Member Posts: 1,899
    edited 30. Nov -1, 00:00
    lindalegs wrote:
    Grass is fine - wot about sand :shock: :wink:

    Luv Legs :D
    Ha ha I am seeing another side of you legs!!
    But I agree al fresco nookie is out of the question now, I wouldn`t get back up from the floor!!! :lol:
    NB
  • katekelly
    katekelly Member Posts: 975
    edited 30. Nov -1, 00:00
    lindalegs wrote:
    Grass is fine - wot about sand :shock: :wink:

    Luv Legs :D

    Goodness yes I remember the sand!!! Just about!!! :lol:
  • colinone
    colinone Member Posts: 1,039
    edited 30. Nov -1, 00:00
    I think I’ll stay out of this one, it looks to me like you ladies have it in hand
    Colin
  • nearlybionic
    nearlybionic Member Posts: 1,899
    edited 30. Nov -1, 00:00
    Hi Colin
    Please don`t feel we have taken over!! Your opinions and/or reminiscences (sp?) are welcome here too!!! :wink:
    NB