I feel so lucky, at the moment Lucy's condition seems to be controled by the MTX.
We are off steriods and have managed to reduce the painkillers, alough she still needs them at times.
We are now having intence physio and lucy needs insoles to correct the damage done by being untreated for so long.
The doctors are happy, they say she will never be a normal kid, but she good for her and can take part in more than ever before. Lucy still struggles more than my other kids, get's stiff, sore and angry but on the whole feeling better!!
I hope you and your children are feeling well, i keep my fingers crossed for all of you x x x
0
Comments
my son is 13 and was put on prednisolone last week and after 6 days we are very pleased with his progress, he is due to start mtx in 2 weeks.
we are new to this condition and felt full of despair when he was bad with pain, but it seems the steroids are helping a lot.
i hope lucy continues to feel better.
clare x
We are happy with the progress and despite the setbacks she is happier and a little more active!!
I hope all the kids continue to feel better x x x good luck witht he mtx and steriods x x x keep your chins up, there is light at the end of the tunnel, even if it does seem a long way off and a little dumb!!
Enjoy.
Speedy
I'm so very pleased to read that things have improved for Lucy..
Marion x