An update on dorcas.

dreamdaisy · 4. Apr 2011, 13:01

dorcas had an appointment today with the orthopaedic department and it all went swimmingly well, but it has left her feeling very tired so she has asked me to post this update.

She has a pre-op appointment this coming Friday re the next round of wrist and hand surgery - that is about the ulna removal and finger joint replacement, and that will hopefully happen in the very near future. They then hope to call her in in about threee months to have her right knee replaced - the person she saw today reckons that a way to help her be more mobile during the recovery after this op can be found, unlike the bod she saw last year who indicated that that idea was a non-starter. (We are all at the mercy of individual opinion on so many occasions, yes?) Once she has recovered from that then the left knee will be next. Her joint damage is extensive and replacements are the only option.

dorcas, I wish you well for Friday, I hope the hand stuff happens sooner rather than later and as for the other two - well, it can only be a good thing, yes? Far less pain, greatly enhanced mobility - what's not to like?

Your willing amanuensis, Diabolic Damsel.

jennylynn · 4. Apr 2011, 13:11

Its always lovely to read something about a positive appointment. I will have everything crossed for her that the pre op appt on friday is just as positive and look forward to hearing how she is doing.

frogmorton · 4. Apr 2011, 13:24

Well that sounds like a plan to me

Well done Iris...now we have to wait and l hope not for too long. It will be lovely to have you back posting l have missed you :sad:

Will be thinking of you on Friday and am available for pocket duties should l be required.

Love and hugs

Toni xx

Ok ok and afew dandelions...including one enORmous one

frogmorton · 4. Apr 2011, 13:24

Well that sounds like a plan to me

Well done Iris...now we have to wait and l hope not for too long. It will be lovely to have you back posting l have missed you :sad:

Will be thinking of you on Friday and am available for pocket duties should l be required.

Love and hugs

Toni xx

Ok ok and afew dandelions...including one enORmous one

frogmorton · 4. Apr 2011, 13:24

Well that sounds like a plan to me

Well done Iris...now we have to wait and l hope not for too long. It will be lovely to have you back posting l have missed you :sad:

Will be thinking of you on Friday and am available for pocket duties should l be required.

Love and hugs

Toni xx

Ok ok and afew dandelions...including one enORmous one

Poppyg1rl · 4. Apr 2011, 13:25

Thanks for passing on the message DD, it's a lot for you to take in dorcas, glad that things sound positive, the aim is for better mobility and less pain that can only be a good thing.
Thinking of you, will be there for pocket duties!
Hugs xxx

barbara12 · 4. Apr 2011, 13:33

Thanks for the update DD
Iris I will be thinking about you Friday, I do hope it all goes well, and it is really nice to meet a surgeon that has not given up on you but can offer an whole new life.
Sending you all the good vibes you need, and hugs to go with them ((((())))
Love
Barbara xx

julie47 · 4. Apr 2011, 14:54

Thank you dd for the update.

Iris I will be thinking about you on friday.

Two new knees as well, I am sure that when you have the knees your mobility will be much easier and without the pain too.
Take care
I am thinking about you and wish you well.
love juliepf x

chris7 · 4. Apr 2011, 15:45

Thank you DD for letting us know bless you, (I hope you are getting back up to moderately grotty if you can remember the way? Hang in there too.)

Iris. if you get chance to peek in sometime.

Glad the appointment went well today and it does sound like they are doing their best in as far as they can to get things eased in the right order. So sorry you are continuing to have such a hard time with this damn disease, but you are very much missed. Hope you have a good rest this evening and know we are thinking of you and wishing you better days.
love and gentle hugs (((( )))
Chris

elnafinn · 4. Apr 2011, 16:14

Thanks DD for letting us know about Iris. You are most definitely the font of all knowledge on the whereabouts of one and all on here. Thank you for making it your business to do so. Bless you. What would be do without you.

Dear Iris,

You have so much going on at the moment and have done for what seems like ages, goodness knows what it feels like for you. I wish you well for Friday and at least it seems like you are being well looked after. Try to take some time out for yourself, won't you .......... please.

Sending you over love and hugs,
Elna x

hileena111 · 4. Apr 2011, 16:54

Thanks for this DD....How do you keep track of us all

Everything crossed for Fri and I'm available for pocket duty Iris....about the only day this week that I am.
It will be great tosee you posting again
Love
Hileena

skezier · 4. Apr 2011, 18:05

Hi Iris,

Oh well shall have to put the gorilla suit back in its box then.... for now

Glad it went well flower and leaving a (((((((((( ))))))))))) Cris xx

bertyboy · 5. Apr 2011, 02:40

Thanks DD
hope it all works out for you Iris , and you get less pain and discomfort in the future xxx

Starburst · 5. Apr 2011, 03:01

Sending love to Iris. Thinking of you. xx

caterina57 · 5. Apr 2011, 03:14

Good luck for Friday Iris, Its good to hear that you are getting the help you need. Will be with you in your pocket.
Cath

tillytop · 5. Apr 2011, 05:39

Thanks DD for the update.

Iris, so glad appt went well yesterday - and really, really good luck for Friday. Sorry you have to go through yet more surgery but I hope so much that the results give you some relief at last.

Thinking of you.

Lots love Tilly xxx

dachshund · 5. Apr 2011, 09:25

Thank you DD Iris.
i will be there on friday following you around i hope everything goes well.
joan xx

ironic · 5. Apr 2011, 10:18

Hi Iris,
One down one to go. I hope all goes smoothly on Friday. I am so pleased yesterday was a better experience for you. It does sound more helpful and positive this time.
I hope you have recovered today and able to relax for a couple of days.
Gentle hugs,
Lv, Ix

mp1952 · 6. Apr 2011, 03:20

Thanks DD.

Hi iris.. I think this sounds very good. It will be difficult in the short term having all these procedures, but well worth it in the long term to have improved mobility and also to have less pain

Marion x

julie47 · 6. Apr 2011, 03:42

morning Iris

Just to let you know I am thinking of you

Take care
Juliepf x

elnafinn · 6. Apr 2011, 06:21

Dear Iris

I hope you are taking it easy, boring though that can be at times. Thinking of you,

Love
Elna x

dreamdaisy · 6. Apr 2011, 08:16

I am thinking of you. DD

barbara12 · 6. Apr 2011, 09:24

Hi Iris
I am thinking about you, the support people have had off you is amazing to say the least, so now it is our turn to support you.
I have everything crossed for you, sending you lots of good vibes and hugs ((((((()))))
Love Barbara xx

dreamdaisy · 7. Apr 2011, 05:39

Morning gorgeous, I hope all is as well with you as it can be. I know you have your pre-op appointment for the hand surgery tomorrow, I hope all goes well and that they can attend to you sooner rather than later. If I remember right the last hand op came very soon after the pre-op, let's hope that happens again! Good luck, I'll be thinking of you. Diabolic.

PS If it becomes necessary I would consider re-opening the MASH unit, just for you.

dorcas · 7. Apr 2011, 08:34

Thank you Damsel for this thread and a BIG thank you to all you lovely people for your kind and supportive messages.

:!:

It's been a busy time recently between rheummy, OT and ortho but here's a wee summary...

As DD said I've seen ortho knee and am on the list for the first of two knee replacements.... right knee(which is badly eroded and joint distorted) will be done first, closely followed by the left .

I also had an appointment at Rheummy, who have said there is nothing much more they could do to try to halt the PA... but after a bit of discussion (desperation on my part) they' are putting my name forward as a special case to see if funding / permission will be given for me to start Certolizumab which apparently isn't licensed for PA.

The consultant is also contacting a Professor MacInnes head of Immunology and Research to see if he has any clinical trials that I could be included on. So I count myself lucky that there is still willingness to help me.

I have my pre-op tomorrow morn for the hand op (fused hand) to remove the ulna head and give me an index finger middle joint replacement. Not sure when the op will be but will find out tomorrow.

Community Ot have finally caught up with me and are providing a stair lit, wheelchair and rise and recline chair amongst other bits and bobs

So arther continues to dominate but I'm still fighting back.

Thanks again for all your support! I will have my jacket on tomorrow with lots of pockets.!

Love and a million thanks.

Iris xxx

barbara12 · 7. Apr 2011, 09:42

Oh Iris it is good to hear from you, but my goodness I bet you didnt know where to start.
So its your hand first, I am so glad they are putting you forward for the new treatment, or even a trial, they wont give up on you they know you are a fighter.
I will be in your pocket tomorrow, and I will bring more good vibes with me.
Wishing you well with everything
Lots of love and hugs (((((())))
Barbara xx

An update on dorcas.

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