Morphine withdrawal - can anyone help please?

villier · 5. Mar 2013, 14:20

Glad to see you are feeling a wee bit better Tilly.........tc..........Mariexx

tillytop · 6. Mar 2013, 08:47

Thanks both.

Tilly

LignumVitae · 6. Mar 2013, 11:48

Thinking of you Tilly, hope you are enjoying that new haircut still!
LV xx

frogmorton · 6. Mar 2013, 14:21

Hi Tilly

Just popping by - i haven't forgoten you.

Well actually I really haven't forgotten you....have YOU remembered Friday?? It's a special day......?

YES Gardener's world is back on

Yippee!

love and ((()))

Toni (and Daisycat) xxx

stickywicket · 7. Mar 2013, 04:08

Morning Tilly. I'm thinking of you. ((()))

bubbadog · 7. Mar 2013, 05:41

The Nausea and tiredness will pass after a while, your doing great! Take care. xx

deedeeitsme · 7. Mar 2013, 07:41

I hope things are improving for you now Tilly, all be it slowly. As they so slowly but surely is the way, you will get there.

Take care. Dee x

tillytop · 7. Mar 2013, 09:15

Thanks peeps again for your kindness.

Really low today and annoyed by weird cramping in arms which is a new one for me and I'm guessing is down to the morphine withdrawal. Just had a dose or Oramorph and cramping starting to ease now so I guess that proves the point.

I know it doesn't help to dwell on what's happened but I just keep going round in circles in my head. On the one hand I have no idea how I would have managed the past year of severe stomach pain without the morphine, and on the other I wish I'd never started taking it. As for the GP who originally prescribed it for RLS who told me - and I quote - "just take however much you like (within reason), it won't do you any harm". Well, words fail me. And I went back to the GP time and again literally crying with the stomach pain and, rather than investigate what might be going on, I was just prescribed more pain meds, often accompanied by the words ".. and top up with Oramorph if needed". It's no wonder I'm in the mess I'm in now is it? And, (rhetorical question), why, having told me when I went begging for help with the stomach pain - despite the morphine - that there was no stronger combination of pain meds they could prescribe did it not occur to them that this was not right and that it would be worth actually investigating the cause, rather than just chucking pills at it.

Sorry, just ignore me, bad day.

Thanks again for your support.

Tilly

stickywicket · 7. Mar 2013, 10:46

No Tilly, I won’t ‘just ignore’ you. I’m actually quite pleased, not that you’re having a bad day but that you’ve managed to post during one.

You say “I know it doesn't help to dwell on what's happened but I just keep going round in circles in my head.” I think you’re right. It doesn’t help at all and hence the circles. My advice on that score would be to just let it go. That was then: this is now. If what you now want is to get off, or as nearly as possible off, the morphine then you will need all your strength to do that. Raking over the ashes of how you got where you are now won’t help.

You clearly have no faith in your current GP so why not change to another one in the practice or even a different practice? It would help you start off afresh and a fresh start could be the best thing right now.

For what it’s worth, I too would lack faith in a doc who prescribed morphine for RLS :shock: (The words ‘sledgehammer’ and ‘nut’ come to mind) and definitely not in one who told me to take however much morphine I wanted – within or without reason. Have you considered asking to see your notes with a view to possibly reporting him for prescribing recklessly?

I don’t know how things have been for you since you first put up this thread but I do hope you’ve enlisted proper medical help such as LV suggested to cut down. What’s happening with your stomach? I know you saw a specialist, was it before Christmas? Did anything show up?

Please keep in touch with us. We do want to help and partly out of self-interest as we want you well enough to be back on here helping others - you’re so good at it. ((()))

LignumVitae · 7. Mar 2013, 10:49

I've said it before and I will say it again, we will not be ignoring you!!

It sounds like a really yuck day and those are always the ones where all the questions pop into your head. Why the medical profession chooses to take the approaches it sometimes does is mystifying - to keep you quiet and get you out of their hair I always think. I'm totally with Sticky on this one, maybe get a view of those notes, it was an over the top response in anybody's book.

As for the cramps, I do know that those are totally typical of a morphine withdrawal and can sometimes be accompanied by muscle spasming too (it's where the phrase kicking the habit comes from as they are often leg muscle spasms). Sadly, those symptoms can become worse before the withdrawal is complete so please be aware of that.

Tilly, you are having such a rough time, a bit of support from the right place could make it easier for you.

Sending lots of love and please know you are in my thoughts.
Love LV xx

ritwren · 7. Mar 2013, 12:57

Tilly, I just wanted to send you some support and say you've come such a long way, don't stop now.
I know so well what it's like to have things going round in your head and saying what if...... but LV and SW are right, it won't help you now but it would be a good idea to ask for your medical records.
I'd be very surprised however if any GP wrote down that he said to take as much Oromorph as you like within reason, it won't do you any harm. It sounds just like he's palming you off. I would change Dr if you can as it would be hard to have faith in such a person, or think that they have your best interests at heart.
I hope you're getting specialist help from someone, either online or by telephone or somehow. As I've said before, stopping this kind of drug is not easy and anyone who can help at all should.
Big hugs TT, hang in there
Rita

dreamdaisy · 7. Mar 2013, 13:42

Ignore you? Nah, no can do.

Arthritis is enough of a s*d on its own, then factor in your other health issues, the range and variety of meds you have had to try in the past few years (for precious little gain) plus the fact that you have been proved right about so many things which the so-called 'experts' were telling you wasn't happening I reckon it's little wonder that the 'what ifs?' and 'if onlys' are coursing round your bonce. I think they're more insidious than the original troubles.

Hindsight is wonderful, it's always crystal clear and always utterly fruitless. What is done cannot be undone, what has happened cannot be changed, the only controllable thing now is the future. You have made a very good start on making it a better one but surely this is the time to seek the extra help that you both merit and need. I can understand your reluctance to change GP surgery etc but surely it is now no longer a wishful thought: it has to become a reality for your health, your sanity and the overall well-being of your husband and other family members.

You have in the past shown reserves of strength and determination which beggar belief; I suspect that those reserves are now running on fumes which is far too draining on you. Please consider a fresh start with a new GP. The 'devils you know' are not helping you so surely it's time to make that change. ((((())))) DD

Numptydumpty · 7. Mar 2013, 14:10

Sorry Tilly, I have no words of wisdom to offer you. I just want you to know, you are very much in my thoughts.
(((())))
Numpty

tillytop · 7. Mar 2013, 14:43

Thank you so much for continuing to be there for me.

Today has been an absolute nightmare and I have upset my parents and my husband very much. I feel as if I am in the eye of a storm, with everything just raging out of control around me. What makes it worse is that, as a result they have now been communicating “about me” rather than “to me” and, even though I know it is because they care about me and don’t like to see me like this, it makes me very, very angry.

Tilly

dreamdaisy · 7. Mar 2013, 16:09

Of course you're angry but I am at a loss to understand why. They are talking 'about' you because they care (as you recognise) but just how are they supposed to talk 'to' you? How receptive are you at the moment? You are undoubtedly having a very tough time but so are they. You are not the only one lost in this mire. DD

LignumVitae · 7. Mar 2013, 17:02

TT, I just read your post and it has really worried me. As DD says, of course you are angry but what else are they to do? They must be so worried given how worried we all are. I hate to be blunt but if everything feels like it is raging out of control maybe it's time to seek help to regain that control because maybe you are out of your depth right now and need help getting back into your depth. There are people out there who can lead you through this in an easier way than you are now doing it, finding them is not defeat, or shameful it's just common sense. Speak to your husband, I'm sure he would be more than happy to help you find someone or some place to help you. You deserve the help TT, you have tried so hard and a little bit of help might just make the difference for the next and hopefully final phase of withdrawing. Thinking about you and sending my love to you. LV xx

mig · 7. Mar 2013, 17:19

Sending much love and hugs.(((()))) mig

stickywicket · 7. Mar 2013, 18:18

Tilly, I’m sorry I’ve only just seen your latest post as I’ve been out all evening. I do understand that you don’t liked being talked about rather than talked to. It feels very disempowering and that is scary.

However, I’m guessing that they, too, are scared so try not to be angry with them. They love you dearly and want you to be happy and, it seems to me, you’ve not been happy for a long time.

Let them help you. Listen to what they’re saying. Listen to what LV is saying. She makes a great deal of sense.

And know that we are here for you, come what may. ((()))

phoenixoxo · 7. Mar 2013, 18:56

(((Tilly)))

:>) (a phoenix smile)

Compositor · 7. Mar 2013, 21:43

Morphine withdrawal I have had mildly...

I was on the high doses of Fentynal patches for pain management for a couple of years and had come off them due to heavy sweating from them, that gave me withdrawal problems coming off them, came down off them a level at a time.

I'm now on MST's (Morphine) on a 12 hours rota...one thing I do know that if I go over the 12 hours for wharever reason, beit through sleeping over, forgetting to take them, or, some other reason...I do start to get the onset of mild withdrawal...in fact the signals of lateness comes on as a reminder with mild shaking/headaches/pain for which reason I am taking them.

I asked my GP about the withdrawals I had from the Fentanyl..."I said is this what is like when you see these people addicted to drugs going through their withdrawal"...he said John "yours is mild compared to them" and I though mine was bad enough!!!

My advice, is wean yourself off them, never come off them without supervision from your GP/Consultant advice.

Good Luck

John xx

mig · 8. Mar 2013, 03:10

Morning Tilly,Hope you had a good a night as possible,I am thinking of you and sending much love. (((()))) Mig

stickywicket · 8. Mar 2013, 04:58

Hello again, Tilly. I, too, am thinking of you. I hope things seem a little brighter this morning for you, Mr TT and your parents. Please keep talking to us. We want to help. ((()))

hileena111 · 8. Mar 2013, 06:46

Aww Tilly
I'm so sorry but hafve no great words of wisdom.
Just sending you lots of ((((((((()))))))))

Love
Hileena

stickywicket · 8. Mar 2013, 12:25

How was your day, Tilly? (())

LignumVitae · 8. Mar 2013, 14:38

I've been thinking of you today, hope you had a better day than yesterday Tilly. Love LV xx

Morphine withdrawal - can anyone help please?

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