Cogan’s Syndrome
Hi, I’m new so navigating my way round! I’ve recently been diagnosed with Cogan’s Syndrome but struggling to find anyone else with the same condition and/or much information about it with it being rare. Would love to hear from anyone else with similar! Thank you 😊
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Hi @ninscogan1 !
I've had a quick look, and I've found some information on Cogan's Syndrome. Have a look at the links below, which might help. Unfortunately I don't think it's an arthritis-related condition, so this may not be the best place to look for other people who have it....
I've looked around and can't see any UK based groups, sadly. Don't think this means you can't stay here and chat or talk about your condition - we're very happy for anyone to chat if it helps!
😊
If in danger or in doubt, run in circles, scream and shout
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