Always getting ill.

MaddyRose
MaddyRose Member Posts: 3
edited 28. Nov 2023, 14:10 in Living with arthritis

Hello.

I was hoping to get some support, advice and see if others can relate.

I have PsA, diagnosed 2021 and been on Sulfasalazine since.

I've been lucky to dodge side effects, but I seem to get real poorly on average once a month. Not arthritis related, but general sick bugs: colds, upset stomach etc.

And when I do, I can guarantee I will spend a night with temperature of 38°+, cold sweats and lots of aches. It's becoming a bit soul destroying and impacting my sickness record at work.

Can anyone relate? Give advice? Or general moral support.

I'm at a point of thinking of a medication holiday, but the thought of a flare up is just as worrying, I'd rather not experience that pain again.

Thanks for reading ❤️

Comments

  • CarylW
    CarylW Member Posts: 274

    Hello @MaddyRose

    I am glad you have found our online community, and I hope you find it helpful - our members are always keen to share their experience, and we will certainly give you moral support.

    I understand that you have PsA and have been on sulfasalazine since your diagnosis in 2021. Although you haven't had side effects from the drugs, you are feeling ill regularly and your sickness record is suffering. I can understand how worrying that must be for you.

    I am posting some information from our website below. If you haven't explored it already, you may find it useful.

    https://www.versusarthritis.org/about-arthritis/conditions/psoriatic-arthritis/


    https://www.versusarthritis.org/about-arthritis/treatments/drugs/sulfasalazine/

    I hope that you soon get some feedback from others with experience similar to yours.

    Do keep posting and let us know how you are getting on.

    Best wishes

    Caryl

    Need more help? Call our Helpline on 0800 5200 520 Monday to Friday 9am to 6pm

  • frogmorton
    frogmorton Member Posts: 30,026

    Morning @MaddyRose

    Next time you see Rheumatology you should tell them really. I mean I thought the idea of our meds is more to dampen down our immune systems rather than make us too susceptible to regular infections. Even if they aren't terrible ones they are affecting your work record.

    Maybe chase up your next apt?

    Toni x

  • MaddyRose
    MaddyRose Member Posts: 3
    https://community.versusarthritis.org/discussion/comment/709213#Comment_709213

    Thanks Toni.

    I plan to get in touch with them to discuss for sure.

    Appreciate the reaponse :)

  • ImAliBee
    ImAliBee Member Posts: 2

    Phone them re the meds. It could be the dosage maybe. Or they could try another option..

  • PeterJ
    PeterJ Administrator Posts: 970

    Hello @ImAliBee and welcome to the Community. We are a friendly and supportive group and I hope you will experience that as well.

    Now you are here why not tell us a bit more about yourself and please join in and keep posting. Good to have you here.

    Kind regards

    Peter

    Need more help? - call our Helpline on 0800 5200 520 Monday to Friday 9am to 6pm

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