PsA fatigue, flu like symtoms

Hi,

I was diagnosed with PsA three years ago and over the last 3 years have had various joints swell as well as enthesitis in various places and sacroiliac joint inflammation. I also have OA in my spine and my hips and am hoping for a hip replacement later this year. My PsA symptoms can be quite sporadic with some periods when symptoms are minimal.

As well as the joint inflammation I suffer regularly with fatigue, flu like symptoms and headaches. I also feel tender around the glands in my neck. The thing is these episodes, they occur every couple of months and last a couple of weeks, don't necessarily tie in with any joint inflammation. I am just gettng over the latest bout and managed to get a blood test whilst I was unwell. Every other time the symptoms have resolved before I could get a test. Anyway my ESR was raised at 27mm/hr. Not really high but I was starting to feel better so expect it might have been a little higher if I'd had the test when I was feeling at my worst.

I recently saw the GP who picked up on the neck pain and suggested it might be polymyalgia rheumatica. She didn't seem to think the PsA was a cause. I am not sure its polymyalgia. I don't really have those symptoms and the episodes have been coming and going for getting on for 3 years now so similar timescales to PsA.

I jsut wondered if others with PsA have similar episodes and whether they tie in with joint inflammation. I only see the rheumatology every 6 months or so but am going to try and call them to discuss. Am not in medication at the moment but MTX has been suggested. I have been holding off and trying to manage the joint pain with naproxen.

Thanks for any comments or advice?

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Comments

  • jamieA
    jamieA Member Posts: 854
    edited 1. Mar 2024, 18:16

    Hi @jeb68

    I'm not a medic so can only relate what I've experienced. When my PsA was at it's worst I had swelling on either side of my neck. The medics thought I might have had a problem with my thyroid but after tests ruled that out. Apparently there is a known connection between psoriasis/psoriatic arthritis and an under active thyroid as they both show increased levels of the cytokines IL-17 and TNF alpha. I've been on Amgevita an adalimumab biosimilar - it's an anti-TNF drug - since July 2021 and haven't experienced any swelling in my neck since it kicked in.

    I think many of us with inflammatory arthritis suffer fatigue as it takes so much energy out of you. I don't know about you but I don't sleep well and almost nightly waken around 3-4am. When I wake my forearms and wrists are swollen due to enthesitis according to my rheumatologist. A rheumatologist I saw when I was admitted to hospital said that the body generates it's own steroid - cortisol - but that generation stops during the hours of sleep.

    I hope you get stabilised soon.

  • jeb68
    jeb68 Member Posts: 2

    Hi @jamieA thanks for your comments. I had my TSH levels checked and they were OK. I do get other symptoms of underactive thyroid though so wondered if it could be related.

  • noddingtonpete
    noddingtonpete Moderator Posts: 1,337

    Hello @jeb68 and welcome to the Community.

    Glad to see you are getting some good support already. If you need any specific information just ask a question on here or pop over to the Versus Arthritis and try searching. We have a lot of information on arthritis and treatments as well as hints and tips.

    Best wishes

    Peter

    Need more help? - call our Helpline on0800 5200 520Monday to Friday 9am to 6pm

  • KPez09
    KPez09 Member Posts: 23

    I have PsA and now 3 months into taking methotrexate. When I have a flare it does feel similar to the flu, low grade fever, fatigue, increase in scaled patches, more stiff and more swollen joints. I managed to catch a cold so I've been out of sorts for the last 10 days anyway but the fatigue is so bad

  • Mindful
    Mindful Member Posts: 8

    I feel your pain @KPez09 I've been fatigued all day today and I couldn't understand why. My pain levels aren't as high so was thinking Th8s must be how things are with PsA? I'm newly diagnosed, so navigating new ground here too. X I tend to feel flu like the day after Methotrexate

  • KPez09
    KPez09 Member Posts: 23

    MTX just makes me feel a little dizzy the day after. The fatigue is odd for me but usually indicates a flare. Stress, weather and food all make a difference to me.

Hi, Welcome!

The community is a safe space for people living with and connected to arthritis to ask questions and share experiences. Get started by registering here and posting your first comment or question!

Hi, Welcome!

The community is a safe space for people living with and connected to arthritis to ask questions and share experiences. Get started by registering here and posting your first comment or question!