cafe

valval

trisher how did you get gold willy wonka ticket

trisher

He must have been in a good mood. It is cos Hand Therapy can do no more for me. Made me feel I had hit the wall.I feel sad over it really having had it said so many times in the past.

I thought Mr Grump would have said don't be daft instead.

Still might be able to get you all in.

valval

trisher wrote:

He must have been in a good mood. It is cos Hand Therapy can do no more for me. Made me feel I had hit the wall.I feel sad over it really having had it said so many times in the past.

I thought Mr Grump would have said don't be daft instead.

Still might be able to get you all in.

we can pass it out window to get in lol it would make anyone sad very negative and when things not great at the moment but you do have us

trisher

Joy - hope you feel better soon. ((()))xx

Julie - hope you are back with us soon, we miss you ((())) xx

Cris - Wish we could do something for you, really do ((())) xx
Chris Hope the tiredness goes off (((()))) xxx

And to anyone else who is not too good ((())) xx

Sorry memory not good either.

valval

hi my mum is home lol coming to help with shopping she only 73 runs rings around me lol

valval

time for bed see you all tomorrow sleep well

annie_mial

Yes, nite nite all........I am fading fast now.

Just time for a quick builders and a little sit down.

See you all tomorrow after the hossy (I refuse to be hossy-napped again).

Annie

trisher

Right

Nite Nite Val hope you sleep well....((())) xx

Nite nite Annie hope you sleep well too...((())) xx

Trish xxxx

Annie Good luck tomorrow xxx

trisher

Right

We must put a cunning rescue plan in practise just incase they snatch Annie again.

Here is my spud gun at the ready.

bubbles

trisher wrote:

Right

We must put a cunning rescue plan in practise just incase they snatch Annie again.

Here is my spud gun at the ready.

Quite right, we say to Annie being snatched by the hospital again.

bubbles

I haven't had chance to read back, I will put the kettle on and do my best to see what has been going on. I did read that the removal men where hunky, no flat caps and brown coats

trisher

Hi Bubbles

How are you tonight?

Yes that is right Annie said they were hunky removal men and did not have flat caps.

She liked them too.

bubbles

trisher wrote:

Hi Bubbles

How are you tonight?

Yes that is right Annie said they were hunky removal men and did not have flat caps.

She liked them too.

LOL, Hi there Trish, not so bad thanks. Been busy with papers and writing, welfare rights man was very helpful, consultant is on with another letter and is seething. Been having a quiet day really, just gentle pottering. Off to GP tomorrow. as the welfare rights man said, they have more than enough information to sink a ship, so just tell them that you disagree with their decisions and lets see what happens.
How are your hands today? Hope they are not too bad

trisher

Bubbles

They are painful. The fingers they gave me the steroids in has really let me know they did not like the needles.

The pain in them is worse than before I had it done. Hubby also noticed that they have fallen over more. So we have played a game tonight.
Hubby has drawn around them and will use it to see if they have fallen over any more when I see Rheummy.

Good idea wasn't it?

You have been pottering around again? I hope and fingers crossed they allow you the DLA money that they should do.

Is this the way they are taking peeps off this benefit? Not to let you claim??

bubbles

sorry to hear about your fingers, extra for you, for the pain to go away. A good idea to graph them, to see the changes, at least it will show the rheumy what is going on.

The Welfare man said, they seem to be stuck on some issue, for some unknown reason, as he said, there is endless informaiton for them to raise the care component, he said just keep your appeal letter simple and to the point, don't go over everything again, just say what you disagree with, send in any Drs letters with it and let them get on with it. He said they might well just agree to the increase and close the appeal, but to take it one step at a time. He was very kind and said he would come out to see me if needs be, if they refuse to increase it again. Consultant is on with another letter and so will the GP after I see him tomorrow.

trisher

So you have it at lower rate but won't higher it?

Well, if they know you have all the problems you have why give you any if they feel that way??

When you appeal does it go to a panel of doctors real doctors or is it still the same??

I don't know why they are refusing you.

bubbles

trisher wrote:

So you have it at lower rate but won't higher it?

Well, if they know you have all the problems you have why give you any if they feel that way??

When you appeal does it go to a panel of doctors real doctors or is it still the same??

I don't know why they are refusing you.

Yes, I get the lower care and high mobility, been trying for over a year for them to raise the care. I don't know why to be honest, with all the various health things and increasing care needs I and my Drs cannot understand it at all. If you appear in front of the appeal panel, then one of them is a Dr or medical professional, one is a solicitor and one is another whoever. When I send this lot back, it will go to a different section, not the same ones who made the most recent decisions. It is all so bloo** long winded. :roll: :roll:

bubbles

let's have a cup of T, here's one for you.

trisher

If you get the high care of one and now the other one needs upping because your conditions worsen then they should put it before a medical board of doctors.

Would a Solictor know if you need your appendix out?? No he would not.

It could be anything until they looked at you or even just heard the symptoms No he would not.

If he did he could earn more money doing both.

trisher

Bubbles

I will have a coffee I don't drink tea. I used to love it drink lots of it then sudenly I could not drink it anymore. Don't know what went wrong cannot remember what did it.

bubbles

]

One coffee for you

I think the appeal form goes before a totally different section, let's hope one of them has some form of medical understanding, otherwise it is all a joke.

I originally had the lower level of care given, as I cannot safely prepare a cooked meal from scratch, not unless you want bits of finger and things in it :shock: plus they said I am at risk of falling and at risk of danger. Now, there is no mention of meal preparation, I am apparently not at risk of falling, can climb stairs and am not at risk of danger. Quite when I had these miracles I don't know.

trisher

I can fully understand you Bubbles.

There was all this banter going on about my safety. I have epilepsey and was having 17 fits a day, they tried to trun me down for care.

My stairlift was fitted with a belt back then so I would not fit and fall down the stairs.

The ot's were up in arms so were the doctors, everyone.

I got it in the end but I had a few spells in hospital with concussion cut to my head stiches.

Now with all that has happend to me I got the carers allowance benefit well hubby is my full time carer.

It makes my blood boil when some peeps get so willy nilly and others have a battle with it all.

minky67

Hi Bubbles, If you have care needs for more than 20mins at night you should qualify for middle rate care.
Im debating putting in for mine to be higher ed but its an indefinite award & took me 12months to get lower rate & another 18 to get my mobility. :roll:
I never ever want to go in front of appeals again as they make you feel like a fraud & the whole experience is terrifying.
I havent informed them that ive got Fibro or other conditions,i dont like to rock the boat in case i have to go through it all again.
Good luck to you & i hope it goes well & you get what you deserve.
debs

bubbles

it does make you wonder who is sitting behind these desks, looking at your life in from of them and saying, no, they don't need any extra.........They are not medically qualified, they just see how many points you score and make it up as they go along.
Me recent general Incapacity review was fine, I met all the criteria on both physical and mental incapacity, scoring umpteen points on everything and they said no way could I return to work, they won't be asking for any more medical information again and that was that, simples, sorted.

bubbles

Good luck to you & i hope it goes well & you get what you deserve.
debs[/quote]

Thanks Debs, they already say that I need significant periods of care throughout the day, but not frequently :shock: :? well, you ask me what they mean, as I don't know. They have ignored my mental health status, sorry, feel a bit embarassed about that, :oops: but, it is real and a problem and without my partner I would be all over the shop, not knowing if I had taken my medications or not, totally fuddled.

My Cardiac consultant would have a fit if he thought they were going to make me sit in front of a panel, he knows what state I can get into and how bad it is for me, he has known me for 15 years, so if anyones word should be listened to, it is his. Anyway, we will see what comes of this, it has only been going on for Lord knows how long, ages, like yours Debs. I would tell them the recent changes and ask your Dr to write a letter in support of the recent diagnosis and how it affects your needs and care levels.