can't do this anymore

salamander

Absolutely Cris, I hope things go well for you too, it's the pain clinic for you isn't it? It sounds as if you have injections in various muscles but am sorry if my memory is not too great all these drugs can dull things a bit. Which has its positive side
have you had good weather where you are? It was glorious sunshine here today and went up to allotment with my sis. Couldn't do very much but it was great to sit in the sun taking it all in.

I will post this on yr thread too, just in case you don't drop in here!
love S ((()))

barbara12

Hi Sally
Hope everything goes really well for you Wednesday, we will be there in your pocket....and we will be well behaved....honest :shock:
Barbara xx

skezier

Hi Sally,

Oh flower I do so hope you get sorted or even helped a bit cus its been going on so long for you. Will be there though wasn't it at 6?

Yep the pain clinic but I missed the last appointment so this time its all locked up quite bad..... its normally only 2 muscles, the left shoulder one (hell that's a big muscle and she does almost to the lumber :shock: ) and the ones running up the back of my neck but this time..... Well having trouble with all the muscles in and around my spine and neck but how many she will do I don't know.

She used to use cortisone and local fro the trigger points but moved to dep medrone when I got used to those and now cus I have got used to those she is going to double up with botox..... see getting botox on the NHS after all

I know she bends over back wards to keep me in my way of life now but she used to baulk at 'waisting her time' till she realized I am my life and without it I am nothing..... I am so lucky both the rumo and pain doc knows what giving this up would cost me now

Kinda useful eh?

I so hope you can get the same kind of help but Sally it took so long time for me to see the right people. All you need is one of them and it helps so much! ((((( ))))) and a huge bucket of hopes. Love Cris xx

Oh and wonderful sun today and tomorrow I think Bout time eh?!

salamander

Hi Cris, sounds as if you've got some good people on your side. The botox sounds great, wish I could get my hands on a bit of that myself I hope it does its stuff properly on Wed. I remember you talking about the injections but just assumed they were depo med. What time is yr appt? It's so what true what you say you about being your life. It's the meaning we give to it and that's the only thing. For me that is painting. my family & friends and gardening (which I can't really do at the moment.) Everything else can go hang!

My rheumy is great actually. He knows I want to carry on doing stuff, even at a cost longer term to myself. He was very supportive when my mother died a year ago. I had an appt two weeks later and he was so kind. Lots of people have been actually. My gp is good too and is liberal with her prescriptions, for which I am truly grateful.

I've also taken on a bit of advice given to me last week and have told some of my friends the score and have had offers of help - which I am accepting!

Hang on in there til Wed hun. Hugs to you too and keep strong (((())))

salamander

barbara12 wrote:

Hi Sally
Hope everything goes really well for you Wednesday, we will be there in your pocket....and we will be well behaved....honest :shock:
Barbara xx

Thanks Barbara, it's an evening appointment (6pm) so will be treating everyone who comes along for a drink after.
xx

skezier

Hi Sally,

I am so glad you have a good one! You maybe just need to do the tidal wave thing this time? I know it wasn't till I did that I got any real help.... both tablets and pain stuff. he also just about keeps alive the hope they will operate... bout to test that one though so expecting a bit of a nose dive this week cus the pain lady is anti cus of the state of it......She thinks the risk is too high.... but I just nee to ask her why! Kinda know cus well we live with it don't we

Leaving you a sleep well draft and a (((( )))) and so many hopes things can be resolved a bit for you. Love Cris xx

dreamdaisy

Morning salamander, I hope you managed to get a good night's sleep and that things are not too bad this morning. DD

salamander

Hi Cris, DD, don't you find consultants often differ over treatment, each one sticking to their specialism? On occasions I've really had to push for the treatment that is right for me and I expect you know what it is for you Cris! I am going to lay it on the line for my consultant - just worried he won't have much in the way of answers but am willing to try anything.

I can hardly even drive at the moment and know I'm on too low a dose of steroids but the higher ones make my mood so volatile. Do you find that too DD? It's really difficult to the get the balance right. Am waiting for my GP to ring me about adjusting some of my meds today as I want to go in on Wed with a clear picture of her views are too. What a minefield arthritis is!

Hope you are both well this morning, or as well as can be expected.
tc

dreamdaisy

I don't do volatile. Never have and never will, I am far too lazy. The highest dose of steroids I have ever been on is 20mg, which rstores my natural perkiness that so many find so abhorrent! I am currently ticking over on 15 and I won't bother reducing much further. I have now learned that it all falls apart on anything less than 10 and I don't need that. DD

c4thyg

Sal,

I just wanted to pop in and let you know that I'm thinking about you. I hope your appointment has some answers and solutions for you. Take care of yourself, we're all behind you. xx

salamander

dreamdaisy wrote:

I don't do volatile. Never have and never will, I am far too lazy. The highest dose of steroids I have ever been on is 20mg, which rstores my natural perkiness that so many find so abhorrent! I am currently ticking over on 15 and I won't bother reducing much further. I have now learned that it all falls apart on anything less than 10 and I don't need that. DD

Well, steroid induced mood swings are hardly a matter of choice DD!

salamander

c4thyg wrote:

Sal,

I just wanted to pop in and let you know that I'm thinking about you. I hope your appointment has some answers and solutions for you. Take care of yourself, we're all behind you. xx

Thanks Cathy

skezier

Hi Sally,

Sometimes laying it on the line is the only way you get help..... Me I was lucky I was at breaking point back then and actually saw him mid break. He was quite shaken cus he had no idea it was coming but has really helped with pain control ever since. Next one I have to actually talk to hm about the bones, drip etc and well that's not so easy as the tidal wave thing.

Its not long now flower and mood swings on steroid talk to him about that as well cus there are more types of steroid than preds. Love and a ((( ))) and a hope. Cris xx

dreamdaisy

I didn't imply that they were. As I said, I don't do volatile, I am far too indolent, though today's events have exercised me in a thorough manner. I have heard that people's moods are affected at doses of 30 mgs per day, but as you didn't mention a level I could only answer from my own experience. I hope your day has passed considerably better than mine! DD

salamander

Its not long now flower and mood swings on steroid talk to him about that as well cus there are more types of steroid than preds. Love and a ((( ))) and a hope. Cris xx[/quote]

good to know Cris, I'll ask.

DD, It's not just the high doses that cause mood swings. Anyway, rheumy says I am v sensitive to them, even a small shift really changes things either way. It's why I try and keep them as low as possible.

dreamdaisy

They are not good meds long-term, that's for sure, but then what are? I hope you have a good night. DD

salamander

I don't have an option at the moment and sounds as if you don't either. Hate them actually but they do keep me mobile (though not at the moment lol!)
Hope you have a good night too.
x

dreamdaisy

Morning salamander, I hope you had a good night. Mine was back to its usual level of lousiness, so that is comforting. I like to know where I am with these things! DD

salamander

hi DD, yes it good but only thanks to amitriptyline. Don't like taking it but helps with the pain and sleep so a necessary evil whilst on pred.
Sorry to hear you don't sleep well.

maggiemay

Hey Sally

Dont go on Antidepressants, I have been there and got the T-Shirt.

I thought things couldn't get any better, I am now on my own after my partner and I broke up. She prescribed me those awful pills, Maybe it was only me but they made me worst.

I took them for 3mths and felt OK a little better, but the effects of them was awful. My Daughters are spread over N.Ireland so I couldn't talk to them and they have their own lives to lead, so I decided one morning even though I was in pain to stop them on my own. And look at me now, still in a bit of pain and decided to start my own business, to help persons like us, persons who people say we are faking it just because we dont have a leg or arm missing. But it is still a diagnosed Illnes, Arthritis.

Dont even think of taking them,

Mags

hileena111

Hi
I cant take amitryp. but from what I know of it ....it is an anti depressant but its also a muscle relaxant ...depending on what dose you are on

Love
Hileena

ironic

Hi Sally,
I just wanted to wish you well for your appointment tomorrow. I have everything crossed for you. I do hope that things improve for you very soon. Glad you got down to the allotment with your sister. It is so nice to see things ready for picking. We are going to bring in the last of the beetroots and we have the Swedes to look forward to over the winter months.

Lv,Ix

salamander

maggiemay wrote:

Hey Sally

Dont go on Antidepressants, I have been there and got the T-Shirt.

I thought things couldn't get any better, I am now on my own after my partner and I broke up. She prescribed me those awful pills, Maybe it was only me but they made me worst.

I took them for 3mths and felt OK a little better, but the effects of them was awful. My Daughters are spread over N.Ireland so I couldn't talk to them and they have their own lives to lead, so I decided one morning even though I was in pain to stop them on my own. And look at me now, still in a bit of pain and decided to start my own business, to help persons like us, persons who people say we are faking it just because we dont have a leg or arm missing. But it is still a diagnosed Illnes, Arthritis.

Dont even think of taking them,


Mags[/quo

Thanks Mags, I'll bear what you say in mind.
xx

salamander

Thanks I, I am hoping for a steroid injection for a starter and some Dmards for seconds! It's a shame I can't do the allotment any more. We are going to turn it over to fruit, trees and bushes mostly. It's a lot less work than veg. I shall miss the veggies though. Might grow some outside the back door instead. If I get better I can always start up again.

Hi Hileena, Amitrip is horrible actually but it does help me sleep and with the pain. I think it also relaxes me a little so I'm not so stressed out. On quite a low dose but even so, I don't like it. Why couldn't you take it, if you don't mind me asking?
xx

hileena111

Hi Sal
How are you this morning.
I was desperate for sleep after my THR.....and GP was trying everything at night. i was waking up with pain...it wasnt that i couldnt get to sleep.
Any way to answer your question...I've got epilepsy....from 18 months old....I'm well controlled now ...i drive etc...The last seizure was 30 yrs ago when I was pregnant....anyway apparently when he was working his way through the list of tabs that might help he told me i couldnt take that because it clashed with my ep medication.
I am so well controlled {as far as ep is concerned} if there is anything that is going to give me the slight chance of having a seizure...no thanks.....I stick to not sleeping very well.
In fact I've been told its "iffy" to use a tens machine
Love
Hileena