When life isn't so easy ........

Wonkylegs

HI all

this is me today and tomorrow i'm hoping for but will settle for or even

I got the MTX injection this morning, and managed to psych myself up enough to leave a message on the rhuemy nurse answerphone to let her know we've decided (unless we hear different) to stay on the 4mg steroids for longer, as the rash is here again, and it needs time to settle to 4mg before we decrease any more :roll:

They didn't ring me back last week, so I secretly hope they will leave me alone this week too

right ..... have some minutes to collate now that the printer has coughed and spluttered them into existence :roll: :roll: so better go.

much love to you all
wonky xxxx

elnafinn

Wonkylegs wrote:

HI all, this is me today and tomorrow i'm hoping for but will settle for or even
wonky xxxx

Dear Wonky,
I so hope tomorrow you will be able to and even better to
Bless you, you are a good girl printing out the minutes. I expect you wrote them as well.

Love
Elna x

chris7

Hi Wonky

Good to see you have called in today. I really do hope tomorrow is more than :???: But either way let us know how you are when you can? Why not tell them the glass is half full at top, that should confuse them! Hang in there and take care.
love and hugs ((( )))
Chris xx

Airwave!

I suppose that we see the world as a half full glass because we enjoyed the first half, metaphorically speaking, of course!

It's a big ask, to enjoy the world for what it is, especially with arther by your side, but not impossible.

I hearby declare myself the worlds biggest cynical optimist.........er, I know what I mean.

Stay cool wonkylegs.

8) Its a grin, honest!

Wonkylegs

well guess what arrived in the post yesterday ...... the Latest Arthritis Care mag with articles on how to work on feeling more positive and another on how to make mornings easier

so ..... good bedtime reading for once

only I'm just a bit worried that they are able to read my mind and work out what articles they need to send me :eek: :shock:



feeling ok in-between bouts of feeling 'shift' but trying to do little and often , with a bit of retail therapy thrown in.

will try to be around more this week - however, being kind to myself means early nights and no lingering on the computer before bed!

hugs to all

WOnky xxx

dreamdaisy

You do what you need to do and come back to us when ready. I haven't been about much this week-end but that doesn't mean I haven't been thinking about people on here: I hope you are feeling brighter in yourself, I read the positive thinking article too - but it isn't always possible, is it? DD

Airwave!

Hear hear DD, even those of us who are + aren't spending every waking moment full of the joys, we just have more than some, and all need support!

Shout when you get back!

8) It's a grin, honest!

julie47

Hi wonky...just catching up cause I haven't been around much either.
Glad I did though cause you say your Arthritis news is here...I will watch out for mine as I didn't get one last time....If they miss me out again I will again have to try ringing them.

I hope you are feeling much better today.
Like you , I am doing little and often with big rests inbetween.
Take care
Juliepf x

Wonkylegs

Like you I am doing little and often with big rests inbetween

I had to laugh reading this, because this morning I managed not to be 'woken' by either of my alarms at 7am (I did take my painkillers then though :shock: ) and 8am (took lansoprazole then though :shock: :shock: ) and only woke up properly when a delivery driver knocked at the door at 10am and woke the dog up, who turns out to be the only alarm my body registers as a signal for me to get out of bed :oops:

How is it possible to wake up enough to take medication but not to have any recollection of having done so, or have realised that I was supposed to be ringing the doctors or getting up to go to a meeting :?:

I have made up with activity this afternoon though, so hopefully I will sleep but get up in the morning

I'll let you know!

hugs to all

WOnky xxx

dreamdaisy

I think it's very easy to wake up, swallow meds and not remember doing so. It's a mixture of disturbed sleep, pain and tiredness all coming together in one glorious splurge of 'did I or didn't I?' Pain does wake one, but only a little, hence the fuzzy swallowing of another couple of tablets. If you were sleeping so deeply that your forgot the docs and the meeting then that is a sign that your body needs the rest - perhaps do a little less during the day than you feel you can manage, and make sure you have a sit-down in between doing chores etc. As for the pain dullers (in this case cocs), well mine are loose, in a little pot by the bed. I go to bed knowing there are four in there, I usually take two somewhere around 3am and then I can roughly work out when to take the other two (or maybe one) if needed. My mum writes down any meds she takes in the night but then she is in a bed on her own so there is no-one to disturb by switching on lights etc.

It's all part of athritis' rich tapestry! DD

bertyboy

Morning Wonky hope things are easing for you and you are feeling better , we all have the upy downy days , i have antifreeze for the glass if need be just dont drink it OK x

Wonkylegs

thanks DD & Berty - antifreeze not needed just yet thanks, and DD you're right ... a system for meds is very necessary otherwise i'd be stuck knowing what I'd taken and not taken :roll:

Today having woken up at the appointed hour to ring for an appointment ...... all the appointments had gone :roll: so I decided to have a little bit more sleep. Awoke to the dog going mad as someone hammered on the door ...... :shock: :shock: ...... was I dreaming? ........ deja vu? ........... no - just my new veg man who'd arrived 4 hours earlier than his predecessor. I didn't know whether to laugh, cry or thank him for waking me up

PJs were not the best look for meeting a new fella eh?

must be up early tomorrow ..... and no excuses! ....... MTX to be stabbed with by the nurse and Dentist to be endured :roll: :roll: :roll:

WOnky xxx

chris7

Oh dear Wonky

MTX AND the dentist!! :shock: Not such a good day then? I'll be up at 7, I'll bang a few drums for you to get up if it helps? Hang in there. You are not forgotten. Leaving some restful hugs and an alarm call.
take care
love and hugs ((( )))
Chris xx

dreamdaisy

My meth is done and dusted. What a start to the day, eh? Gosh, some people just don't know they're born! DD

seamonkey

Hi wonky, i dont think i have had the pleasure of posting to you before, I hope today you are doing ok and that your injection helps you, I wanted to offer the services of my 4 lovely children to wake you when you need to be, only one draw back though, you obviously have to baby sit them the night before in order for them to wake you! They always work for me even when alarm has rang off and im still lying there!
Best wishes,
seamonkey

skezier

Hi Wonky,

Just leaving you a ton of ((((((((((( )))))))))) and slurp buckets from the reprobate.... love and mascots through roadworks Cris xx

Wonkylegs

HI Chris, DD, Cris & Seamonkey

thanks for your lovely posts.

Seamonkey - I'll gladly take you up on the offer of the alarm clocks, though not sure I'm allowed to set up a virtual babysitting service on here I do remember staying with a friend when her boys were 7 & 5, their delight at waking me up by jumping on me at 6am is etched in my memory (and in the bruises I can still feel )

Hey - good news from the Dentist!!! I was worried because my gums were looking different, and quite pale. TUrns out that's because they are now healthier than they have been for many many years and they look like they should!!! So whilst feeling a bit of a chump for asking :oops: I actually felt quite good coming out with no more appointments for 6 months and a healthy mouth for once

FLying visit to site tonight because I'm off to the emergency Rheumy clinic in the morning.

TO flush out the Leflunomide or not to flush out the leflunomide? that is the question for tomorrow!!!

take care
WOnky xxx

Poppyg1rl

Good luck for tomorrow Wonky, I hope everything works out for the best,
thinking of you Poppy X

lindalegs

As I missed all of this thread being too wrapped up in myself ( :oops: sorry Wonky) I'd like to wish you all the best with your emergency Rheumy visit tomorrow.

Luv from someone who's hanging her head in shame.

Wonkylegs

Hey Legs, you never need to apologise for looking after yourself first

Poppygirl, thanks

bless you both, and thanks for the good wishes.

hugs
WOnky xxx

chris7

Hi Wonky

Hope tomorrow goes ok for you, I will be thinking of you. To flush out the leflunomide or not indeed, that is the question? :???: Whether it is nobler in the mind to suffer the slings and arrow of outrageous fortune, or to take arms against a sea of troubles...... blah blah blah. I do like a bit of Rattledagger now and then. I didna always pack fudge ya know.
You take care of yourself and have some early nights. We will always be here for you.
love and hugs ((( )))
Chris xx

skezier

Hi Wonky,

I hope they can help be is a flush out or not.... Its time you had some real,help from them.

Will climb in your pocket so i shall be there in the morning cus like you I have trouble waking sometimes.... in fact between you and me my record of missed calls from the waker upper is 70! :oops:

Oh I got hell for that one......

Good luck and will be wit you. ((((( ))))) and more slurps from the slurp monster. Cris xx

hey Chris,

that quote takes me back.... Cream and a ((((( ))))) and you got the lump hammer handy? xxx

julie47

Wonky Wonky are you up.
It is rhummy appointment ..... I am ready to jump in your pocket .,trouble is I have egg sandwiches :oops:

Good luck hope the appointment goes well.

Take care
Juliepf x

dreamdaisy

Hello wonky, how did it all go in the end? I hope you are OK and, oh yes, that was good news from the dentist. DD

julie47

Hi wonky
Just repeating what dd asked.........How was the appointment?
Hope you are ok
Juliepf x