Today's appointment................................

tjt6768

Right, first of all a huge thanks to DD for the other thread for me, and to each and every one of you on there, much appreciated...


Right........

Rheumy nurse was lovely, said it's not Rheumatoid Arthritis but is Sero-Nagative Inflammatory Arthitis, mainly in the hands and wrists, could not understand why the extended scope practitioner had said there was inflammation in the knee joints, if there is any due to the sero-neg then it is more likely to be in the soft tissue and this wouldn't show on an xray.. Thinks both knees have mechanical problems and says I need surgical consult for both, (for the chondrocalsinosis, psuedo gout) mentioned new knee but I don't think that is her speciality... I also have golfers elbow :shock: caused by the sero-neg, as is the exhaustion and the IBS...
Did bloods to double check RF but is quite sure it will be negative.
The Nerve Conduction Test I had for Carpal Tunnel indicated something was there, so possibly have that too.. :???:
Have written to GP asking them to prescribe Fentinol patches for the pain, to try and get it under control.. If I'm not tolerating that then Oxycodone(?)


So........ At least I have a definate diagnosis, and that they are sure that I do have an inflammatory disease, not the best of news but I suppose it is good to know what is going on, I know it can take many years to get to this point for some so I am grateful for that..
Also, if she is right and the knees are a mechanical problem then at least surgey could be an option..

I know that Rheumatoid & Sero-Neg are much of a muchness but I am going to tell myself that I have the better one to have of the two :shock:
Because Mr Positive is back with one Hell of a bang, lol......


Hope that you are well and managed some sleep last night..


I am blooming shattered!! Lol

caterina57

Hi Tony
I am glad that the appointment went well for you and as you say have got a diagnosis, lets hope that they are right about your knees and that surgery can sort them out, perhaps may be able to sort the carpel tunnel too!
Glad to see that you are positve! Its nice to have the old Tony back. Think to might need to rest though now these appointments can take alot out of you
Cath

dachshund

Hi Tony
at last you know what is wrong and you might be joining the list of tkr.
all the best now you need a rest.
joan xx

stickywicket

Hi There, Mr Positive,

Seems like a lot to take in. I don't understand all these sero whatnots but it sounds like the wheels are in motion which has to be good.

Have a good rest before you put the dancing shoes on.

tjt6768

Thanks Cath, Joan... I am indeed resting, I am in a lot of pain, it wasn't too far to walk from the taxi by the entrance to the clinic but it was enough to do the damage

Oh I am well back to my old self, dunno what happened.... I think one of my loose screws must've lodged in the misery lobe or summat..



As you say, at least now I know what is going on, hopefully the stronger depo will hlp and so will the change in pain meds... They said that there is no point in starting any imu-supressants (sp) at the minute which i am more than happy with..




Oh, way too late Stickey, the shoes are on and have been evo-stuck

dreamdaisy

Well I guess it's good news all round - you know what's what and you know what can be done so let's hope the knees can be sorted, the new pain dullers help and that the sero-negative can be remediated in some way. That would all be good, yes?


Golfer's elbow. Well I never. You don't play golf. It's more likely Samsnug* Galaxy elbow. DD

*Deliberately typed to avoid advertising charge.

tjt6768

I do like the samsnug, don't know who sam is though, lol...
I don't even play golf on the wii... I suppose I can now join the CLUB, and I know what FORE... It's not too ROUGH, not going to mention bogies

chris7

Hi Tony

No wonder you are shattered after all that! Good that you know what you are up against I guess, but sorry it is not better news for you there.
Hope you can catch up on some rest today.
take care
Chris

rugbygirl

Hi Tony

Glad that the appointment went well for you and things have been explained for you. I hope that things continue to improve for you. Lets hope that the surgery will help you and sort the problems out for you.

Hope the meds start to help with the pain and you are able to cope with everything that is being thrown at you more

You will have to take the dancing easy now that your knees have mechanical problems - slow it down for a while.

Glad to see the jokes are still as bad.

tjt6768

Moi, bad jokes :eek: :eek:

julie47

Hi tony
Glad you are feeling more like yourself now, but ease on the dancing till the new meds take effect eh?

It's good that you have a diagnosis now and that the right meds will help.

Good luck when you get the appointment with the surgeon for your knees I hope he can sort them out for you.
You will have to take up golf then......to go with your elbow.....atleast its not as fast as tennis.

take care
keep smiling
juliepf x

tjt6768

I couldn't possiblt take up golf, me, in cheques????????????????????
With my complexion????????

Lol



I have just spoken to the extended scope practitioner and he is going to sort out seeing the surgeon....
God knows how long that will be but if the pain meds help that'll do in the meantime.. Have a GP appointment next thursday so probably won't get the new stuff till then, that was the first available appointment :shock: :roll:

seamonkey

Hi Tony,
I am glad that you now know what has been going on with yourself, and hopefully the new pain meds will work wonders.
These appointments with docs etc do take its toll dont they, im dreading my next one, back on plane down to aberdeen again and then all day hanging about untill flight home, that will be about 7am - 8 pm.
You do sound alot more positive which is really good to read, you have made me smile and laugh out loud on more than one occasion in the past.
Our docs are chocca block too, have to wait a week for appt with my gp.
Good job were not in pain or suffering!
seamonkey

barbara12

Hi Tony
Heres a mug of tetleys while you have your feet up, I really do hope the new meds start to work very soon, and everything crossed the knee people can help you.
Has for the elbow...never mind golf...it might be all that tea....
If anyone can get there you will.
Love
Barbara x

prefabkid47

Hi Tony
Glad you got the day over with,it can be knackering.It's a lot to take in,at least maybe they'll get you sorted.
At least you haven't lost your sense of humour.
Ron

frogmorton

Hi Tony

I am so glad to see you back so we know how you got on.

I am sorry about the diagnosis, but i am glad that you finally know what is going on. As you say the treatment for both sero neg and RA is very much of a muchness so you will now get some treatment to stop the disease in it's tracks?

A good old overhall you have had and you WILL be shattered or wished as Cris would say!!

Another darn good idea of hers these here 'pocket duties' eh?!!

Rest up for now Tone

love

Toni xx

tillytop

Hi Tony

So glad you had a "productive" appointment and now have more of an idea of what's going on. Really hope the new pain meds help when you get them.

Thinking of you.

Tilly xxx

tjt6768

To all of you late-comers joining in, take your time why don't ya :shock: :roll:

Thanks folks...

Been round at the neighbours, he even took me to go pick Janet up bless him...
Off back round for a while tonight, took him to the electrical store that is known for the expression 'hi-de-hi' to get him a new dvd player, will...
A) Set it up for him if accessible
or.....
Sit in the chair and bark orders at him, with the occassional tetleys order to keep me going.

Option B sounds the better choice, haha...

Thanks once again, catch you later on..

joanlawson

Hi Tony

I'm glad you have some answers at last, and now you can see the way forward. I hope that the new medication will reduce your pain, and that you will get the right help for your knees.

Is golfer's elbow the same as tennis elbow, but with a club instead of a racquet :?: Trust you to be different :!: :roll:

Joan

traluvie

Hi Tony..

I am glad you got some answers today..
Hopefully you can start to feel a bit better with the right treatment..
Nice to see your still dancing..
You take care...

Poppyg1rl

Hi Tony,
Sorry for late reply, so glad you have a diagnosis at last. Sincerely hope you get relief from the pain with your new painkillers.
Thanks for your support and pocket duties
Take care hugs x

tjt6768

Hi Poppy hun, you doing ok??
Thanks for the message and support too...

And Tracey and Joan, many thanks to you also.. Much appreciated, and yes Joan, I do have to be different

http://www.youtube.com/watch?v=2iFXrFIx5Go

tjt6768

Good morning Lynn.. Our surgery are totally useless to be honest. When the pain clinic wanted me on the morphine tablets it took the surgery two and a half weeks to sort out my new script... :roll: This time at least the nurse gave me a physical copy of what they were sending as well so it may happen quicker. I could go to the walk in centre monday morning but that will depend on if I am well enough to sit around waiting... LOL

If not then I could try the telephone thing, cheers hun..

frogmorton

Hi Tone

Good to see you up and about posting. hope today you are back to our usual Tony

Your tea is getting COLD!!!

Love

toni xx

skezier

Hi Tony,

So which option did you use for the music thing? I would have had to have done A cus B they wouldn't known what i meant

A diagnosis is better than none and your right they are treated in similar ways but what tablets have they given you for it? I know you said some where but I have the attention span of a squashed gnat and also the eyes of a bottom feeder

I hope you get a bit of a let up with it all and the knees well if they are mechanical maybe they will do something about them soon? Leaving another cuppa and a ((( ))) Cris xx

minky67

Hi Tony, Im so pleased you got some answers at your appointment.
Im sorry im late replying :oops: Cant keep up these days as im so tired.
I really hope the patches work & you get some relief & also that you dont have to wait to long to see the knee surgeon.
You have been going through it hun :sad:
Take care, sending ((((())))) debs