Tired of beeing sick!

kathe
kathe Member Posts: 183
edited 2. Feb 2013, 12:55 in Living with Arthritis archive
sorry that I have been away four weeks but really having a hard time and it is not easy whit the arterist ,jobb and the buisiness schoool I have started. .
Have to quit cimzia because of all the side effect and it diden't help me at all.
Got some really bad infections and has been on and off antibiotica four the last 6 months.
The last time i was on antibiotica 6 times before they four the right type four the infection. So that really knocked my down and when stopping cimzia and the winter my artherist got really bad.So had to be home from the north sea last time. Got feber and so and really sick. So back at prednisolon,not that I like it at all but i have to.
Was to a specialist whit the toa nails that is falling of but they found out that it has to be a side effect . so nothing else youst side effect and they hope it gets better now when I have quit cimzia.
Not I'm youst started enbrel again ,really hope it works, have youst taken it four two weeks. Really having problems whit my wrists,knees and anckels . they are really bad.
Olso got more tablets so that I not get so many infections,but feel like it is more pills all the time.My hair is still falling of ,and doctor think it is from the metex but can't reduce the dose because of the arterist is so bad. .Olso still have to littel of b12 and folic acid so have to take more tablets four that too..olso waiting to operate on one toa . I fell like it wiln never end .Really tired of all .
Going to work next week, and really hope that the enbrel is working more then. But last time I was on it stopped working after a whille and not really got the best effect . So really hope it is not like that this time. Feeling a bit better but take prednisolon and pain meds all day youst to heng in there . The doctor mean that I have to trie enbrel one more time before I get on something new and hopefully it woorks and I dont need something new. But time will show. Taking prednisolon helps but I dont like it at all. But cant stopp before the enbrel is is working.
So sorry that I havent been here four so long but cant remember when I have been so sick like this. Really hope 2013 getts better . .
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Comments

  • dreamdaisy
    dreamdaisy Member Posts: 31,520
    edited 30. Nov -1, 00:00
    Oh my, poor poorly you, you have had a rough time, haven't you? You don't need to apologise for not being on, you've had a lot to deal with and we understand that. I am so sorry, sometimes this is what happens when we are trying to find the right combination of pills and meds to make the difference. I know that prednisalone isn't the ideal solution but it can help to ease the worst of the arthritis symptoms. Is there any way you could delay going back to the rig? You do not sound well enough at all to go out there. Take care, please. DD
  • stickywicket
    stickywicket Member Posts: 27,102
    edited 30. Nov -1, 00:00
    I have missed you, kathe, and I'm so sorry things have been bad for you. You cope amazingly well but, like DD, I do hope you're not pushing yourself too hard. Life on a rig can't be easy for anyone with arthritis, let alone when it isn't well-controlled. I hope the pred gives you a break and that the enbrel works a bit better than before. (())
  • kathe
    kathe Member Posts: 183
    edited 30. Nov -1, 00:00
    Thank you.
    It is so great having you people here that understands.
    Feel like the enbrel is working a bit. And along whit prednisolon and pain meds and so I feel ok. So talked to my doctor and she agree whit me that I can go to work. But if the artherist get worse out there or it become to hard I have to travel back home. So I 'm loking forward to go out to the rig at wednesday not been there since october...and hope it all goes well. .
  • dreamdaisy
    dreamdaisy Member Posts: 31,520
    edited 30. Nov -1, 00:00
    I too hope it all goes well for you: I admire the fact that you have carried on working in such a difficult job despite everything and that you are also planning for the future with your studies etc. Good luck come Wednesday and please keep in touch whenever you can. DD
  • kathe
    kathe Member Posts: 183
    edited 30. Nov -1, 00:00
    Thank you.
    I'll trie to ceep in touch.
    The study is great and I love it. But it take a loot of time.

    Really hope that it gooes Well at woork.
    Happy new year!!
  • stickywicket
    stickywicket Member Posts: 27,102
    edited 30. Nov -1, 00:00
    I hope it all goes well, too, kathe. And I'm glad the studies are going well too. Take care.
  • frogmorton
    frogmorton Member Posts: 28,076
    edited 30. Nov -1, 00:00
    Kathe!

    How lovely to see your name on the board :)

    I am so so sorry you have had such a hard time. All those infections must be so so tiring for you :( I hope you are able to take folic acid now to limit the hair loss - that is unfair as it's the only medication taht seems to have done anything to keep this arthritis under any sort of control.

    Back on enbrel then? and on oral steroids too? I have my fingers crossed that this time it works for you.

    Good luck with business school too! I am impressed.

    Love

    Toni xx
  • kathe
    kathe Member Posts: 183
    edited 30. Nov -1, 00:00
    Thank you, great to bee back here too.
    I have been on enbrel four 3 weeks now, feel that it
    Is helping a bit. But last time it took 2-3 months before I got the best effect.
    I have and still take fold acid everyday ,but not metex day, but I have to take 2 tablets(2g) a day because I have low folid acid counts. I take prednisolon tabletts(20mg) everyday to help The arteritis. I Oslo take pain meds like Ibux 600mg and paracet 1g 4times a day. Sometimes i have to take more. B12 injetions every 2 months. Enbrel injetions 2 times a week and metex every sunday. And s loot of other tablets, it is not easy going away all the medication needs it on bag.
    Really hate it all, have olso got some low vitamin counts to so have to take more vitamins to. Fells like I get everything. Really hope that 2013 gets better. Really have had a bad time now. Thank you so mutch four The support , looking foreward to get The exams results om january. really great having you people here because not all my friends get that I'm sick. I think they listen but they don't understand, sometimes I think they see but they don't know what to say or do. But really i think people is most intersted in them self, and their own problems. I know I don't have been here and asked you how you all been. sorry that I havent had The time but hope you all are fine. Really hope that people can see their friends better in 2013.
  • dreamdaisy
    dreamdaisy Member Posts: 31,520
    edited 30. Nov -1, 00:00
    For most people, Kathe, when they fall ill they go to the doctors, get a diagnosis and some pills and get better. We fall ill, we do injections and take lots of pills and we don't get better. That's tough for us to understand let alone those who are usually healthy.

    I can tell that you are feeling very fed up with it all at the moment (I am truly humbled by the fact you can express it in my language rather than your native Norwegian) and I understand that feeling: I've been there a number of times and it does drag one down. I don't usually advocate giving in but I feel that the forthcoming trip to the rig is far too demanding on you at the moment. Is there any way that you can delay it? Do you have a period of sick leave available to you? I know that work can be a good diversion but that is only when one can cope with its added pressures. I'm worried about you - please don't push yourself too much. Take care and I sincerely hope that 2013 proves to be a much better year for you on all fronts - and good luck with the exam. results! DD
  • Soretoe2
    Soretoe2 Member Posts: 198
    edited 30. Nov -1, 00:00
    Hi Kathe, popped into the forum and saw your name. There's nothing much I can add to what others have said except to send you my sympathy with your situation.
    You are so very brave, working, studying and having to live with the horrors of arthritis.
    I hope and pray that the New Year will bring you some relief and improvement to your health worries and excellent exam results when you get them next month. You are a star.
    Many blessings to you Kathe from Joy.
  • kathe
    kathe Member Posts: 183
    edited 30. Nov -1, 00:00
    Thank you Joy and dreamdaisy....
    I`m not that great, I do what I have to.....
    Going to work is a a good diversion and I look forward to that..

    Ho are you both doing? Hope you both are doing fine. Haven`t had the time to see if some of you have written a post inn the forum..
    :) Happy New Year...
  • kentishlady
    kentishlady Member Posts: 809
    edited 30. Nov -1, 00:00
    Happy New Year Kathe and hope things will improve for you. You have been having a very rough time and we all know what that does to us. Do take care. Hope your studies go well. Do wonder if DD is right and that you are trying to push yourself a little too far though? I'm sure you must find working on a rig extremely demanding and having to copy with arthritis as well must only add to your problems. If you find that it is too much for you, just come home.

    Let us know how you get on and take care.

    Beryl
  • kathe
    kathe Member Posts: 183
    edited 30. Nov -1, 00:00
    Thank you all so mutch .
    I have been at work four 14 days and I finished all! So happy that I made it. It was not easy whit water in both knees , anckels and so. But I made it.
    Still on prednisolon , but feel like the enbrel is working a bit but not so mutch that I have hoped. But have youst taken it 1 month so still have hopes. Have redusced my prednisolon to 15 mg , and in combination whit pain meds and methotrexate is works. But feel so tired all the time now, can sleep all day. My bloodcount is low so thats s bit of it but going to talk to my doctor about it.
    Now they fond out that I'missing some more vitamins to, so it youst getting more and more side effect.
    Going to se my reumadoctor 11 february, can't wait!
    Monday I'm going to see a surgun about the toa nails that are falling of. hope I don't have to operate them.
    Got my examsresults to and got an A, so happy !

    Hope you all are fine and thinking of you!
  • frogmorton
    frogmorton Member Posts: 28,076
    edited 30. Nov -1, 00:00
    CONGRATULATIONS Kathe!!!

    Woweee! an A!!!

    You are amazing and also very very well-done for getting through 14 days feeling so poorly :?

    I am pleased to hear that teh enbrel seems to be starting to work for you - so you have been able to reduce the prenisalone to 15mg - that IS good.

    I do hope MORE success will come especially if hey can right the vitamin imbalance.

    Poor toenails :shock: Poor you :shock: My fingers will be crossed for you when you see the rheumatologist and the toe-person on Monday.

    Love

    Toni xxx
  • kathe
    kathe Member Posts: 183
    edited 30. Nov -1, 00:00
    Thank you, I'm so happy whit the examsresults , I was so sick when I took it and so happy that my effort payd of. Great getting some god news in all The bad on my health.
    I youst hope that Enbrel works a bitt better over time or if not maybe I can trie something new. Going to talk to the reuma doctor about that. Because I'm so tired of this, beeing in pain all The time. The cold weather her in norway are not helping at all to , it is so cold now.
    Keep my fingers crossed that I don't have to operate on monday.
    Thank you mutch four taking The time to answer me. .
    Hope you are good. Best wisches!! :-)
  • stickywicket
    stickywicket Member Posts: 27,102
    edited 30. Nov -1, 00:00
    CONGRATULATIONS, kathe :D That's a brilliant exam result by any standards but, given the very difficult circumstances in which you did it, you have done amazingly well and it's thoroughly deserved.

    I'm glad the enbrel seems to be working a bit but clearly not enough and I hope things improve for you on that front. Good luck with the surgeon on Monday.
  • kathe
    kathe Member Posts: 183
    edited 30. Nov -1, 00:00
    Thank you!!
    Not lokking foreward to monday, but maybe it goes better then I think !

    But lokking foreward to The 11 february when I m going to see The doctor and get some answers about The enbrel . Really hope that it goes well, because now my knees , anckels and wrists are reall bad. but The 11 is not to fare!! Ceeping busy traning for The exam in May and going to jobbmettings.. but really hope that my health get better before it is time to travel to work again because last time was so hard.

    How are you going stickywicket??
    :-) have a great weekend
  • stickywicket
    stickywicket Member Posts: 27,102
    edited 30. Nov -1, 00:00
    I hope you have a good appointment tomorrow, kathe, and that something can be sorted out about those toe nails.

    I've had a nasty cold but the arthritis isn't too bad, thank you.
  • kathe
    kathe Member Posts: 183
    edited 30. Nov -1, 00:00
    Had to operate on bout of my big toa's and nails.
    Hopefully it helps, but the surgun's don't know yet. Have to wait and see how The nail and toa's grow. There where to surgun's that operated and it took 1 hour. hopefully it goes well. Had to stay in all monday, and had to walk whit crutche's four some days. Went on a jobbcourse on tuesday and come back yeasterday , not easy whit crutche's. To day I have walked whit out , still a bit blue and blood. But mutch better than before.
    So happy thats it is over, now waiting to see reaumadoctor 11 feb.
  • mig
    mig Member Posts: 7,152
    edited 30. Nov -1, 00:00
    Well done Kathe. Mig
  • dreamdaisy
    dreamdaisy Member Posts: 31,520
    edited 30. Nov -1, 00:00
    Oh my word, you've had an op? Oh Kathe, I sincerely hope it helps and keep using the crutches because the extra support they give is important (I can't get anywhere without mine!) Your healing may take some time thanks to the meds you are taking so make things as easy as you can for yourself, yes? Rest as much as you can and I hope things start to feel better soon. ((())) DD
  • kentishlady
    kentishlady Member Posts: 809
    edited 30. Nov -1, 00:00
    Hello Kathe. Well done on your exam result. You have really done so well to achieve that as well as coping with all your health problems. Sorry to hear about the toes being operated on and do hope they improve soon for you. Take care and don't try to do too much. Beryl.
  • kathe
    kathe Member Posts: 183
    edited 30. Nov -1, 00:00
    Thank you DD and Beryl and MIG,
    Going to rest and stay in this weekend as the surgun sad, Yes, had to operate bout of The big toa's because The cimzia made My nails fall off and I got some bad infections every where. Hopefully the operation is a sucess. But stopped the cimzia and back on enbrel , don't feel like it help as I hope but going too see The reuma doctor at 11 feb. Still on prednisolon 15mg and pain meds along whit methotrexate . have got some more side effect and missing some vitamins but hopefully The doctor will fix it at The 11 feb. The crutche's have help a loot but not easy whit The arteritis in My arm/ hands, and now I go easyer whit out.

    Good to see you back her DD, hope your fine. Read The post that you had a hard time :-) send My best wisches to you :-)
  • frogmorton
    frogmorton Member Posts: 28,076
    edited 30. Nov -1, 00:00
    Ouch Kathe!!

    Toenail ops are very painful I hear.

    You rest up now if you can.

    I am so pleased you have your appointment on 11th Feb. Not long at all now :D

    love

    Toni xxx
  • kathe
    kathe Member Posts: 183
    edited 30. Nov -1, 00:00
    Thank you, Yes it was very painfull indeed, specially when the anaesthtic whent out. But worst part was when they injeted the anaesthtic .Had to remove some of the nails and a bit of the toa's on bout feat. Couddn't walk whit out crutche's inntil to day. But seems like it takes time to heal , because of all My meds like DD sad.

    Yes The 11 is not fare, so lokking forward to that! Going to stay in and read four The buisines School and rest tid weekend.

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