Good luck for tomorrow, May

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  • dreamdaisy
    dreamdaisy Member Posts: 31,520
    edited 30. Nov -1, 00:00
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    May, it's lovely to hear from you and apologies for not replying sooner are not needed in any circumstance - we know you have a very difficult time at the moment and, rest assured, we will keep popping on here to let you know we're thinking of you as often as we can. I have another funeral next week and I'm still dealing with my mum's stuff but you are in my thoughts. That is indeed good news for you about your health situation re the cancer but I can see why the arthritis side is playing up. Look after yourself as much as you can and I hope that J is as OK as possible. Having the car taken away is probably a good thing but that must be another restricting factor for you. I am so sorry. DD
    Have you got the despatches? No, I always walk like this. Eddie Braben
  • applerose
    applerose Member Posts: 3,621
    edited 30. Nov -1, 00:00
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    Lovely to hear from you May but please don't apologise. You have way too much on your plate at the moment to be worrying about posting. That's good news that you only have appointments every 6 months now. Good idea that your son-in-law took the car away. At least you don't have to worry about that. It does sound like a lot of very hard work for you but hopefully it will get easier. Make sure you take care of yourself too though.
    Christine
  • barbara12
    barbara12 Member Posts: 21,281
    edited 30. Nov -1, 00:00
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    May we don't mind one bit that you don't post ..just you use our SW..or anyone else come to ...and try and get some rest while you have the help...it must be so frustrating for you and John....he will get there with the right help....and we are all here for you...some very gentle hugs ((((())))xx
    Love
    Barbara
  • kentishlady
    kentishlady Member Posts: 809
    edited 30. Nov -1, 00:00
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    Hello May. It was nice to know you had a positive appointment and I do hope you are taking as much care of yourself as you can, as well as John. We don't mind in the least if you haven't got time to post on the forum. We all understand how hectic your life is at present.

    Just take care and know that we are all thinking of you.

    Beryl. (((())))xxx
  • stickywicket
    stickywicket Member Posts: 27,715
    edited 30. Nov -1, 00:00
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    kellerman wrote:
    Again apologies for being so ignorant at not answering sooner.

    You are not 'ignorant', May, you are stressed. And who wouldn't be? An extremely fit, healthy, able-bodied person would be stressed and you are by no means extremely fit, healthy and able-bodied. Don't you dare apologise for not answering sooner.

    No wonder you freaked out when John started the car. I would have reacted exactly the same and I'm sure that Mr SW would have behaved exactly as John did. It's a bloke thing. Poor John! It must be so hard for him too.

    Shopping will be a nightmare. I guess you daredn't leave John home alone but taking him will make a bad experience even worse. Is it, do you think, time for on-line shopping?

    I'm so pleased the dreaded breast man wasn't as bad as feared. A little ray of light to be grasped at.

    Don't worry about coming on here to update us, May. Do whatever is best for you. We will be here as needed.
    If at first you don't succeed, then skydiving definitely isn't for you.
    Steven Wright
  • dachshund
    dachshund Member Posts: 8,944
    edited 30. Nov -1, 00:00
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    Hello May
    thank you for letting us know how you are. i'm pleased the breast man was nice to you.
    take care we are thinking about you.
    joan xx
    take care
    joan xx
  • kellerman
    kellerman Member Posts: 741
    edited 30. Nov -1, 00:00
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    I'm not sure if my fingers and brain are working together...but firstly...John's car was a 2.2 Audi to my mind like driving a tank. I still have my older but smaller Vauxhall Agila so not completely carless. I'm sure...no positive I couldn't live without any form of transport as we have very little in the way of shops in the village.
    I can have some-one to sit with John twice a week for 4 hours at a time which is a godsend. How long this lasts I'm not sure.
    I only took him to do the shopping because he really wanted to go and I would have felt guilty if I had left him as he must be bored and I know he's frustrated. I can't imagine what it must be like for him.
    For some reason he still thinks he will get full sight back again once he can have his eyes tested in 4 months even though he's been told its extrememly unlikely and by the doc impossible.
    Online shopping would be fine but we would be going stir crazy more than we are already. It will have to depend how I'm feeling although admittedly not great at the moment.Maybe I'll do the big shop online and just take him when I want a couple of things...this has just come into my fuddled head this minute. I can still think anyway.
    He's asleep at the moment.He keeps cat napping and then wakes up saying the first thing that comes into his head which more often than not is a load of rubbish but doubtless makes sense to him.
    Then we go back to him following me around which I can understand in a way but oh I do wish he wouldn't ask where I am when I go the toilet.
    The sad thing is he can't see his new grandaughters face although he can make out he is looking at a tiny baby. He does get weepy and this was one of the things that upset him very much which in turn upset me and also our daughter.
    Well he is awake. Food is now in order methinks.
    SW.....difficult to have a conversation his hearing is fine.
    This tremendous support from all my cyber friends is really helping and I really really appreciate you all. Love May xx
  • kentishlady
    kentishlady Member Posts: 809
    edited 30. Nov -1, 00:00
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    Hi May, I think you are doing brilliantly. It must be so hard for you with all your own problems. You know we are all here to support you as much as we can. Take care of yourself. Beryl. (((()))) xx
  • bubbadog
    bubbadog Member Posts: 5,544
    edited 30. Nov -1, 00:00
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    Hey May, Glad to hear from you, it sounds like you've been very busy!! Glad your appointment was a positive one. Poor John it can't be easy, I know it must be annoying when he follows you about and calls for you when your on the loo, but I would be scared if I couldn't see much. I remember a family member of mine who started loosing their sight and believed it would get better when the Dr's told her it wouldn't. She kept telling herself it would get better soon, which was sad to listen to. You seem to be going back and forth from the hospital for the next few weeks know wonder your knees hurt!! I can understand you wanting to go shopping just to get away from the house for a while, that is only natural with what your all going through. I agree with when you have a real big shop to do that online and go to the shops when you need a top up. That will make it easier for you. You need to take care of yourself May because you can't go over doing it, it's not good for you. We all are thinking of you and I send you a huge (())
  • hileena111
    hileena111 Member Posts: 7,099
    edited 30. Nov -1, 00:00
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    Hi May
    Sorry I didn't answer the post before this one but was away in a caravan.....tourer.....just home tonight and am so sore :cry: Its not the most comfortable sleeping place for a week :wink:

    Anyway ...back to you......it must be so hard for both you and John ......His frustration at not being able to do what he used to do and yours at having him following you around....both understandable.
    I'm so pleased that although you are sore at least you other appointments seem to be positive.

    I agree that an online shop for a main shop and then getting out of the house to get smaller things seems to be the best thing.

    It's great that you still have your car....I can imagine that where you live transport etc would be a bit few and far between.......same as here. :roll:

    I think I would have been really frightened in your place if I had seen John getting into the car.....that's the best thing {getting it taken away}

    You take care of yourself please and you know where I am if I can do anything.....not that far away really

    Love
    Hileena
  • dreamdaisy
    dreamdaisy Member Posts: 31,520
    edited 30. Nov -1, 00:00
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    Oh May. :( You put all my footling little worries into perspective. I wish to whoever that I could do something practical and positive to help but I fail on both fronts. All I can do is send my love accompanied by hugs and lots of cuppas. I have no comprehension of the troubles you are facing, I am so sorry. :oops: DD
    Have you got the despatches? No, I always walk like this. Eddie Braben
  • applerose
    applerose Member Posts: 3,621
    edited 30. Nov -1, 00:00
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    I think it is still very early days yet. It will take a while longer for John to settle down and for you to get used to things as they are now. I do hope you are taking care of yourself and making full use of the help you have been offered. Sending some (((hugs))) for you both.
    Christine
  • stickywicket
    stickywicket Member Posts: 27,715
    edited 30. Nov -1, 00:00
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    No words of wisdom, May. Just my continued deep admiration and a few more of these. ((((()))))
    If at first you don't succeed, then skydiving definitely isn't for you.
    Steven Wright
  • kentishlady
    kentishlady Member Posts: 809
    edited 30. Nov -1, 00:00
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    Just adding to the ((((())))) in the hope that they can help a little, May. Beryl. xx
  • stickywicket
    stickywicket Member Posts: 27,715
    edited 30. Nov -1, 00:00
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    And a few more (((())))
    If at first you don't succeed, then skydiving definitely isn't for you.
    Steven Wright
  • phoenixoxo
    phoenixoxo Member Posts: 625
    edited 30. Nov -1, 00:00
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    Hello May,

    I can't add anything to the wise words from the others above, but I just wanted you to know I'm thinking of you. Hugs too :)

    Best wishes,
    Phee
    PsA (psoriatic arthritis) and other things since 1990. Happy to help when I can :-)
  • dachshund
    dachshund Member Posts: 8,944
    edited 30. Nov -1, 00:00
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    Hello May
    i'm thinking about you I wish you all the best you have things so hard.
    take care
    joan xx .
    take care
    joan xx
  • Toots
    Toots Member Posts: 483
    edited 30. Nov -1, 00:00
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    Nice to 'meet' you May, although wish it were under better circumstances. Sending you virtual hugs x
    Toots x
  • bubbadog
    bubbadog Member Posts: 5,544
    edited 30. Nov -1, 00:00
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    Hey May! Hope your both having as good weekend as you can, sending my love & (()) to you both, take care. xx
  • applerose
    applerose Member Posts: 3,621
    edited 30. Nov -1, 00:00
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    Just thinking of you May and wondering how you are doing.
    Christine
  • stickywicket
    stickywicket Member Posts: 27,715
    edited 30. Nov -1, 00:00
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    I know John sees the GP tomorrow, May. I hope it's a good appointment. You are both very much in my thoughts. (((())))
    If at first you don't succeed, then skydiving definitely isn't for you.
    Steven Wright
  • maria09
    maria09 Member Posts: 1,905
    edited 30. Nov -1, 00:00
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    Hi May
    I've been off here for awhile and wondered how you are and how John and your daughter are getting on
    Take care
    Maria
  • dachshund
    dachshund Member Posts: 8,944
    edited 30. Nov -1, 00:00
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    Hello May
    I will be thinking about you both tomorrow I hope it all goes well.
    take care.
    joan xx
    take care
    joan xx
  • kentishlady
    kentishlady Member Posts: 809
    edited 30. Nov -1, 00:00
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    Hope all goes well tomorrow for you and John, May. Will be thinking of you both. Beryl. (((())))
  • kellerman
    kellerman Member Posts: 741
    edited 30. Nov -1, 00:00
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    Oh you wonderful people. You really have no idea how much more normal I feel just knowing you are all there for me.
    It was a new doctor John saw......boy oh boy talk about obese. Don't think for one minute he'd dare tell anyone about healthy eating.
    Anyway we had a bit of drama as John was very dizzy when he got out of the car so much so that I had to get help to get him into the surgery but only after he nearly pulled my arm out of the socket.According to the GP this is apparently normal caused by the lack of vision.
    We'll see when we go to the specialist on the 2nd. I thought he would go to sleep for an hour or two when we came in but unfortunately not. Still awake talking about nothing as usual. I know I sound heartless but it really annoys me when he says something and when I ask what he said he says nothing if that makes sense.
    Anyway tomorrow I have a 4 hourly break booked. Its not that I have anywhere in particular to go but I'll have a wander round the shops in town and a coffee with my new grandaughter and her mum....after all I can have 2 of these breaks a week so I'll try and make the most of them.
    I forgot last week and didn't have any me time.
    I only hope I can sleep tonight. I seem to be very on edge on a night just these last couple of nights though but I put that down to the aches and pains so I'm taking my dullers later tonight.
    Anyway we are muddling through. My brother is coming at the weekend from Eastbourne but thankfully they have booked into a hotel as I couldn't have coped with someone else to look after...sort of I suppose.
    Also maybe they don't want to be with us either in case they are asked to do anything. Makes sense its part of there holidays.
    Anyway I think I've done enough moaning for one post.
    Please everyone take care of yourselves....you are stars ((((())))) May x
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