I have Fibromyalgia with neck pain and arthritis in my hands.

Magpie47
Magpie47 Member Posts: 3
edited 25. Jan 2025, 09:19 in Living with arthritis

I have Fibromyalgia with neck pain and arthritis in my hands.

The pain is minimal but I have chronic fatigue,dizziness and low mood

I have tried umpteen drugs and I have just started Amitriptyline 10 mg which helps sleep but nothing else. However it is early days

Any advice?

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Comments

  • noddingtonpete
    noddingtonpete Moderator Posts: 1,389

    Hello @Magpie47 and welcome to the Community. We are a friendly and supportive group and I hope that will be your experience as well.

    I understand that you have fibromyalgia and experiencing neck pain and arthritis in your hands. Our website has some useful information that you might find of interest, I've put a couple of links in below which you might find of help.

    https://www.versusarthritis.org/about-arthritis/conditions/fibromyalgia/

    and also

    https://www.versusarthritis.org/about-arthritis/conditions/osteoarthritis-of-the-hand-and-wrist/

    Please keep posting and let us know how you are getting on and I hope that others will connect with you to share their support and experiences as well.

    With very best wishes,

    Peter (moderator)

    Need more help? - call our Helpline on0800 5200 520Monday to Friday 9am to 6pm

  • frogmorton
    frogmorton Member Posts: 30,322

    Nothing worse than feeling exhausted all the time (and in my opinion neck pain) other people do not understand the difference between being exhausted (temporarily) and chronic fatigue.

    There are some tips here which might help:

    https://www.versusarthritis.org/news/2022/april/5-ways-to-help-with-fatigue/

    What I will say confidently is that everyone here understands pain and will help all they can. Even just hearing back from someone else who understands is a huge support to me.

    Take care

    Toni x

  • Nanna
    Nanna Member Posts: 6

    Hi

    I have fibromyalgia and osteoarthritis in my neck and spine so totally understand how you feel. I'm seeing a physio on my neck next week and am nervous as it may well spike a flare up, but I've got to try something. Heated pads are a godsend. I take Co-Drydomol which helps when its bad. I'm also on Duloxetine for nerve pain which takes the edge off. Happy to chat anytime.

  • yvonne131
    yvonne131 Member Posts: 1

    Hello magpie 47. i am new here and i also have fibro, chronic fatigue which leads to burnout sometimes. i also have advanced OA in my spine and hands. i to am on amitriptyline 20mg at night. it helps me sleep but not sure there is any reduction in pain. i do physio led Pilates and i have to say its been a game changer for me. most nights i can't be bothered going due to tiredness etc but i tell myself this is my medicine for my back. when i stick with classes i am pain free. in back and neck

  • chrisb
    chrisb Moderator Posts: 786

    Hi @yvonne131

    Welcome to the versus arthritis forum.

    I hope that some of the articles mentioned above are of interest/relevant to your situation.

    The last post in this thread is 6 months ago so it may be worthwhile your posting on other more recent discussions. Alternatively you can start a new discussion if you so wish.

    Best regards

    ChrisB (Moderator)

    Need more help - call our Helpline on 0800 5200 520 Monday to Friday 9am to 6pm

  • MrBee
    MrBee Member Posts: 2
    edited 24. Jan 2025, 17:35

    If only Fibro was my only issue!
    If you have Fibro, you will suffer so much pain it’s likely you will never need arthritic medication! After a time you can learn to live with pain as there’s far too much of it! Important reminder though… Never ever give up!

    34 years with medium severe Fibro!
    + 18 other issues, yet I manage to put a brave face on and suffer in near silence, because no one cares! Amen!

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