Fibromyalgia

I to have Fibromalgia in tears this morning as pain is so bad I have come off my medication Duloxatine as makes me so 4gettfull and like im in a daze all the time Im waiting for spinal surgery been waiting now 24 weeks they say its a 15 month wait The burning in my joints is so painful on flare ups but I just cant be on medication that makes me feel so awful just doesnt agree with me

Im wondering weather 2 give up my aqua aerobics class I do 2 a week 4 time being till after my surgery abd just walk the pool instead as not sure if its 2 much on my spine

Trouble is no one seems to give u a plan at hospital 2 follow while your waiting 4 surgery on whats not good 2 do and whats right 2 do

Im struggling with my stairs as crawling uo them im trying to find somewhere 2 live on ground level

I can honestly I have never felt so low in my life I cant even keep a relationship like I am I hate myself 4 ending up like this falling out of a moving car has ruined my life like this having both knees replaced and hip abd spinal stenosis prolapsed disc I just feel like I want my life over im fed up waiting 4 my ops I feel 4 u all having pain as its awful 🤗 enjoy ur day 🥰

Hi

I saw a consultant last year he tested different places pressure points on my body all were painful . He explained if they were tender n the way I have been feeling with exhaustion it was fibromyalgia. Fibromyalgia goes hand in hand with oestoatheritis. He was very nice gave me a leaflet to explain. And recommended physio keep taking drugs from dr. I think def be kind to yourself n if you are tired rest dont feel bad cause morrow you can do a little exercise. Def helps take care tracie x

I was diagnosed Fm over 17 years ago. Soon followed by Rh. ARthritis. I take no prescription drugs for either condition. Have had adverse affect from prescriptions in past. SElf care, determination and nutritional guidance -not avail on NHS. For FM- pacing techniques essential. Learn to recognise onset of fatigue. If unable to cease activity/work at that moment .. rest up asap. Psychologically tell yourself ‘ “I am deserving of a break’, or. I’m doing little/nothing.. I’m on holiday.””(Even if you are not!!).

I take high dose turmeric capsules (with other ingredients) called {xxx}* . For FM I find high dose magnesium.. magnesium citrate/Elemental Mag. {xxx}* I have taken organic Chlorella 2tabs 500mg ea meal for over 20 years. Since then my iron levels have remained normal. And only had 1 virus during that time.

Med `herbalist sent test to Germany for “leaky gut syndrome’ over 9yrs ago. Confirmed leaky gut syndrome , ie: good gut bacteria non-existent, bad bacteria over high limit. ADvised gluten free diet and many different baccilus capsules over 4 months. Then retested and correct level of glut bacteria confirmed. Remained gluten free ever since. Much research available on leaky-gut sysndrom+ associated with Rh; Arhritis and FM. Much associated with gluten.

Never drink alcohol or smoke. Exercise- gentle walks when energy permits. Otherwise choose some of “Versus ARthtitis”home videos to exercise with to support muscle joint flexibility/strength. I only see Consultant Rheumatologist twice a year. Insist on copy of blood test and show /send to my Medical Herbalist. All private treatment and costly. Sad for those on limited income. Sadly for people such as us , NHS has become No Hope Service.. due to lack of research into NON-drug remedies and very little knowledge/guidance on diet/nutrition. Self reliance essential but really hard work! Blessings and good luck.!

*Edited to remove product names. Anna (Mod)

I have been prescribed Amitryptalin but I also take Turmeric which I find helpful. My polymyalgia has flared up again so I am back on steroids for 3 weeks. The aging process is so cruel !

Hi.....I'm Sue and I was diagnosed with fibro 2 years ago in addition to OA in my fingers & toes. Since then I've also discovered I have OA in my lower back, hip and knee. I was diagnosed by a rheumatologist who saw me twice and discharged me back to GP. I've seen 2 GPs who clearly do not know how to deal with fibro. I was on high dose pregabalin but gp cut it right down due to it affecting my liver. I was told nothing else could be suggested apart from self managing with diet and exercise. Exercise just makes things worse no matter how gentle. Just at my wits end now. I also have family coming to me with their problems and just want to hide away. I'm seeking counselling now in the hope that will help. How does everyone else cope? Thank you for reading this