Hi! New here! Still's brought me here

MZARG · 26. Dec 2021, 17:01

Hi! I'm Argentinian. I have been recently diagnosed with Still's disease. I've also been advised to get in touch with other people with this rare disease. So here I am, ready to give it a try. 🙂

Rendirse Nunca

Poppyjane · 26. Dec 2021, 17:15

Welcome @MZARG to the online community,

You have recently been diagnosed with Still's disease and are hoping to meet other people with this rare disease. I know that there are some members who have this condition and I hope that they will feel able to share their experience with you. Meanwhile I am sending a link which I hope you will find helpful.

https://www.versusarthritis.org/about-arthritis/conditions/adult-onset-still-s-disease/

The members of the community give to and receive a lot of support from each other and I hope when you join in and look round the discussions you will feel able to share a little more of your own experience of your life with arthritis. So do stay in touch and we look forward to hearing from you soon.

Take care

Poppyjane

frogmorton · 26. Dec 2021, 18:25

https://community.versusarthritis.org/discussion/52821/aosd

Hi @MZARG

remembered this 'old' thread stills is so rare I hadn't found it and managed to locate it for you hope it helps.

and this person @EOSDhusband is the husband of someone with AOSD:

https://community.versusarthritis.org/discussion/comment/679765#Comment_679765

Hopefully some of these people are still around and might reply to you.

Take care

ellie19000885 · 7. Feb 2022, 18:35

Hi! I'm a 21 year old and was diagnosed with AOSD in March last year. It is very rare so I've not found many others like me!

jeddison1985 · 7. Feb 2022, 18:37

Hi @ellie19000885 firstly let me welcome you to the forum I hope you find the information and support you are after from our wonderful community.

I can see from your post that you have quite recently been diagnoses with Adult Onset Still's Disease. I hope you are able to find others with similar experiences.

The site is full of information and conversations like the one you have commented too. I wanted to signpost you to a couple of links, firstly general information on AOSD and then a positive story of overcoming AOSD.

https://www.versusarthritis.org/about-arthritis/conditions/adult-onset-still-s-disease/

https://www.versusarthritis.org/news/2020/november/surviving-still-s-amy-s-story/

Please feel free to search the forum for others with similar experiences and I am sure that some of our community will be able to help offer some useful suggestions.

Take care and I hope you feel better soon.

Thanks

Joe

Hi! New here! Still's brought me here

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