Can anyone offer advice?

Hi everyone, I'm brand new here and out of sheer desperation, looking for some advice or guidance. I'll try to be as brief as possible but my journey has been going on for over 12 years, so I'll try to be concise. In February 2012, after a nasty 'flu infection that left me with a lung infection (MRSA), I develped a very painful little toe on my left foot. The toe was really red and swollen and I couldn't bear anything touching it and I wore sandals all winter. The pain gradually spread through my body, I started losing my hair and my fingers swelled up like sausages. I felt really unwell, I was tired and exhausted and had no energy and felt like you do when you have the 'flu, but without the cold-type symptoms. I did have a cough that never went away (which is how the MRSA was diagnosed and treated). After 2 years of going back and forth to the doctor and feeling like I sounded like a crazy person, I was diagnosed by a Rheumatologist with fibromyalgia and very low vitamin D and discharged. Since then, I have had the most bizarre range of symptoms, ending up in A&E with suspected temporal arteritis (it wasn't) and a diagnosis of Sjogren's Syndrome ('probable'). Since then, I've been diagnosed with lipoedema, degenerative cervial spine disease and in 2020, was found to have significant osteoarthritis and cartilage loss in both knees. I'm having my first replacment this week. I have had to battle to have replacements due to my 'young' age, even though my arthritis is classes as 'severe'. I have issues frequently with my feet (significant pain in my soles and heels, sometimes toes), wrists, finger and thumb joints, the heels of both hands, skin issues (last week diagnosed with psoriasis) and frequent eye bleeds (I assume episcleritis), random rashes behind my ears, around my hairline and itchy, painful 'lumpy' rash on my hands, which I had been told was eczema, until last week when a GP told me I had psoriasis.

In 2021, I saw a Rheumatologist who was really keen to listen to my history, the issue with lack of blood markers and she undertook scans, which led to a diagnosis of 'undifferentiated inflammatory arthritis'. I was prescribed Hydroxycholoroquine and this seemed to help. However, I have since relocated to another area and the most recent Rheumatologist I saw in 2023 said he disagreed with the previous diagnosis, stopped my medication and discharged me. I should add he didn't undertake any tests or scans but reviewed previous blood results. I was very down after this as it had taken so long to get anywhere with the variety of health issues I'm experiencing. I have asked for a referral to a new Rheumatology dept which is underway. After 12 years of never-ending painful symptoms that have impacted my life to the point where I had to reduce my working hours to part-time, I now can't work at all. I should add for context, that this started when I was 42 and I'm now 54. I am at a loss as to know what to do. I live every day in pain, I struggle with basic tasks most of the time and I don't know how I've got through the last 12 years, other than I have an amazing husband who has been with me and supported me through it all. I have periods when symptoms are better (usually in mid to late summer) but this year, that hasn't been the case. I'm hoping the new Rheumatologist will be helpful but I'm actually scared that I'll be sent away again and told there's 'nothing wrong'. Has anyone else had a 'painful' path to diagnosis and can anyone recommend a Rheumatologist who might be willing to consider that my previous diagnosis was correct? Due to the psoriasis, I'm wondering if psoriatic arthritis is likely? I'm really concerned that my joints seem to be degenerating quickly but all my blood tests are 'normal'. Thanks so much for reading through my long post.