THR my new life as a bionic person

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  • Janlyn
    Janlyn Member Posts: 627

    @Nurina Well done, in persevering. I do get what your physio says but you're young and what's one to two years of work now to improve the rest of your life? And it't so uplifting to hear the joy in your voice regarding feeling great. So inspirational - well done!

  • Thanks for your encouraging words @Fran54 and @Janlyn

  • Twig
    Twig Member Posts: 9

    @Janlyn @Nurina I have been following the experience of you both which has been so encouraging and helpful and thank you for sharing as others have said it’s really helpful to read real experiences. I am just coming up to 11 weeks post right THR and have an appointment with surgeon next week. I’m walking without crutches using poles if I walk outside for any distance doing my physio daily but still getting pain in groin my but and scar physio says it’s muscle and tendons the other big issue for me is my unoperated leg the knee is so painful I am considering asking GP to refer me to orthopaedic. Physio said maybe a good idea but went on to say often the good leg takes a bashing and post surgery can play up is this anything you have experienced and did it get better it’s so disheartening when my range of motion in what was my bad leg has come back.


    thanks Twig

  • @Twig Maybe your "new" leg hasn't gained enough strength and your unoperated leg is overworking to support everything. I think all of us have experienced pains in different old and new places during recovery. 11 weeks is very early days and your wound is still healing Groin and butt pain could be very similar to the pain before surgery. Back and knee pains are very common because you are changing your posture. Anyway, it's better if you ask for a professional opinion.

  • Twig
    Twig Member Posts: 9

    @Nurina thanks I will ask surgeon when I see him. It’s like you think things are settling and then you get another ache I am not a patient patient and I have read here the 3 Ps so I need to try and remember them and you are right it is early days it’s just such a roller coaster


    thanks for your help

  • Janlyn
    Janlyn Member Posts: 627

    @Twig I agree with @Nurina. 11 weeks is very early and you still have a lot of healing to do. Your groin and butt pain sound very similar to mine. It took a long time to start to make a difference but from around September I found I had strength that I haven't had in years. I remember at around 11 weeks I felt I wasn't making as much progress as I should have been making, but another couple of months and I could really feel a difference.

    I really think a physio or chiropractor could help to work out what is happening and help you reach your full potential. Many people told me that we continue to recover up to 18 months to 2 years post surgery. That we feel recovered but there is more potential to improve. I can say the 3 Ps were worth all the effort and have paid off. I hope you get some answers and some improvement soon.

  • Twig
    Twig Member Posts: 9

    thank you @Janlyn you are right about being at 11 weeks and feel not making progress it’s easy to forget how far I’ve come it was 11 weeks ago today! I think I have been so up and down one min elevated at the change the next feeling going backward with pain but it’s nothing like the pain before and I need to remember that. It’s my first day today of a phased return to work it will be interesting to see how I feel tonight!

    Thanks once again

  • Janlyn
    Janlyn Member Posts: 627

    @Twig wishing you all the very best with your phased return to work. I hope it's been nice to get a little bit of normal back in your life, although I guess you will feel very tired for a while. It does get easier but often it's only looking back when you realise how much progress you've made. I remember my first tentative steps back into the real world - it's so much easier now.

    Wishing you all the very best.

  • This is very similar to what my surgeon said. It's an operation to relieve pain, not to give you the mobility you had a few years ago. I found that very difficult to accept.

    Mentally before my surgery I viewed that as the fix I needed to make everything good again, but as I've found out post bilateral hip replacements it comes with it's own pains and limitations. Right done July '21, left done December '23 and both still cause me issues such as being unable to sit too long without pain, and restless leg at night. That's been hard for me because I know there's no fix except maybe time and the area to desensitise.

    Equally I was basically bed bound before my surgery and now I play football at least once a week, go to the gym 4+ times a week, and now training for a 10k race. I still get a lot of discomfort where they cut through and I'll always want more though, but that's probably a symptom of the stubbornness and determination you build from being in chronic pain.

    So I can't really complain. I'm human though so I'm still going to.

  • Nocturne
    Nocturne Member Posts: 16

    Hi everyone, I posted briefly last year on learning I needed TLR, and have followed all posts on this thread while waiting my turn this spring. I really appreciate what people have put on here as I've learnt a lot from people in differing situations. However one thing I find hard to envisage is what it will be like looking after myself after surgery. I've done this before after major operations but they didn't directly affect my mobility. I'm quite well organised re having plenty of food in, prepping meals in advance to freeze etc but can't imagine what it would be like if I'm not allowed to bend. Is there any way I could do a mock-up - I don't know, something like tying a big cushion round me to remind me not to bend, so I could have a practice. I don't want to get caught out on return home because I've not bothered to research it properly. Any ideas very welcome! and thanks for reading.

  • Ellen
    Ellen Moderator Posts: 1,917

    Morning @Nocturne looks as though non-one has yet seen your post so I will 'call' some of our 'hippies' @Janlyn @Trish9556 @Twig avoiding alwaysewing as they are having knee surgery this very day.

    Hopefully someone will spot your post and advise soon.

    Ellen.

  • Nocturne
    Nocturne Member Posts: 16

    Thank you Ellen, that's kind of you. I recognise the names as I started a thread on dental treatment before surgery and got some very helpful responses. Lovely warm feeling being part of this community where we help each other.

  • Janlyn
    Janlyn Member Posts: 627

    @Nocturne It's good that you are thinking of this ahead of surgery and that you're well prepared regarding food and things. I do think after surgery you won't be tempted to bend initially. I was frightened I would forget but really I was moving too slow to forget. I had put most things I would need at the right height. I had sorted out clothes I could put on easily and didn't go anywhere without my grabber, long handled shoe horn and sock helper. I think to expect everything will take longer than usual to do is worth remembering. Getting up and down stairs, getting washed and dressed, getting food ready (even when organised) takes longer than usual. Tiredness just happens. Sleeping at night might be difficult so short naps during the day are useful. Exercises take time too.

    If it's any help I was terrified of looking after myself but actually it was much better than I had thought. Somehow I didn't forget and do the wrong thing and slowly, sometimes very slowly, progress was made. Keeping s long-handled bag close is useful for putting things in to move around the house. Putting a chair by the kettle means you can easily have a hot drink. I can't think of anything specific but please do ask if there's anything you are particularly worried about.

    Take care.

  • Nocturne
    Nocturne Member Posts: 16

    Thank you Janlyn, I have some aids and OT has provided me with aids for bathroom, plus I remember from previous ops that everything takes longer. I'm in a ground floor flat so no stairs. The wheelie bag is a good idea and I can clean the wheels of my shopping trolley to use indoors. I've never had crutches so have watched Utube for lessons - one very good one showed how to use the toilet! I'm trying not to overthink, I'm sure our bodies soon get the hang of new ways of doing things. Thanks again for your help.

  • Janlyn
    Janlyn Member Posts: 627

    @Nocturne you are well prepared and it will help your recovery. Don't worry too much about how to do things, much of it comes naturally, and they do show you what to do, and not to do, before you leave hospital.

    Take care.

  • Trish9556
    Trish9556 Member Posts: 808

    Hi @Nocturne

    I would recommend baggy trousers with a tie waist and elastic laces for your shoes. You'll never need to bend and tie them ever again and used in conjunction with a long handled shoe horn it's so easy.

    I bought cargo trousers and they were a godsend. I hooked one end of my shoehorn through the belt loop to wiggle them on. They also have lots of pockets which are big and baggy too.

    If you haven't got grab handles for the bathroom I would recommend the style that are easily removal so you can adjust placement

    Trish

  • Nocturne
    Nocturne Member Posts: 16

    Thank you for your tips Trish, and also Janlyn. I have some baggy sweatpants and wear slip on shoes so with the shoe horn should be ok. When I ordered my sock puller I found an extra item in the pack - they look like braces and apparently are for pulling up trousers so I'll have a dress rehearsal, sounds like the same technique you describe. I guess lots of wiggling and giggling . . . . . . Wearing things with pockets is a good idea too.

  • Zimmer
    Zimmer Member Posts: 60

    It's nice to hear new voices, in that operations are steadily being done. I haven’t been on here lately as I must admit that depression has the best of me at the moment.

    Everytime I call the hospital, it's another 6 months, and that's just for the 1st assessment apparently.

    I was so taken aback that I didn't even ask how many assessments there are before the op stage. Can someone please let me know so I can brace myself, cos I don't think I can take anymore surprises

    Sorry for being a debbie downer guys and certainly don't want to rain on anyone's happy (ish) recovery😘.

  • frogmorton
    frogmorton Member Posts: 30,223

    Hi Zimmer - let's hope everyone has some Ideas how to speed things up for you?

    Toni x

  • Janlyn
    Janlyn Member Posts: 627

    You've got me giggling now about the 'braces' - that's a new one on me but sounds helpful!

    I'm so sorry to hear you're feeling so bad and no surprise with the extended waiting time. You are understandably feeling down - it sounds as though no one is being helpful and giving you any hope, but just reporting delays. Is it at all possible that you could have surgery somewhere without such a long wait?

  • Zimmer
    Zimmer Member Posts: 60

    @Janlyn @frogmorton thanks both. I have no idea what to do, someone did suggest paying for a private consult and then be put on his nhs waiting list, basically jumping the queue, but that just seems wrong to me. I am, starting to lean towards this option if I get more of a run around you know. Just so sick of these four walls, the pain, constantly relying on others and absolutely no independence.

    I think I'll push myself to get back in the pool, as that always seemed to lift my spirits.

  • Trish9556
    Trish9556 Member Posts: 808

    @Zimmer

    I'm sorry you're facing more delays. If you live in England you have the right to choose where you are treated under the nhs choices scheme. I was lucky that my physio referred me to the nearest hospital with the shortest waiting list. A wonderful private hospital five miles away that was paid for by the nhs.

    Check the scheme out, you might be able to change hospitals as you're constantly delayed.

    Trish

  • Zimmer
    Zimmer Member Posts: 60

    Yeah, that's probably why then, as I'm in Wales and there's not many hospitals that fall within my county's catchment area pff

  • Janlyn
    Janlyn Member Posts: 627

    @Zimmer a good idea from @Trish9556 if you are in England. I do understand how difficult the pain and constant delays have on you. I had my surgery 14 months ago and I can't believe how much my spirits lifted simply by not being in pain and seeing a future. Wishing you all the very best.

  • Zimmer
    Zimmer Member Posts: 60

    I can't believe it's been a year already Janlyn, hope you've fully recovered now