Looking to chat with adults who have had RA since childhood.

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Bic1982
Bic1982 Member Posts: 32
in Living with arthritis

Hi,

I was diagnosed with JIA when I was 2 years old. I am now 42 and have just had my fourth joint replaced. Due to long term steroid use, I have had many complications and struggle to heal now.

I dont feel like my doctors are particularly supportive, and definitely do not take in to account that I have grown up with this condition and know my body. I seem to be fighting for every little bit of treatment at the moment and often feel like my concerns or questions are dismissed quickly.

I do not know anyone else that was diagnosed at such a young age and think it would be helpful to me, although I would welcome any interaction with anyone on the community.

Thank you

Anne

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  • chrisb
    chrisb Moderator Posts: 801

    Hi @Bic1982 (Anne)

    Welcome to the forum.

    I hope that joining the forum gives you the opportunity to converse with others who have also experienced JIA. If you initially only receive limited feedback then you could try posting in the 'Coffee Lounge' or 'Val's cafe'.

    Best wishes

    ChrisB (Moderator)

    Need more help - call our Helpline on 0800 5200 520 Monday to Friday 9am to 6pm

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