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Flare up after stopping MTX
Hello, After 7 years in virtual remission, no symptoms, I tailored my MTX down to 7.5mg and was told I could safely stop and monitor how things went. I stopped in November, all fine to begin with. By early March I had CRP of 25 and beginnings of pain in my thighs (front /back) and upper arms. I have tried managing pain…
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Shingles and Methotrexate
Hi Everyone, I've been on Methotrexate for just under a year (8 tablets once a week), plus daily steroids and have just been told I have shingles, which is very painful and unpleasant. They've given me antibiotics for this as it is super painful and I'm feeling very rough. Has anyone got any advice or experienced this…
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Delayed diagnosis but at last a diagnosis
Hello, I’m newly diagnosed with psoriatic arthritis. I’m 62 and the pathway to this has been 3yrs and 2nd opinions. Is it weird to be happy to be told there is actually something wrong with you? Even more intriguing is that the doc who saw me on listening to me said this had clearly been going on since at least my 20s,…
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Methotrexate help
Hi Everyone, I am 37 and I have psoriatic arthritis. Only diagnosed November 2024 after 4 years of pain. I started methotrexate two days ago. First medication I tried I was allergic to it. I have had nausea all weekend, and pains in my abdomen. I’m only on 7.5mg this week. I’m just worried going up to 10mg next Friday. The…
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AOSD flares.
I'm a 72 years old, busily retired male. I was diagnosed with AOSD in summer 2024. Prior to the diagnosis I was on Paracetamol, Tramadol, Naproxen and Amitriptyline to ease the pain. After I was diagnosed and put on Prednisolone, i started to feel better within hours. I stayed on those drugs for several weeks while the…
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newly diagnosed with RA and looking for advice
Hi all, my husband was diagnosed in December with RA. He was given methotrexate (6 tablets per week and 1 folic 2 days after) but after the third dose he felt awful, said he just didn't feel right and was getting real bad pains in his back both side under the rib cage which we put down to kidney pain. Spoke to the RA nurse…
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Methotrexate and the sun
hi all 👋 Has anyone had a problem with the sun and methotrexate? We’re off to Greece (booked before the diagnosis as a family wedding, and being prescribed the mtx) Can I stop the mtx whilst I’m away to stop the potential burning? I use factor 50 anyway, as I’m pale and can still burn. I know that if I get a cold, covid or…
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Hello, I'm new here!
Hi all, Recently diagnosed and started Methotrexate on Monday....8 tiny pills that are making me feel abit rubbish at the moment. After reading about the nausea, i thought i had got away with it, but yesterday it hit, along with a tummy that feels like it is acidy, hungry and on fire. I know it was only my first dose and i…
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Hello and advice please
Hi, I was recently diagnosed with rheumatoid arthritis and put on methotrexate. I've only taken one dose so far but feel quite nauseous and have vomited once. Is this normal? I'm also a bit worried about work. I sit in a open plan area with about 18 others. Is this OK with the immune suppressants, or should I request a…
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RA diagnosis at 50: Is It linked to menopause?
Hi everyone, I’ve recently been diagnosed with rheumatoid arthritis (RA) with CRP 10, Anti-CCP 43, and RF 79. My doctor has recommended starting Methotrexate (15mg/week) early to slow progression, but I feel a bit anxious about beginning such a strong medication, especially one that might be for life. My symptoms…
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Psoriatic arthritis progression? What to do?
Hello everyone! After a long time in pain I was diagnosed with psoriatic arthritis in June last year, had steroid injection in my hip and started on methotrexate. MRI at that point was showing inflammation in hips (right was the main problem) other findings were inconclusive. I was hopeful and really wanted to regain…
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RA in remission: has anyone been told to stop methotrexate?
My RA has been in remission for several years with very few flare-ups, which is great, and I’m just on 7.5mg methotrexate with no adverse effects. Also have osteoarthritis, osteoporosis and Sjögren's syndrome. Last year my rheumatologist made a passing comment that I could probably stop taking MTX. I’m due to see him again…
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Increasing nausea......
I have been on Methotrexate for almost 11 months now, by Metoject injections. Apart from feeling a bit "below par" the day after the injection I haven't had any side effects since my Folic Acid was increased from 1 tablet a week to 3. My R.A. symptoms/pain haven't improved so just before Christmas I started on Yuflyma as…
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Hi there, I'm new!
Hi there, I'm new here but have been reading up on various threads since I was first diagnosed back in October. I found the community really useful: thank you for sharing your personal experiences, it has been a real help for me. A little bit about me: I was diagnosed with PsA and psoriatic spondylitis 12 weeks ago and…
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Flare-up symptoms
Hi there, I was diagnosed back in October and I’m still trying to understand all the ins and outs of my condition, seronegative PsA and psoriatic spondylitis. especially flareups I’m unsure what they look like or should look like. I understand they are different for everybody. I’m in the middle of a flareup now and was…
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Recent massive flare up
I have had OA for a long while and had a TKR on left. I use a wheelchair, as so many years using crutches has meant using crutches causes pain in hands & shoulders. This year I had a flare up of pain, stiffness, and weakness in my hands, wrists, and shoulders that was brutal. I couldn't even pull a bedsheet up during the 6…
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Methotrexate Blister
Hi! im new to injection form of mtx, ive had 3 doses so far, all have been fine except my one from two weeks ago, there is a small blister formed round the injection site, slightly red but nothing else. Has any experienced this before?
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Recently diagnosed
Hello all, I am 39 and was diagnosed with RA 2 weeks ago. I have been given a steroid injection to offer me a bit of relief whilst I research the drug methotrexate which I will go on long term. Is anyone this? In a similar situation? I am just looking for a bit of support. Thank you
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Another Newbie to the Forum
Hi all Just joined the forum. I have had Psoriatic Arthritis for 23 years and started on Methotrexate yesterday. It would be nice to get to know people who understand how hard it is mentally and physically. Going for a nose around. Pls say Hello 👋🏻
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Come to say Hello
Good Morning, just joined and wanted to say hello. My name is Amanda I am 47 and I was diagnosed with Sarcoidosis a year ago. I saw a rheumatologist this time last year who mentioned rheumatoid arthritis due to the pains in my fingers , thumbs, wrists, right knee and ankle. I was put on Methotrexate in May (15mg) which has…
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Thoughts on Adalimumab?
Hi all, New here and hoping for some advice from fellow RA’ers! I’m mid 30s and was diagnosed a few years ago, have been on methotrexate tablets (made me ill), went on to Metaject and (not able to tolerate more than 15ml), and take hydrocloxi - still don’t know how to spell or say it! - every other day. My next option is…
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Saying Hello
I have RA, localised in my right arm, and a worn elbow joint both of which I have been suffering with since 2021. The first medication prescribed was Methotrexate which did not agree with my Liver and pushed ALT up to 254. I am currently researching Sulfasalazine which I have been prescribed and plan to start, but watch…
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Vaccine advice
Hi All, I’m new here and am just wanting some advice to see if anyone can assist. 🤞🏻 I’ve been diagnosed with Psoriatic Arthritis for approximately 2.5 years and am on weekly methotrexate injections (delightful!). My wife and I recently booked a holiday for next year which requires a Yellow Fever Vaccine; however, this is…
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Moving to Jersey, Channel Islands
Hi Everyone, Has anyone moved from the UK to Jersey Channel Islands after being diagnosed with Inflammatory Arthritis? For context I'm moving in March and have recently been prescribed the Metoject pens, and am wondering how people have found navigating the medical system and moving from the NHS system into the Jersey one?
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Methotrexate and Acne
Hi there! I just wanted to share a little of my experience in the hopes it might benefit someone else experiencing this side effect. I've been on Methotrexate for my psoriatic arthritis for 10 months now and while my health has seen much improvement I've struggled with non stop aggressive acne. I've tried all spot…