Hi all, I finally got my diagnosis last week and am still trying get my head round it. I’ve got a couple of questions and would really appreciated any help you can give. In 2018 I was diagnosed with IBS, this was done without any investigation into it being anything worse, they just checked for Gluten or Diary Intolerance.…
I’ve been on MTX for relapsing Polychondritis for a while, about Six months, and I have started suffering with depression again. Fortunately I know the warning signs rather than just spiralling downwards out of control, I have realised that I am showing warning signs with my behaviour and thought process. Has anyone else…
I have recently been diagnosed with osteoarthritis in my neck and shoulders. My ears throb and my neck clicks when I move it. Does anyone else have this, as I'm doing exercises but it doesn't seem to help
Hello I'm new here im 50 years old. I started with pain in my back about 3 years ago the pain was worse when I was sitting at my desk in work but when I asked for a new chair I got no there is nothing wrong with your chair it's the way you are sitting or it's because your fleece is on the back of your chair. fast forward…
Hello, I'm due to have a reverse shoulder replacement, I live alone and I can't find any practical info about how to cope afterwards -preparing meals, getting dressed, what to wear etc. I'm assuming I won't be able to get a bra on! But will I have any use/movement in my operated arm, what kind of clothes will I be able to…
Hello I'm new and I'm lost. I was already told I have joint hypermobility syndrome when I was younger but was never offered any support. Fast forward a good 20 years and I'm almost unable to move some days. I was undiagnosed ADHD and ASD which come with lots of stimming behaviours that may have exacerbated areas. As a kid,…
I tried to paint a picture of how I really feel, but I could not find the colours to make it all seem real. Not one colour hot enough to show the burning pain, not one colour bright enough to make me wince again. Not one dark enough to show the isolation. In the end all I saw was one thin line, worn, frayed and almost…
Hi I'm new and just wondering if anyone has been diagnosed with DISH (Diffused idiopathic Skeletal Hyperostosis)
Hi all, I'm new here. I've had OA for years and it's been particularly bad in my right hand and index finger is swollen. GP ordered more blood tests and an xray last week. All bloods have come back normal apart from a slightly elevated CRP of 11. I have a call booked in with the GP tomorrow but a couple of times this week…
Just joined and wanted to say "Hello 🤗" Diagnosed with Cervical Spondylosis, Plantar Fasciitis, Fibromyalgia, OA in the AC joint in my Shoulder and more recently Severe OA in both hips. Have sore knees, ankles, hands and elbows too with nothing diagnosed with them (yet!) Anyway, gentle hugs to all that are suffering 🤗
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