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Amgevita then Benepali now Orencia
Hi all, It's been two years since my diagnosis. Since then I've tried methotrexate, sulfasalazine amgevita, benepali and I'm due to switch to Orencia. Has anyone else found it difficult to find a drug that works for them? I don't get masses of swelling but I do get joints that are red and the soreness and pain stops me…
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severe seropositive ra flares
hello, i have just joined this group seeking help and advice about how to continue living with severe seropositive ra, i've just had another really bad flare all joints, knees, wrists, elbow, ankles, jaw, bed bound for 72 hours, soiled my bed couldnt get to the toilet on time, had to wee in bedpan for 72 hours, couldn't…
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Really down - Methotrexate and catching viruses
Hi all, I am on Methotrexate and always seem to catch viruses and when I get them, I just can't seem to shake them off easily and I feel really unwell. This is getting to me. I know that Methotrexate affects the immune system but it's beginning to get me down. I wondered if anyone else is feeling the same?
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Living with Psoriatic Arthritis and a toddler
hi there I’m Rachel, I’m new to this community, I was diagnosed with Psoriatic arthritis at 19. I am now 33 and have a 18month old. I’m reaching out as I am currently struggling with a bad flare up in my knee, struggling with pain, fatigue, etc just feeling very overwhelmed at the moment and on top of it all trying to be…
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Moving to Jersey, Channel Islands
Hi Everyone, Has anyone moved from the UK to Jersey Channel Islands after being diagnosed with Inflammatory Arthritis? For context I'm moving in March and have recently been prescribed the Metoject pens, and am wondering how people have found navigating the medical system and moving from the NHS system into the Jersey one?
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RA lost voice
Hi! I m new to the group so hey! So i need some help, I have currently had no voice for 8 weeks. Got referred to ENT and they put a camera down my throat and told me yes it's arthritis causing a gap with your vocal chords! I am utterly shattered, they won't offer any help, treatment and they have zero care. My throat feels…
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Osteoarthritis neck new diagnosis
Hi, New to group . I’m 62 and after paying for private physio for a few sessions and not getting better . Went GP . Neck x ray and diagnosed mild osteoarthritis in neck . Struggling to turn to right. Got exercises to try from video call with hospital. They hurting to do . Waiting actual appointment to have hands on physio.…
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hospital total failure
so 9 months after waiting for ra apt was told scan in 1 month only to find out it will be about 3 months and no follow up apt. i have complained to pals and the ra clinic at the way i'm being treated. upon further hunting i find that the ra "consultant" has a 1* review at another clinic for their "bedside manner and…
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Causes of reactive arthritis
New here and lots of questions. Thanks for bearing with me. From my early research, I’ve been alarmed to read that STIs are the top of the list of causes for reactive arthritis (along with gut issues/food poisoning). This has left me really upset and confused. I have been in a relationship for 20 years. I’m not aware of…
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Sleep
Does anyone have useful tips to get a comfortable night's sleep? Last night, I struggled to get comfortable which resulted in a poor sleep. So, today (1st day of half-term holidays) I am so tired 😴