Botox and stuff....
skezier
Member Posts: 11,333
Hi All,
I have had so much support from you all and non of it was deserved but I figured I should let you know whats going on.
A lo of you know I got pa and oa in my neck and well collectively they are in most joints now. I have had a bit of surgery could do with some more but the lumber was stopping the hips... now the neck is for sure.
I been having temp nerve things in both the lumber and the neck with trigger to ups and well they work less well each time. There was when I had the MRI 3 duff disc's, one nearly fully dehydrated the others prolapsed and bulging and its sort of run its curse.....
I am not a good candidate for surgery.... a permanent de-nerve, cryo, chemical, electronic, anything just too far gone......
Hell writing that hurts!
She has gone over to botox and given me local anesthetic patches to try and keep it quiet while the botox takes full effect. 10 days she recons but she has given me 30 days worth bless her......
Feeling totally gutted cus well its one thing to know your knackered another to be told it.
On the plus side she has pumped the whole of my shoulders and neck with local and also the botox might work better then steroid... though she normally puts steroid with it. She said it was too inflamed to use that today.
I have a life, I will not give it up and you know what this has proved I was right not to! She did say I might get a bit longer out of it if I stopped doing the sheep (tis always the sheep eh?!) but does except I have made my choice. Thankfully she has promised me the best maintenance she can come up with...... as long as I think its ethical and one day that's going to be really tested......
Sorry if this is TMI for some of you but I just needed to say.
It changes nothing I will be in no more pain tomorrow than yesterday and no less able really its just hit me a bit that's all.
You all take care and well my bottom line is they told me my lumber would get me and it hasn't yet..... its got a 10 year head start on the neck so....... Cris xx
I have had so much support from you all and non of it was deserved but I figured I should let you know whats going on.
A lo of you know I got pa and oa in my neck and well collectively they are in most joints now. I have had a bit of surgery could do with some more but the lumber was stopping the hips... now the neck is for sure.
I been having temp nerve things in both the lumber and the neck with trigger to ups and well they work less well each time. There was when I had the MRI 3 duff disc's, one nearly fully dehydrated the others prolapsed and bulging and its sort of run its curse.....
I am not a good candidate for surgery.... a permanent de-nerve, cryo, chemical, electronic, anything just too far gone......
Hell writing that hurts!
She has gone over to botox and given me local anesthetic patches to try and keep it quiet while the botox takes full effect. 10 days she recons but she has given me 30 days worth bless her......
Feeling totally gutted cus well its one thing to know your knackered another to be told it.
On the plus side she has pumped the whole of my shoulders and neck with local and also the botox might work better then steroid... though she normally puts steroid with it. She said it was too inflamed to use that today.
I have a life, I will not give it up and you know what this has proved I was right not to! She did say I might get a bit longer out of it if I stopped doing the sheep (tis always the sheep eh?!) but does except I have made my choice. Thankfully she has promised me the best maintenance she can come up with...... as long as I think its ethical and one day that's going to be really tested......
Sorry if this is TMI for some of you but I just needed to say.
It changes nothing I will be in no more pain tomorrow than yesterday and no less able really its just hit me a bit that's all.
You all take care and well my bottom line is they told me my lumber would get me and it hasn't yet..... its got a 10 year head start on the neck so....... Cris xx
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Comments
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Hi Chris
Thanks for letting us know. It means a lot that you are able to share what happened at your appointment.
Yes it is hard to be told that your body is 'knackered' as you put it. But I think it helps in the long run to be able to manage and cope with it. I am glad also that she has given you some more pain relief and I hope that really works well for you.
As you say, you have made your choice at the moment with the sheep and so if you can live with that decision, then that is all that counts.
Well, thinking of you and you totally deserve all the support given over the last few weeks, I don't know why you think that you don't? We all go through our rough patches and surely this is what this forum is all about.
Anyway I am waffling - so going to stop now. Take care Chris, thinking of you.
(((((((((((((((((((((((((((((((((((((((())))))))))))))))))))))))))))))))))))))))
Fayann xxx0 -
Of course you deserve support - you are one of the most supportive to others on this forum and in turn we should return the compliment. Do not under-estimate just how important you are to a fair few of us on here.
Yes: it is a blow. Be kind to yourself, and give yourself time to come to terms with it. There is a big difference between thinking it might all just be getting that little bit too hard, realising it is and then being told so. You are a very strong-minded and independant person, and I have no doubt that when this stuff does beat you it will be on your terms, and your terms only.
You know that you have our support, and our love, all the way. You do what is right for you, not the complications. DDHave you got the despatches? No, I always walk like this. Eddie Braben0 -
Cris wow what can i say but its your grit and determind attitude that is behind your smile that to me hid so much now i know , just tell them sheepies to be have or else they will look like poodles next year xxI know i am a lady ,all life is a journey xx MAY xx0
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massive {{{hug}}} for you chris, i hope you start to get some relief soon
coco xx0 -
Do ya know, if I read one more time that you are such an undeserving ****, I`m going to come down there, and slap you!! I wouldn`t really, I could never cause you pain, my love. You are always there for everyone else, so please stop being so surprised that they want to return the favour.
You made the choices that were right for you, years ago, and you will continue to do so, despite the pain and discomfort to your life. You know, lots of folk can`t make those choices, for all sorts of reasons. For as long as you can, follow your heart. I am just so very glad that you have good medics on your side, helping you as much as possible.
Take yourself - either literally or in your head! - to the places you love, and keep fighting back.
I am so hoping for some improvement for you Cris........Much love.......Ange.x.0 -
hi Cris, I am so sorry that your hopes for surgical intervention have been dashed. You are bound to be feeling disappointed and let down. Give yourself a chance to let it sink in and for the pain relief to kick in. It's one thing to know something deep down but another to have it told to you and you need to come to terms with it and decide how to go on from here. You are a determined woman with guts and your inner strength will get you through this but we will be here to support you too.
lots of love
Sal0 -
Hello Chris, I wish we could give you more than just support, but we can't so thats what you're going to have. If anyone can cope with this its you, so strong and brave. I know I'm not alone when I say I shall think about you and send you 'be strong' wishes and hugs, as well, of course loads of love. Take care, love and hugs Sue xxxxxx(((()))(((())0
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Cris..
What you've come through recently.... well, lots of us wouldn't have the courage or strength to cope with.
You are an inspiration .. to hold fast to what is important in our lives and not to let arther dictate who and what we are.... nor diminish what we set our minds to doing.
I hope with all my heart flower that your treatments today give you some ease....
love & ((((hugs))))
Iris xx0 -
Cris, go gentle on yourself. I can only echo what the others say.....you and your cats, dogs, calves, horses, not to mention the sheepses have endeared themselves to us and believe me, you have helped more people on here than you know.
It is not given to all of us to be able to follow a dream. Practicality, the necessity to earn a crust or two and life in general intervene and send us down side roads, diversions, u turns....and usually away from the dream. You have shown what can be done with courage and determination to succeed in your dream and it is truly an inspiration.
Thank you for being you...........and have these for starters
(((((((())))))).
Love
Annie0 -
Hi Cris,
I didn't know about all the pain you are in. I only really knew about your neck.
You truly are a remarkable person I'm sending you the biggest hug and only wish I could do it in person. Maybe one day, you never know!
lots of love,
Eileen ((((()))))xxxxx0 -
HI Cris
I can only echo other people's comments.... you're a terrific person and, as well as the support you give, you also really cheer me up and make me laugh when I read the stories about what your animals get up to (being an animal lover myself)... I'm still laughing about your dog who has the 'ear piercing clinic' that all the other dogs attend, apart from the one who has her own clinic!! I think about that every time mine have a 'set to.' Brilliant!
Love from Marion xx0 -
Im no good with words Cris but know the air will be filled with Bubbles for you.
Sharon xxxx0 -
hi Cris, how are you doing today hun? Worried that you haven't been around today.
xx0 -
Cris you give has much support to us lot has you do to your sheepies I can only imagine what goes through your mind has to the future.
But I know one thing, the life you lead with all your lovely employers is what makes you happy and has given you the strength to carry on.
I hope and pray that this treatment works for you, the nurse sounds so nice...i think she understands where you are coming from
Sending you loads of hugs (((((()))))
Love
Barbara xxxLove
Barbara0 -
Hi Chris
Just wondering how you are doing today?
Your message starting this thread is very inspirational to read. You are taking alot of blows and you still manage to sound positive.
I applaud you and hope you are smiling
Carolx0 -
Hi Cris
Just caught up on your thread from yesterday and can't add to everything that's already been said. I am so sorry you have been dealt such a blow.
You are so wrong about not deserving the support though Cris - as other peeps have said you are so supportive of everyone else, in spite of your own struggles and you are so deserving of all our support and admiration for the way you cope with everything.
I really hope that the local anaesthetic and the botox start to give you some relief soon Cris.
Loads of love and (((((()))))))s.
Thinking of you,
Tilly xxxxx0 -
Oh :oops: :oops:
I am so so sorry - I didn't know we had two Cris threads :shock:
Still being a twonk aren't I? :oops:
has Cris been on today to let you know she is ok? She has had the scan and is fine - I n fact she is fetching me cyber teabags from tesco.
As usual her chirpy and wonderful self despite all the shift she has to shovel :roll:
Love
Toni xx0 -
I'm worse than you, Toni..........I did know there were two threads and posted to the wrong one!
Cris, hope you is all ok, petal.
Annie0 -
Hi Fayann, DD, Berty, Coco, Ange, Sally, Sue, Iris, Annie, Eileen, Marion, (breath ) Lynn, Sharon, Barbara, Carol, Tilly and Toni,
Thank you all so much and sorry I went AWOL.... Just had a bit too much in my head for a min there. Sat and processed some at an tin mine yesterday and processed the rest today on cliffs and a the beach (thanks Rose I even got my feet wet... twas warmer than you'd think Planned.... well..... did any of you think it might have been That dam 7th wave )
The gallstones have either dissolved or weren't there. I also saw someone in the NHS today who didn't think I was about to die... hell I needed that What happens next on that score I have no idea..... Will shelf it for now cus sure its just a hernia or the crohns.........
The neck and shoulder... well I sat with the sheep (some of you know how much they hug you... specially if your the one with custard creams or today double choc cookies..... I did actually want one but didn't dare cus one of them counts and actually butts me if I eat one of HER bikkies )
Anyway I can get round my neck same as I have been doing so I don't know what made me nose drive like that.... I think it was just overload. When I see the rumo I have so much to ask about but will have to prioritise...... he hasn't got time for all this!
So tween now and the 20th I got to work out what is the priority.... the drip has to be first, the mtx not working and then see what time is left..... I was thinking today maybe writing to him with the concerns I have would mean he will then know what we should talk abut and some of the questions are a simple yes or no...... Has anyone ever tried that?
I do a lot of visualization and you know stood at Hell Mouth today I scooped all the junk that's bothering me out and threw it over..... it can't survive that fall and if t does it will get swept into the Atlantic I really can do visualization stuff too well....... :roll:
You are always so supportive and I still not sure I do deserve it but sorry for forgetting I can do this....... Just as well really eh?!
Need some supper glue and baler twine and chuck in some silage tape and I'm back together...
Thank you all and I am sorry I let it get to me so much. ((( )))'s to you all Love Cris xx
Hey Berty.... they often get the poodle cut with the Zulu legs We might do a crash course on shearing That one kills! ((( ))) xx
Hi Marion,
The ear piercing shop has vacant possession now a days but I am on the look out to find a tenant Got to be a springer Hope your girls don't make too many appointments ((( ))) xx
Hey DD what are terms,..... I don't have any and its at the bottom of a cliff unable to have any xx
Hi Iris,
Just a great big hope and a ((((( ))))) xx
Right I got to go fix a hover belt again...... its a ploy cus well I promised my self I'd not rant today0 -
Hi Cris,
It’s been a busy couple of days for you. A lot for you to take in so I hope your wander over your beloved cliffs has helped you to relax and get your thoughts in some sort of order.
You are certainly a very special person Chris and you have made the right choice for you. Your inner strength will carry you through this. I do hope you will start feeling the benefits of the Botox very soon.
As always loads of gentle hugs coming your way.
Lv, Ix
Oops just seen your reply. Good old sheepees being there for you0 -
Hi I,
Oh they are magic...... and have no idea what having 'might be costing me' I still have to run the gauntlet with the calves as well.... they are now head high :shock: :shock:
I have processed it now flower and well back to normal, what ever that may be...... ((((( ))))) coming back to you and just posted on your mtx one. Cris xx
And I really do have to go mend this hoover...... :roll:0 -
Hi Cris, I think writing a letter with your concerns is a very good idea. I don't know about you but when I am in that consultation I so easily get sidetracked. Have all sorts of half conversations with rheumy before am on the next thing.
Lovely that you got to the beach. I would love to live near the sea, instead I am smack bang in the middle of a city.
Glad you are doing ok hun.
lots of hugs
xx0 -
Cris you really are a truly magical person. Inspirational as somebody else so rightly said. And yes you made choices that have helped you mentally, maybe not so physically but then we all need things to aspire to. It is what makes us get up in the morning and keep fighting.
One day soon I am coming down to help you. Just waiting to get a new car (I haven't driven for 6 years so watch out)! and I will be down that motorway like a shot.
ElizabethNever be bullied into silence.
Never allow yourself to be made a victim.
Accept no ones definition of your life
Define yourself........
Harvey Fierstein0 -
Hi Cris
hope your feet are dry after your toe dip in the sea
well done flower for being able to sort out in your head what you've experienced and then decide on what your priorities are
I think the letter to rheummy is a great idea and will give him a clear pic of what's been happening and what questions still need answering. :!:
hope you managed to sleep better last night? and that the lodgers are behaving themselves and not pushing and shoving you about.
sending you down some reinforcements... custard creams and double choc biccies for wish and hope... and a CDM for you..
(((hugs)))
iris xxx0 -
Hi Cris,
well really hoping the Botox helps.
Sounds like you have a good doc there. Of course a cure would be utopia but the best maintenance on offer has to be next best thing. (those extra patches are a good security blanket for the worst days ... hopefully she'll give you another stash when they run out.)
The doc didn't tell you to give up your lifestyle and sounds as if she is prepared to support you all the way, what a gem. Only you can decide when enough is enough and until that time (which as you say could be a long way away, if your back is anything to go by) you might as well carry on doing what you love.
Take care
SpeedyI have had OA since mid twenties. It affects my hips and knees. I had a THR on the left aged 30 and now have a resurface-replacement on the right - done May 2010.0
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